If you or a loved one has been diagnosed with Parkinson’s Disease (PD), one of the first questions you may ask is, “Where can I find the best care?” While several top-tier medical centers across the U.S. offer specialized Parkinson’s treatment, the answer isn’t always about the largest or most well-known institutions. The best Parkinson’s center is the one that offers compassionate, comprehensive care where you are—support that meets the needs of both those diagnosed and their families, every step of the way.

A Nationwide Network of Excellence
Centers like the Cleveland Clinic, Mayo Clinic, and UCSF Parkinson’s Disease and Movement Disorders Center, the University of Florida (Parkinson's Center of Excellence), and the University of Miami Movement Disorders Division, are often recognized nationally for their medical research and advanced treatment capabilities. These centers offer access to neurologists, clinical trials, surgical interventions, and deep brain stimulation (DBS) technologies.

However, these large institutions aren’t always accessible to everyone. That’s why regional centers and nonprofit organizations play such a critical role—providing support that is not only accessible but also personalized and deeply rooted in the community.

A Local Resource with National Impact: PASWFL
For those living in Southwest Florida, the Parkinson’s Association of Southwest Florida (PASWFL) stands out as one of the most impactful and compassionate centers supporting individuals with Parkinson’s and related neurological conditions.

Unlike large medical institutions that focus on the clinical side of PD, PASWFL takes a whole-person approach. They understand that Parkinson’s affects more than movement—it impacts speech, mental health, relationships, and independence. That’s why they provide over 25 weekly programs designed to help individuals live well with PD at every stage of the disease.
From wellness and fitness classes to speech therapy, cognitive workshops, support groups, and care partner education, every service PASWFL offers is free of charge—ensuring finances are never a barrier to care.

Why Support Matters
A diagnosis of any form of Parkinson’s can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida at www.paswfl.org or call 239-417-3465.
​
For more than 25 years, PASWFL has provided free, high-quality services and programs to individuals and families affected by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech and cognitive therapy
• Educational seminars
• Support for care partners
• Peer-led support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter
👉 Click here to become a member (it's free!)
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

What You Don’t Know Can Help You
When most people hear “Parkinson’s Disease,” they think of tremors and older adults. But PD is a complex neurological condition that affects people in many different ways—and at all stages of life. Understanding the truth about Parkinson’s can lead to better care, earlier diagnosis, and greater compassion for those living with it. Here are 10 important things everyone should know:

​1. Currently, PD's cause is unknown and there is no cure.
Currently, the cause of Parkinson's Disease (PD) remains unknown, and there is no cure. Despite this, various treatments and interventions can help manage symptoms and improve the quality of life for those affected. Organizations like the Parkinson’s Association of Southwest Florida provide essential programs and resources to support individuals living with PD.

2. The best way to manage PD is through the team approach.
The best way to manage Parkinson's Disease (PD) is through a multidisciplinary team approach, which combines the expertise of neurologists, physical therapists, occupational therapists, and speech therapists. This comprehensive care model addresses the diverse needs of PD patients, from medication management to physical activity and communication strategies. By working together, these specialists can create a personalized treatment plan that enhances the quality of life for individuals with PD.

3. No 2 people with PD have the exact same symptoms.
No two individuals with Parkinson's Disease (PD) experience the exact same symptoms, as the disease affects each person uniquely. Variations in symptoms can include differences in motor issues like tremors and rigidity, as well as non-motor symptoms such as sleep disturbances and cognitive changes. This individuality requires personalized treatment plans to effectively manage each person's specific needs and challenges.

4. People with PD can maintain a good quality of life.
People with Parkinson's Disease (PD) can maintain a good quality of life through effective symptom management, including medication, exercise, and therapeutic interventions. Supportive programs and resources, such as speech and movement therapies, play a crucial role in enhancing daily functioning and well-being. With the right care and support, individuals with PD can continue to lead fulfilling lives. Supportive programs and resources, such as those provided by organizations like the Parkinson’s Association of Southwest Florida, offer crucial assistance to enhance well-being and daily living.

5. There is no one-size-fits-all treatment approach when it comes to PD.
There is no one-size-fits-all treatment approach when it comes to Parkinson’s. Treatment options vary and can include medications or surgery. Personalized care is essential to effectively manage this multifaceted condition.

6. Exercise helps manage PD.
Exercise is vital to maintain balance, mobility, and activities of daily living. Regular exercise plays a crucial role in alleviating Parkinson's symptoms, aiding in the preservation of balance, mobility, and overall functionality. Engaging in physical activity not only helps manage the disease but also enhances quality of life by promoting independence in daily activities. Incorporating a tailored exercise regimen can be a cornerstone of Parkinson's management strategies. Supportive programs and resources, such as those provided by organizations like the Parkinson’s Association of Southwest Florida, offer crucial assistance to enhance well-being and daily living.

​7. There are a number of non-motor symptoms associated with PD.
Non-motor/movement symptoms including cognitive changes, mood disorders, fatigue, hallucinations and delusions, sexual problems, and sleep disorders can be more troublesome than movement symptoms. Supportive programs and resources, such as those provided by organizations like the Parkinson’s Association of Southwest Florida, offer crucial assistance to enhance well-being and daily living.

8. Facial masking is common with PD
A masked face (bradykinesia) is often associated with PD. People with Parkinson’s are not always angry or sad. Often, people with Parkinson’s look serious, depressed, or mad, because many times the disease causes facial masking, where muscles in the face are stiff or take a long time to move. Supportive programs and resources, such as those provided by organizations like the Parkinson’s Association of Southwest Florida, offer crucial assistance to enhance well-being and daily living.

9. Resting tremor may be a sign of PD
​Resting tremor, a hallmark symptom of Parkinson's disease, manifests as a subtle shaking of the finger, thumb, hand, chin, or foot when at rest. This tremor often becomes more noticeable as the disease progresses, affecting fine motor control and coordination. Understanding and recognizing resting tremor is pivotal in the diagnosis and management of Parkinson's disease.

10. You can live well with PD
​From diagnosis through the progression of the disease, we provide free programming to help person’s with PD, their care partners and loved ones to ensure healthier outcomes in our community such as  movement, educational classes, speech therapy, and so much more.

​Our services and programming are free to members and their families affected by PD and other neurological disorders, because we believe that everyone should have access to our programming and that finances should never be a barrier to our members.

Why Support Matters
A Parkinson’s diagnosis can feel overwhelming. But with the right support and resources, individuals can maintain independence, health, and hope.
👉 For help and local programs, visit www.paswfl.org or call 239-417-3465.

About PASWFL
For over 25 years, we’ve provided free, high-quality services to individuals and families affected by Parkinson’s in Southwest Florida. We offer:

• Weekly fitness, speech, and wellness classes
• Support for caregivers and care partners
• Educational seminars and local resources
• Over 25 programs each week—at no cost

Membership is free and open to anyone affected by Parkinson’s.


Take the First Step
Whether you’re newly diagnosed or just looking for support, we’re here for you.
👉 Sign up for our newsletter
👉 Become a member

If you or someone you love has been diagnosed with Parkinson’s disease, one of the most important—and often overlooked—questions is: Where is the best place to live with Parkinson’s? While there’s no one-size-fits-all answer, the right location can make a world of difference in maintaining independence, receiving quality care, and finding a supportive community.

Read on to discover the key factors that make a place ideal for living well with Parkinson’s—and why Southwest Florida might be at the top of the list.

What to Look for in a Parkinson’s-Friendly Community

When considering the best place to live with Parkinson’s disease, here are a few essential factors:
1. Access to Specialized Healthcare:
Neurologists who specialize in movement disorders and clinics with multidisciplinary care teams are vital. Look for communities with hospitals or care centers that offer physical therapy, speech therapy, and occupational therapy under one roof.
2. Parkinson’s-Specific Support Services:
Local organizations that understand Parkinson’s provide programs that go far beyond general senior services. These include wellness classes, support groups, education, and counseling for both individuals and care partners.
3. Climate and Lifestyle:
Many people with Parkinson’s find warmer climates more comfortable for mobility. Sunny, mild weather also encourages regular outdoor activity—an essential part of Parkinson’s management.
4. Community & Social Engagement:
Staying socially connected and mentally stimulated can improve emotional well-being. Places with active support groups, accessible transportation, and cultural or recreational activities can help individuals maintain independence and joy.
5. Affordability and Accessibility:
Consider housing options that are safe and easy to navigate, as well as proximity to care and services. A strong public transportation system or senior services that offer rides can also make a big difference.

​Why Southwest Florida Shines
Southwest Florida checks all the boxes. In addition to the sunny climate and active lifestyle, it’s also home to one of the most supportive communities for people living with Parkinson’s—thanks to the Parkinson’s Association of Southwest Florida (PASWFL).

Why Support Matters
A diagnosis of any form of Parkinson’s can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida at www.paswfl.org or call 239-417-3465.

For more than 25 years, PASWFL has provided free, high-quality services and programs to individuals and families affected by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech and cognitive therapy
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD

Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter
👉 Click here to become a member (it's free!)
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

​If you or a loved one is living with Parkinson’s disease and taking Levodopa/Carbidopa, you may have noticed that your meals can impact how well your medication works. While this medication is one of the most effective treatments for managing motor symptoms, the foods you eat—and when you eat them—can affect how it’s absorbed in your body. The good news? With a few simple dietary strategies, you can make the most of your treatment and feel more in control. 

Timing Is Everything
Levodopa/Carbidopa works best when taken on an empty stomach. That’s because protein-rich foods (like meat, eggs, dairy, and legumes) can compete with the medication for absorption in the small intestine. This competition can lead to a delayed or reduced effect of the medication, making symptoms more difficult to manage.

To avoid this, many people find it helpful to take Levodopa/Carbidopa 30 to 60 minutes before meals, or at least 1 to 2 hours after eating. Always follow your doctor’s specific instructions, but being mindful of timing can dramatically improve symptom control.

Protein: Balance, Don’t Eliminate
You still need protein—it’s essential for muscle strength and overall health. Instead of cutting it out completely, consider spreading your protein intake throughout the day or reserving it for the evening, when medication timing may be less critical. This approach is often called a protein redistribution diet, and your healthcare team or dietitian can help tailor it to your needs.

Nutrients That Support Parkinson’s Health
In addition to adjusting protein intake, focus on nutrient-dense foods that support brain and body function:

• Fruits and vegetables: Rich in antioxidants that may reduce oxidative stress.
• Whole grains: Provide fiber to help manage constipation—a common PD symptom.
• Healthy fats: From sources like olive oil, nuts, and avocados, which support brain health.
• Fluids: Staying hydrated helps medications work effectively and combats common symptoms like low blood pressure.

Why Support Matters
A diagnosis of any form of Parkinson’s can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida at www.paswfl.org or call 239-417-3465.

For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families affected by Parkinson’s disease in Southwest Florida.
Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech and cognitive therapy
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter
👉 Click here to become a member (it's free!)

Save the Date
The Parkinson’s Association of Southwest Florida (PASWFL) is thrilled to announce its signature annual fundraising event, A Step Forward: Overcoming Obstacles, set for Friday, March 20, 2026, at the luxurious LaPlaya Beach & Golf Resort in Naples. This empowering luncheon will feature an extraordinary speaker—Staff Sergeant (Ret.) Johnny “Joey” Jones, a decorated Marine veteran, FOX News contributor, and national advocate for veterans and resilience.

Joey Jones brings a story of unimaginable adversity transformed into purpose. After surviving a life-changing IED explosion in Afghanistan that resulted in the loss of both legs, Joey dedicated his life to supporting other wounded veterans and inspiring Americans with his message of strength, humor, and grit. His keynote will touch hearts and uplift spirits as he shares how personal tragedy became a powerful platform for service, leadership, and hope.

Guests will also hear firsthand stories of perseverance from PASWFL members who live daily with Parkinson’s Disease (PD), making the event not only a fundraiser but a deeply moving celebration of courage in the face of life’s toughest battles.

​This memorable afternoon includes:

• A gourmet three-course lunch at the LaPlaya Beach & Golf Resort in Naples, Florida
• Keynote presentation by Joey Jones
• Special member stories from individuals living with Parkinson’s
• Opportunity to support a powerful mission

​All proceeds directly benefit PASWFL’s work—providing more than 20 free weekly programs and support groups that improve the lives of those living with Parkinson’s and their care partners across Collier and southern Lee Counties.

Event Details:
When: Friday, March 20, 2026 – 11:30 a.m.
Where: LaPlaya Beach & Golf Resort, 9891 Gulf Shore Dr, Naples, FL
Register at: https://parkinsonassociationswfl.org/a-step-forward-overcoming-obstacles-lunch.html
 
REGISTRATION OPENS 10/1/25
Registration Options:

• General Admission ($350): Includes full luncheon, keynote presentation, and inspirational PASWFL stories. ($100 tax-deductible)
• VIP Admission ($500): Includes all general benefits plus a private pre-event champagne reception with Joey Jones, hors d’oeuvres, photo opportunity, and exclusive early remarks. ($200 tax-deductible)

VIP Experience Highlight: Guests will connect more intimately with Joey Jones and fellow PASWFL supporters in a relaxed pre-lunch gathering. It's a rare opportunity to meet a national hero while supporting a life-changing cause.

August is National Make-A-Will Month, a timely reminder of the importance of having a legal will in place—regardless of your age or financial situation. Creating or updating your will ensures your loved ones are cared for, your wishes are respected, and your legacy lives on in meaningful ways. It’s also an opportunity to reflect on the causes close to your heart and how you can support them for generations to come. Learn how and why it’s important.

If you’re one of the many Americans who hasn’t yet created a will, you’re not alone. According to Caring.com’s 2024 survey, nearly 66% of adults don’t have a will. For many, it’s something that’s easy to put off. But the truth is, having a will is a powerful act of love and care. It brings peace of mind, avoids confusion or disputes among family members, and gives you the ability to make decisions about how your assets should be used.

One of the most impactful choices you can make when writing your will is to include a charitable bequest. Designating a nonprofit organization as a beneficiary allows you to continue supporting the causes you care about, even after you’re gone. This simple, thoughtful gesture can leave a lasting legacy and make a real difference in your community.

At the Parkinson’s Association of Southwest Florida (PASWFL), we’re grateful to those who choose to support our mission in this special way. A bequest or naming PASWFL as a beneficiary of your life insurance policy or retirement account helps ensure we can continue to provide free, life-enhancing programs and services for individuals and families impacted by Parkinson’s Disease. Your generosity supports wellness classes, support groups, counseling, education, and community outreach—helping thousands of people in Collier and southern Lee Counties live well with PD.

Making a planned gift is easier than you might think.
Whether you're working with an attorney to draft your will or using a reputable online tool, you can simply include language that designates the Parkinson’s Association of Southwest Florida as a beneficiary. You can give a specific dollar amount, a percentage of your estate, or a remainder of your assets after other obligations are met. Naming PASWFL as a beneficiary of a life insurance policy or IRA is also a straightforward process that can have lasting impact.

If you already have a will, Make-A-Will Month is also a great time to review it. Life changes—marriages, births, moves, or new priorities—may mean it’s time for an update. Including a nonprofit like PASWFL in your estate plans can align your values with your legacy.

We’re here to answer any questions you may have about planned giving and how your support can change lives. For more information, please contact us at 239-417-3465 or visit www.paswfl.org.

By making your will this August—and considering a charitable gift—you’re not only protecting your future, you’re investing in a better one for others.

Have you or a loved one noticed a persistent tremor, muscle stiffness, or slowed movement? Maybe it's just aging, or maybe it's something more. If you’ve ever asked, “How is Parkinson’s diagnosed?” — you’re not alone. Many people experiencing early symptoms are unsure of what steps to take next. Understanding the process can help you feel more in control and prepared to take action.
Here’s what you need to know.

Understanding the Complexity
Parkinson’s disease (PD) is a progressive neurological disorder that affects movement, balance, and coordination. But diagnosing it isn’t always straightforward. There is no single blood test, brain scan, or biomarker that can definitively confirm PD. Instead, diagnosis relies on a combination of medical history, symptom evaluation, and physical and neurological exams.

Doctors—typically neurologists—look for specific motor symptoms, such as:

• Resting tremors
• Muscle rigidity
• Bradykinesia (slowness of movement)
• Postural instability

Because symptoms develop gradually and may be mistaken for other conditions, early diagnosis can be challenging. Doctors often observe a person’s condition over time before making a formal diagnosis.

​Ruling Out Other Causes
Before confirming Parkinson’s, your doctor will want to rule out other possibilities such as essential tremor, side effects from medications, or other types of parkinsonism caused by different neurological conditions. Brain imaging like an MRI or a dopamine transporter (DAT) scan may be used—not to diagnose Parkinson’s directly—but to rule out other conditions and support clinical observations.

​When to Seek a Specialist
If you or a loved one shows signs of PD, it’s best to consult a movement disorder specialist—a neurologist with advanced training in Parkinson’s and related disorders. They can provide a more accurate diagnosis and create a personalized care plan that addresses both motor and non-motor symptoms, such as sleep issues, anxiety, or speech changes.

Why Support Matters
A diagnosis of any form of Parkinson’s can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida at www.paswfl.org or call 239-417-3465.

For more than 25 years, PASWFL has provided free, high-quality services and programs to individuals and families affected by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech and cognitive therapy
• Educational seminars
• Support for care partners
• Support groups

​There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter
👉 Click here to become a member (it's free!)
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

It often starts with something small—maybe a slight tremor in a hand or subtle changes in handwriting. But beneath the surface, Parkinson’s disease is a complex neurological condition that affects the brain in ways many people don’t fully understand. Whether you or someone you love is newly diagnosed or you're just curious, understanding how Parkinson’s affects the brain can be the first step toward living well with the disease. So how exactly does this progressive condition change the brain—and what can be done about it?

Parkinson’s disease (PD) primarily targets a specific area of the brain known as the substantia nigra, where nerve cells produce dopamine, a chemical that helps control movement. As these dopamine-producing neurons gradually die off, the brain’s ability to send clear signals for smooth, purposeful movement is disrupted. That’s why many of the most recognized symptoms—tremors, stiffness, slow movement (bradykinesia), and balance problems—are all motor-related.

​But Parkinson’s doesn’t stop at movement. It also affects non-motor functions due to the brain’s widespread use of dopamine and other neurotransmitters. People with PD may experience mood changes, sleep disorders, memory issues, and even speech or swallowing difficulties. In some cases, cognitive decline can progress over time, leading to more complex challenges that require both medical and emotional support.

Scientists are still working to fully understand why dopamine neurons die in people with Parkinson’s, but both genetic and environmental factors appear to play a role. While there is currently no cure, early diagnosis, supportive therapies, and staying engaged in wellness activities can dramatically improve quality of life.
​
That’s where Parkinson’s Association of Southwest Florida (PASWFL) comes in.

For more resources, support groups, or to speak with someone who understands, please visit www.parkinsonassociationswfl.org or call 239-417-3465.

For more than 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech exercise
• Educational seminars
• Support for care partners
• Support groups for persons with PD

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well with PD
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter
👉 Click here to become a member (it's free!)
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

Micrographia and Parkinson’s Disease – When Handwriting Tells a Story
One of the lesser-known but deeply personal symptoms of Parkinson’s disease is micrographia—a condition that causes handwriting to become abnormally small, cramped, and difficult to read. For many people living with Parkinson’s, the act of writing becomes frustrating and even emotional, especially when once-clear penmanship begins to shrink and fade.

But what causes micrographia, and what can be done to help manage it?

​What Is Micrographia?
Micrographia is a neurological symptom associated with Parkinson’s disease (PD) and other movement disorders. It literally means “small writing.” People experiencing micrographia often notice that their handwriting becomes progressively smaller and more crowded as they write across a page.
This isn’t simply a change in penmanship—it’s a reflection of how Parkinson’s affects the fine motor control and coordination needed for writing.

Why Does It Happen?
In Parkinson’s, the brain produces less dopamine, the chemical responsible for sending signals that control movement. As dopamine levels decline, tasks that require precise, repetitive movements—like writing—become more difficult.
​
Muscles may not respond as quickly or accurately, and the brain’s “motor planning” can break down. As a result, handwriting shrinks, becomes illegible, or trails off entirely.

Signs of Micrographia
Common signs include:

• Letters become smaller and closer together over the course of a sentence.
• Writing may begin at a normal size and then gradually shrink.
• Text may slant, be shaky, or become unreadable.
• The effort required to write increases, causing fatigue or frustration.

​Micrographia may appear early in the course of Parkinson’s and can sometimes even be a clue in diagnosis.

Can Micrographia Be Treated?
While there is no cure for micrographia, it can be managed. Occupational and physical therapists often use targeted writing exercises to improve legibility and hand control.
​
Speech-language pathologists who specialize in Parkinson’s (such as those trained in the LSVT BIG and LSVT LOUD programs) may also help retrain the brain and body to perform larger, more purposeful movements—including handwriting.

Technologies such as tablets or voice-to-text software can also be helpful, especially when fine motor skills decline.

Support Through PASWFL
A diagnosis of any form of Parkinson’s can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida at www.pawfl.org or call 239-417-3465.
For more than 25 years, PASWFL has provided free, high-quality services and programs to individuals and families affected by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.
Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech and cognitive therapy
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.
Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter
👉 Click here to become a member (it's free!)
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

When news broke that rock legend Ozzy Osbourne had been living with PRKN2, a rare form of Parkinson’s disease, many people were left wondering: What is PRKN2? How does it differ from typical Parkinson’s disease? And what does it mean for those diagnosed with it or supporting someone who is? PRKN2 may sound like a scientific mystery, but understanding it could make all the difference for families navigating the complexities of Parkinson’s. Whether you’ve recently received a diagnosis or are simply trying to learn more, this post will guide you through what PRKN2 is, who it affects, and where you can find trusted support right here in Southwest Florida.

What Is PRKN2?
PRKN2, often referred to as Parkin-type Parkinsonism, is a genetic form of Parkinson’s disease caused by mutations in the PRKN gene. This gene provides instructions for producing a protein called parkin, which plays a critical role in helping cells eliminate damaged mitochondria—the energy-producing parts of a cell. When the PRKN gene doesn’t function properly, nerve cells in the brain that control movement begin to deteriorate, leading to symptoms commonly associated with Parkinson’s disease.

PRKN2 is typically categorized as a type of early-onset Parkinson’s, meaning it often appears before the age of 50 and sometimes as early as the teenage years. It’s one of the most common genetic causes of Parkinsonism, but still relatively rare in the broader Parkinson’s population. People with PRKN2 may experience slower disease progression and a better response to medication, but they still face many of the same physical and emotional challenges as others living with Parkinson’s.

How Is PRKN2 Different?
Unlike more common idiopathic (non-genetic) Parkinson’s, PRKN2:

• Often begins earlier in life
• Progresses more slowly
• May include fewer cognitive symptoms
• Responds better to Levodopa, a common PD medication
• Typically runs in families, though it can appear sporadically

Genetic testing can help identify PRKN2, though many people are diagnosed based on symptoms and age of onset. Knowing you or a loved one has a genetic form of Parkinson’s can inform care strategies, treatment planning, and support options.

Why Support Matters
A diagnosis of any form of Parkinson’s can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida at www.parkinsonassociationswfl.org or call 239-417-3465.

For more than 25 years, PASWFL has provided free, high-quality services and programs to individuals and families affected by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech and cognitive therapy
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter
👉 Click here to become a member (it's free!)
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

Living Well with Parkinson’s: Inspiring Stories from Familiar Faces
A diagnosis of Parkinson’s disease (PD) can feel life-changing—but it doesn’t have to mean the end of a full, meaningful life. Many well-known individuals have not only continued to pursue their passions but have become vocal advocates, educators, and examples of resilience. Their stories remind us that with the right support, medical care, and community, it is possible to live well with PD.
Here are just a few public figures who continue to show the world what it looks like to live well with Parkinson’s:

Michael J. Fox
Diagnosed in 1991 at just 29, the beloved Back to the Future star has been a powerful voice in Parkinson’s advocacy. Through his Michael J. Fox Foundation, he has helped raise over a billion dollars for research. While he has stepped back from acting due to progressing symptoms, his transparency, humor, and tireless work continue to inspire.

Alan Alda
The legendary MASH* actor revealed his Parkinson’s diagnosis in 2015 and has since used his platform to promote understanding of the disease. He continues to work in television, podcasting, and public speaking, all while emphasizing the importance of staying active and mentally engaged.

Brett Favre
The Hall of Fame NFL quarterback publicly shared his Parkinson’s diagnosis in 2024. Known for his grit on the football field, Favre now brings that same determination to raising awareness and encouraging others to talk about neurological conditions openly and honestly.

Davis Phinney
An Olympic medalist in cycling, Davis was diagnosed with Parkinson’s at age 40. He channeled his energy into founding the Davis Phinney Foundation, which focuses on helping people with Parkinson’s live better today. His personal journey and professional mission have helped thousands navigate life with PD.

Victoria Dillard
Best known for her roles in Ali and The Best Man, Dillard was diagnosed in 2006. She has become a passionate voice in the Parkinson’s community, highlighting the experiences of women and people of color living with the disease.

Glenn Tipton
The guitarist for the heavy metal band Judas Priest revealed his diagnosis in 2008. While he stepped away from full-time touring, Tipton still records music and occasionally joins the band on stage, inspiring fans with his strength and commitment to his craft.

Neil Diamond
Diagnosed in 2018, the legendary singer initially struggled to accept the news. But as he shared in a 2023 interview, he now lives with a greater sense of peace and purpose. Though retired from performing, Diamond continues to write and connect with fans, showing that life and creativity can flourish even after diagnosis.

Linda Ronstadt
A music icon with countless accolades, Ronstadt retired from singing in 2011 due to Parkinson’s. Since then, she’s used her voice in new ways—sharing her story, supporting research, and inspiring others through interviews and documentaries.

Rev. Jesse Jackson
A key figure in civil rights history, Jackson announced his diagnosis in 2017. Despite mobility challenges, he continues to make public appearances and advocate for social justice—demonstrating the power of purpose, even in the face of adversity.

Leonard Maltin
​The beloved film critic and historian shared his diagnosis in 2015. He continues to review films, publish books, and speak at events, embodying the idea that Parkinson’s doesn’t have to stop the passions that make life fulfilling.

These public figures remind us that Parkinson’s is only part of the story—not the whole narrative. With courage, support, and adaptation, it’s possible to live well with PD.

For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida at www.parkinsonassociationswfl.org or call 239-417-3465.
For more than 25 years, PASWFL has provided free, high-quality services and programs to individuals and families affected by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.
Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech and cognitive therapy
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.
Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter
👉 Click here to become a member (it's free!)
To learn more, visit www.paswfl.org and discover the power of support, education, and community.
Sure! Here's a Facebook post and an accompanying 8-card carousel based on the PRKN2 blog post.

When rock icon Ozzy Osbourne passed away on July 22, 2025, at the age of 76, fans worldwide asked two poignant questions: What stage of Parkinson’s did he have? Did Parkinson’s cause his death?  The answers are a mixture of compassion, facts, and hope—and can offer comfort to anyone facing this journey.

Ozzy was diagnosed with Parkinson’s disease in February 2019 and publicly revealed his condition in January 2020. He specifically lived with a form known as Parkin-type Parkinsonism (PRKN 2)—a genetic variation often beginning earlier in life and progressing more slowly than typical Parkinson’s.

By July 2025, he faced advanced symptoms that affected his ability to walk or stand, and he performed his final concert seated during Black Sabbath’s “Back to the Beginning” farewell show on July 5.

While Parkinson’s significantly shaped Ozzy’s later years, it was not listed as the cause of his death. He had also faced other health complications, including spinal injuries and pneumonia. His family confirmed he died surrounded by loved ones, emphasizing he wasn't defined or defeated by Parkinson’s itself.
Ozzy’s battle with Parkinson’s spanned roughly 6 years—from diagnosis to farewell—but his career and spirit remained indomitable. His openness helped millions better understand Parkinson’s, and his final performance is a powerful reminder: life can be full, purposeful, and inspiring even with progressive illness.

Ozzy Osbourne’s legacy extends far beyond music—his farewell concert with Black Sabbath in Birmingham raised an astounding $190 million for charity, as reported by People.com. This milestone event, which marked the first time the band had played together in two decades, directed proceeds to impactful causes including Cure Parkinson’s, Birmingham Children’s Hospital, and Acorn Children’s Hospice. In addition, Ozzy committed to donating 10% of all remaining tour merchandise sales to the Michael J. Fox Foundation, further supporting research and innovation in the fight against Parkinson’s disease.

What Does Ozzy’s Journey Teach Us?

• Parkinson’s progression varies widely—some live decades with manageable symptoms.
• Genetic forms like PRKN 2 may progress more slowly but still challenge daily life.
• Parkinson’s isn't always the direct cause of death, especially when accompanied by other health issues.
• Honest conversations and community support play a crucial role in living well.

​Ozzy Osbourne's legacy lies not just in his music, but in the dignity and courage he brought to his final years. His story shows that even with a progressive disease, life can still shine with passion, purpose, and connection.

For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida at www.parkinsonassociationswfl.org or call 239-417-3465.
For more than 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.
Each week, PASWFL offers more than 25 free programs and support groups, including:
• Wellness and fitness classes
• Speech exercise
• Educational seminars
• Support for care partners
• Support groups for persons with PD
There are no fees to become a member, and PASWFL welcomes anyone touched by PD.
Take the First Step Toward Living Well with PD
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter
👉 Click here to become a member (it's free!)
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

It often begins quietly—perhaps a subtle tremor in your hand, a stiffness in your muscles, or a slight change in your walking pace. These early signs can be easy to overlook or dismiss as aging or fatigue. But for many, these seemingly minor symptoms are the first indicators of Parkinson’s disease, a progressive neurological condition that affects movement, balance, and more over time. Let's look at these symptoms further...

So how does Parkinson’s disease actually start?
Parkinson’s disease (PD) begins deep within the brain, in an area called the substantia nigra. This region is responsible for producing dopamine—a chemical messenger that helps control smooth and coordinated muscle movements. In Parkinson’s, the dopamine-producing cells gradually die off. As dopamine levels decline, the brain struggles to send proper movement signals to the body.

Researchers still don’t fully understand why these dopamine-producing neurons die. However, many believe a combination of genetic and environmental factors may play a role. A small percentage of PD cases are hereditary, caused by genetic mutations passed down in families. In most cases, however, Parkinson’s is idiopathic, meaning there is no known cause.

Environmental exposures—such as pesticides, herbicides, and certain toxins—have been linked to a higher risk of developing Parkinson’s. Head injuries and chronic stress may also contribute in some individuals. Still, there is no single cause, and likely several factors work together to trigger the disease.

The symptoms of Parkinson’s usually develop slowly over the years.
​Early signs may include:

• A slight tremor in fingers, hands, or chin
• Small or cramped handwriting
• Loss of smell
• Slower movement
• Stiffness or rigidity in the arms and legs
• Changes in posture or balance
• A softer voice or masked facial expression

Because these early signs can mimic other conditions—or even go unnoticed—it’s important to consult a neurologist if you or a loved one experiences persistent movement changes. An early diagnosis allows for early intervention, symptom management, and improved quality of life.

While there is currently no cure for Parkinson’s, support, education, and community connection can make a tremendous difference. And that’s where the Parkinson’s Association of Southwest Florida (PASWFL) comes in.

For more resources, support groups, or to speak with someone who understands, please visit www.parkinsonassociationswfl.org or call 239-417-3465.
For more than 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech exercise
• Educational seminars
• Support for care partners
• Support groups for persons with PD

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well with PD
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter
👉 Click here to become a member (it's free!)
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

Understanding What May Trigger This Complex Condition
If you or someone you love has recently been diagnosed with Parkinson’s disease, one of the first questions that may come to mind is, “What caused this?” Parkinson’s can feel mysterious and even frightening, especially because symptoms often develop slowly and seem to appear without warning.

While researchers haven’t found a single cause, ongoing studies continue to uncover key factors that increase a person’s risk. If you’re searching for clarity, hope, or guidance, read on—understanding the possible causes of Parkinson’s is an important step toward empowerment and effective care.

The Role of Brain Chemistry
At the heart of Parkinson’s disease is a loss of dopamine-producing nerve cells in a part of the brain called the substantia nigra. Dopamine is a vital chemical messenger that helps regulate movement, mood, and more. As these cells gradually deteriorate, the brain struggles to communicate with the muscles, leading to tremors, stiffness, and other motor-related symptoms.
But what causes these cells to die off in the first place? The answer is complex and likely involves a combination of genetic and environmental factors.

Genetic Risk Factors
While Parkinson’s disease is not usually inherited, about 10–15% of cases have a genetic component. Certain gene mutations—such as LRRK2, PARK7, PINK1, PRKN, and SNCA—have been linked to familial forms of Parkinson’s. If you have a close relative with PD, your risk may be slightly higher, but it’s important to remember that having a genetic mutation does not mean you will definitely develop the disease.

Environmental Triggers
Researchers have found that long-term exposure to certain environmental toxins may increase the risk of Parkinson’s. These include:

• Pesticides: People with prolonged exposure to herbicides or insecticides may have a higher risk, particularly those who work in agriculture.
• Heavy metals: Prolonged exposure to metals like manganese and lead may contribute to the development of PD.
• Solvents: Some industrial chemicals, like trichloroethylene (TCE), are also under investigation as potential contributors.

Age and Gender
The risk of Parkinson’s increases with age, most commonly affecting individuals over 60. While it can occur in younger adults (known as Young-Onset Parkinson’s), aging remains the most significant risk factor. Men are also statistically more likely to develop Parkinson’s than women, though the reasons for this gender difference are still unclear.

Other Contributing Factors
Head trauma, chronic inflammation, and even lifestyle factors like diet and stress may influence Parkinson’s risk. More research is being done to determine how these elements interact with each individual’s genetic makeup and environment to affect overall susceptibility.

You Are Not Alone
For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida at www.parkinsonassociationswfl.org or call 239-417-3465.
For more than 25 years, PASWFL has provided free, high-quality services and programs to individuals and families affected by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech exercise
  
• Educational seminars
  
• Support for care partners
  
• Support groups for persons with PD

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter
👉 Click here to become a member (it's free!)
To learn more, visit www.parkinsonassociationswfl.org and discover the power of support, education, and community.

Recognizing Look-Alike Conditions That May Cause Similar Symptoms
When someone begins experiencing tremors, stiffness, balance issues, or slowness of movement, it’s natural to wonder: Is this Parkinson’s disease? While these hallmark symptoms are commonly associated with Parkinson’s, they are not exclusive to it. Several other conditions can closely mimic Parkinson’s disease (PD), leading to confusion, delayed treatment, or misdiagnosis.

Understanding these “look-alike” conditions is critical for receiving the right diagnosis and, in many cases, avoiding unnecessary worry or pursuing more effective treatment strategies. We cover those conditions in this post.

What Can Mimic Parkinson’s Disease?
Below are some of the most common medical conditions that may appear similar to Parkinson’s:

1. Essential Tremor (ET)
Essential tremor is one of the most common movement disorders and is frequently confused with Parkinson’s disease, especially in its early stages. Unlike Parkinson’s tremors—which typically occur when the body is at rest—ET causes tremors during movement, such as when writing, drinking from a glass, or holding utensils.
​
ET usually doesn’t include the muscle stiffness or slowness of movement that defines PD. Though not life-threatening, it can affect quality of life and may require treatment with medications or procedures like deep brain stimulation.

2. Drug-Induced Parkinsonism
Some medications, particularly antipsychotics and drugs used to treat nausea, can interfere with dopamine signaling in the brain and result in Parkinson-like symptoms. This condition is called drug-induced parkinsonism, and it can mimic nearly all motor symptoms of PD—such as tremors, rigidity, and bradykinesia (slowness).
​
The good news is that symptoms often improve or resolve once the offending medication is stopped. Accurate medication history is essential in identifying this condition.

3. Normal Pressure Hydrocephalus (NPH)
NPH occurs when excess cerebrospinal fluid accumulates in the brain’s ventricles. This condition can cause a trio of symptoms:

• Walking difficulties
• Memory issues
• Urinary incontinence

These symptoms can be mistaken for Parkinson’s or even Alzheimer’s disease. Unlike Parkinson’s, however, NPH may be reversible with proper diagnosis and surgical intervention, such as a shunt to drain the excess fluid.

4. Atypical Parkinsonian Disorders
There are several disorders that look similar to Parkinson’s but are technically different conditions. These include:

• Multiple System Atrophy (MSA)
• Progressive Supranuclear Palsy (PSP)
• Corticobasal Degeneration (CBD)

Collectively referred to as atypical parkinsonisms, these diseases often progress more rapidly and do not respond well to standard Parkinson’s medications. Early referral to a movement disorder specialist can help differentiate these complex conditions.

​5. Stroke and Other Brain Lesions
Sudden changes in movement or balance may result from a stroke, brain tumor, or other structural issues in the brain. These can sometimes mimic the symptoms of Parkinson’s disease, especially when they affect the parts of the brain that control movement. However, strokes tend to cause more sudden and localized changes, often paired with additional neurological symptoms like speech difficulties or vision loss.

When to Seek a Specialist
Because so many conditions can mimic Parkinson’s, an accurate diagnosis often requires consultation with a neurologist or movement disorder specialist. They may order brain imaging, review your medication history, and conduct physical evaluations to better understand the underlying cause.
Getting the correct diagnosis means getting the right treatment—and peace of mind. If you or a loved one is experiencing symptoms that resemble Parkinson’s, don’t delay seeking professional care. Early intervention can make all the difference.

​For more resources, support groups, or to speak with someone who understands, please visit www.parkinsonassociationswfl.org or call 239-417-3465.
​
For more than 25 years, PASWFL has provided free, high-quality services and programs to individuals and families affected by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech exercise
• Educational seminars
• Support for care partners
• Support groups for persons with PD

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
Click here to sign up for the PASWFL newsletter
Click here to become a member (it's free!)
To learn more, visit www.parkinsonassociationswfl.org and discover the power of support, education, and community.

 Connecting Resources, Building Community for People Living with Parkinson’s
​
On Tuesday, November 18, 2025, the Parkinson’s Association of Southwest Florida (PASWFL) invites you to join us for our annual Mingle & Share event—an uplifting, community-centered gathering focused on helping individuals and families affected by Parkinson’s disease live well. The event will take place from 10:00 am to Noon at the beautiful Hilton Naples. Registration is $25 and open to the public.

Living with Parkinson’s can present unique challenges, but it doesn’t mean you have to navigate them alone. That’s the driving purpose behind Mingle & Share. This event was created to bring together people with Parkinson’s, care partners, healthcare professionals, and service providers to build connections, offer support, and share valuable tools that can improve quality of life

At the heart of this event is the opportunity to meet one-on-one with local professionals and organizations that offer products, therapies, services, and wellness programs tailored to the Parkinson’s community. Whether you’re interested in learning more about physical and occupational therapy, speech and movement programs, assistive technology, in-home care, or nutrition and wellness options, Mingle & Share offers a unique chance to explore your options in a warm and welcoming setting.

Attendees will also get to mingle with other individuals and families who understand the day-to-day realities of living with Parkinson’s. These moments of shared experience and camaraderie often lead to lasting friendships and new perspectives on how to face the challenges of Parkinson’s with strength and optimism.
​
For those new to the Parkinson’s Association of Southwest Florida, Mingle & Share is also a wonderful opportunity to learn more about the free programs and services offered by the organization year-round—including support groups, exercise and speech classes, caregiver resources, educational presentations, and social events. Everything PASWFL does is rooted in its mission to help people with Parkinson’s and their care partners live well, with no cost barrier to participation.

​Why Attend?

• Discover local resources and services tailored for the Parkinson’s community
• Meet face-to-face with healthcare professionals and wellness experts
• Explore tools that support independence, mobility, and emotional wellness
• Connect with others who understand the journey of living with Parkinson’s
• Learn more about the free programs PASWFL offers across Southwest Florida

Event Details: Registration Opens Friday, August 1, 2025

• Date: Tuesday, November 18, 2025
• Time: 10:00 am – Noon
• Location: Hilton Naples, 5111 Tamiami Trail N, Naples, FL 34103
• Cost: $25 Registration includes:
  • Refreshments
  • A beverage coupon for each participant
  • Cash bar
  • Valet Parking Available

RSVP by calling (239) 417-3465 or visiting www.PASWFL.org
Whether you're living with Parkinson’s, caring for a loved one, or simply want to learn more about how to support someone in your life, this event is for you. Join us at Mingle & Share and take a powerful step toward greater connection, better resources, and a stronger community.

The Parkinson’s Association of Southwest Florida (PASWFL) recently hosted its Annual Living Well with PD Education Symposium, bringing together some of Florida’s top Parkinson’s Disease (PD) specialists to share the latest insights into research, diagnosis, and management strategies for living well with PD.
As the second most common neurodegenerative disease in the U.S., Parkinson’s Disease affects nearly 1 million Americans, and the number is expected to grow. While there is currently no cure, the good news is that both pharmacologic and non-pharmacologic interventions can dramatically improve the quality of life for people living with PD—and may even slow disease progression.

The 5 Cardinal Features of Parkinson’s Disease:
Dr. Haq outlined the five cardinal features of PD, dividing them into motor and non-motor categories:

Motor Features
1. Rest Tremor – Usually begins on one side of the body, often in the hand, and may improve with voluntary movement.
2. Bradykinesia – Slowed movements, reduced facial expression, shorter stride length, and decreased arm swing.
3. Postural Instability – Abnormal gait, stooped posture, and a tendency to shuffle or fall backward (retropulsion).

Non-Motor Features 
1. Fatigue and Chronic Pain 

• ​Persistent tiredness not relieved by rest or sleep, mental fatigue, muscle or joint pain.
• Lack of motivation or mental energy (mental fatigue)
• Generalized muscle or joint pain
• Burning, aching, or stabbing sensations
• Pain that shifts locations or increases with movement
• Reduced ability to perform daily tasks due to fatigue

2. Low Blood Pressure (Orthostatic Hypotension)

• Dizziness or lightheadedness when standing up
• Feeling faint or episodes of fainting
• Blurred or tunnel vision
• Weakness or fatigue after changing positions
• ​Nausea or a “floating” sensation upon standing

3. Restless Legs Syndrome (RLS)

• Uncomfortable sensations in the legs (tingling, crawling, itching, burning)
• ​Strong urge to move the legs, especially when at rest
• Symptoms that worsen in the evening or at night
• ​Temporary relief after walking or stretching
• Difficulty falling or staying asleep

  4. Bladder and Bowel Issues
   Bladder-related symptoms:

• Sudden, urgent need to urinate (urinary urgency)
• Frequent urination, especially at night (nocturia)
• ​Leakage or incontinence
• Difficulty starting urination or feeling of incomplete emptying

   Bowel-related symptoms:

• Constipation (fewer than three bowel movements per week)
• ​Hard, dry stools
• Straining during bowel movements
• ​Feeling of incomplete evacuation
• Bloating or abdominal discomfort

  5. Sleep Disturbances

• Insomnia or difficulty staying asleep
• Excessive daytime sleepiness or sudden sleep attacks
• ​Vivid dreams or nightmares
• Acting out dreams (REM sleep behavior disorder)
• Restlessness or frequent movement during sleep
• ​Waking frequently to use the bathroom

 6. Difficulty Swallowing or Managing SalivaSwallowing difficulties (dysphagia):

• Coughing or choking while eating or drinking
• Sensation of food getting stuck in the throat
• Difficulty chewing or managing certain textures
• Slow eating or avoiding meals

   Saliva management (sialorrhea):

• Drooling, especially when not speaking or eating
• Wet pillow in the morning
• Lip or chin irritation due to constant moisture
• Frequent throat clearing

  7. Changes in Eating Patterns and Excessive SweatingEating pattern changes:

• Reduced appetite or lack of interest in food
• Early fullness after small meals (early satiety)
• Weight loss without trying
• Difficulty with utensils or preparing food
• Altered sense of taste or smell

   Excessive sweating (hyperhidrosis):

• Sweating more than normal with little exertion
• Facial or upper body sweating
• Night sweats
• Temperature sensitivity
• Social discomfort due to visible perspiration

Recognizing these symptoms and addressing them early through a combination of medical treatment, physical therapy, and wellness programs can lead to better long-term outcomes.

How PASWFL Supports Living Well with PDFor over twenty-five years, the Parkinson’s Association of Southwest Florida has been empowering individuals and families through education, enrichment, and engagement.

Every week, PASWFL offers over 25 free programs and support groups for people living with Parkinson’s and their care partners. These include:

• Parkinson-specific exercise classes
• Voice therapy
• Educational workshops
• Support groups for both patients and caregivers

There are no fees associated with becoming a member, and everyone affected by PD in Southwest Florida is welcome to join.

​To learn more and receive updates:
Click here to sign up for PASWFL’s newsletter
Membership is free:
Click here to join PASWFL

Parkinson’s may change your path—but with the right knowledge and support, you can still live well every step of the way. 

​

What is Impulse Control Disorder? 
​Impulse Control Disorder refers to a group of behavioral conditions where a person struggles to resist urges or impulses that may be harmful to themselves or others. In the context of Parkinson’s disease, ICD is most often a side effect of certain medications used to treat motor symptoms—particularly dopamine agonists.
People with ICD may engage in behaviors like:

•    Compulsive gambling
•    ​Hypersexuality
•    Excessive shopping or spending
• ​   Binge eating
•    Hoarding or collecting

These behaviors can start subtly and become more intense over time. What makes ICD particularly challenging is that individuals may not realize these actions are linked to their Parkinson’s medication—or that the behavior is even a problem until it begins affecting finances, relationships, or emotional well-being.

What Causes ICD in Parkinson’s? 
​ICD in PD is most commonly linked to dopaminergic medications, especially dopamine agonists like pramipexole (Mirapex) or ropinirole (Requip). These medications help with movement symptoms by stimulating dopamine receptors in the brain, but they can also affect the brain’s reward system. This can increase the drive for pleasure-seeking behaviors, leading to problems with self-control.

Not every person with Parkinson’s who takes these medications will experience ICD. However, certain risk factors can increase the likelihood, including:

•   A personal or family history of addiction or impulsivity
•   Younger age at Parkinson’s onset
•   Depression or mood disorders
•   Higher doses of dopamine agonists

Recognizing the SignsSpotting ICD early is key. Loved ones may notice changes before the person affected does, such as:

• Secretive behavior or hiding purchases
• Unexplained financial strain
• Spending more time online or on phones for gambling or shopping
• Mood changes when asked about certain behaviors

If you or a loved one starts showing signs of impulsive or compulsive behavior, don’t ignore it—talk to your neurologist or Parkinson’s care team.

Treatment and Support
The good news is that ICD is manageable. Treatment often includes:

• Adjusting medications, particularly reducing or switching off dopamine agonists
• Cognitive behavioral therapy (CBT) to address thought patterns and coping strategies
• Support groups to talk openly with others who understand the experience​

At the Parkinson’s Association of Southwest Florida, we believe in treating the whole person—not just motor symptoms. That means providing education and support for behavioral and emotional challenges like ICD as well.

Final Thoughts
Impulse Control Disorder is a real and distressing part of the Parkinson’s experience for some individuals—but help is available. If you or someone you love is experiencing sudden or uncontrollable urges, it’s not a character flaw—it’s a treatable side effect. Let’s keep the conversation going and ensure no one navigates Parkinson’s alone.

For more resources, support groups, or to speak with someone who understands, please visit www.parkinsonassociationswfl.org or call 239-417-3465.
For more than 25 years, PASWFL has provided free, high-quality services and programs to individuals and families affected by Parkinson’s disease in Southwest Florida.
Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech and cognitive therapy
• Art and music therapy
• Educational seminars
• Support for care partners
• One-on-one resource navigation

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
Click here to sign up for the PASWFL newsletter
Click here to become a member (it's free!)
To learn more, visit www.parkinsonassociationswfl.org and discover the power of support, education, and community.

When living with Parkinson’s disease (PD), many people wonder what else they can do—beyond medications and therapy—to support their brain and body. One of the most common questions is: “What supplements are good for Parkinson’s?”
While supplements aren’t a cure for Parkinson’s, certain vitamins, minerals, and nutrients may help support overall wellness, ease symptoms, or counteract side effects of medication. Always speak with your healthcare provider before starting any supplement, especially if you are taking prescription medications.

What Supplements Are Good for Parkinson’s?

​Here are several supplements commonly studied or recommended for people with Parkinson’s:
1. Coenzyme Q10 (CoQ10)This antioxidant plays a role in energy production in cells. Some early research suggested CoQ10 might slow Parkinson’s progression, but larger studies haven’t confirmed this. Still, many people take it to support mitochondrial function and overall energy.
2. Vitamin DPeople with Parkinson’s are often low in vitamin D, which is essential for bone health and immune function. Supplementing vitamin D may reduce fall risk and support mood and muscle strength.
3. Omega-3 Fatty Acids (Fish Oil)Omega-3s may support brain health, reduce inflammation, and improve mood. Some studies suggest they could slow neurodegeneration.
4. Vitamin B12 and FolateThese vitamins help with nerve function and cognitive health. Levodopa, a common PD medication, may lower B12 levels, increasing the risk of neuropathy. A B-complex or methylated B12 supplement can be helpful.
5. ProbioticsGut health plays a surprising role in Parkinson’s. Probiotics may improve digestion, reduce constipation, and support overall gut-brain balance.
6. CreatineCreatine has been studied for its potential to improve muscle strength and brain energy metabolism, though results are mixed.
7. GlutathioneA powerful antioxidant, glutathione levels are often lower in people with PD. While oral supplements are limited, IV or liposomal forms are sometimes used under medical supervision.

Always Consult Your Doctor 
Just because a supplement is natural doesn’t mean it’s always safe or beneficial. Some can interact with Parkinson’s medications, especially levodopa. It’s essential to work with a healthcare provider familiar with PD to determine what’s right for your individual needs.

Support for Living Well with Parkinson’s
Nutrition and supplements are just one part of a full picture of Parkinson’s care. That’s why the Parkinson’s Association of Southwest Florida (PASWFL) is here to help.

For over twenty-five years, PASWFL has provided effective programs and services that improve the quality of life, educate, enrich, and empower our Southwest Floridians touched by PD and related neurological diseases.

Each week, PASWFL offers more than 25 free programs and support groups for members with PD and their care partners, including fitness, voice, art, education, and caregiver support. There are no fees to join, and membership is open to everyone affected by PD in Southwest Florida.

Ready to Learn More or Join?Click here to sign up for the PASWFL newsletter for tips, events, and updates.
Click here to join PASWFL for free and access 25+ weekly programs.

If you or someone you love has been diagnosed with Parkinson’s disease (PD), you’ve likely heard a lot about dopamine. But what exactly is dopamine, and what does it do in Parkinson’s? Understanding the role of this essential brain chemical can help you better grasp the symptoms, treatment, and ongoing care related to PD.

What Does Dopamine Do in Parkinson’s?Dopamine is a neurotransmitter—a chemical messenger in the brain that plays a crucial role in controlling movement, coordination, mood, and motivation. In a healthy brain, dopamine is produced by nerve cells in an area called the substantia nigra, located in the midbrain. It helps transmit signals that allow smooth, purposeful physical motion.

In Parkinson’s disease, these dopamine-producing cells begin to degenerate and die, leading to a significant drop in dopamine levels. This shortage of dopamine disrupts the normal balance and flow of communication between the brain and the body—particularly in areas that control motor function.
That’s why people with PD experience symptoms like:

• Tremors (shaking)
• Slowness of movement (bradykinesia)
• Muscle rigidity
• Difficulty with balance and coordination

As dopamine levels continue to decline, non-motor symptoms can also develop, such as mood changes, sleep disturbances, and cognitive challenges.

How Does Dopamine Affect Parkinson’s Symptoms?
The classic motor symptoms of Parkinson’s are directly tied to the lack of dopamine in the brain. Without enough dopamine:

• Muscles may stiffen or become slow to respond.
• Simple movements like walking, writing, or speaking can become challenging.
• Reflexes slow down, increasing the risk of falls and injury.

This is why many Parkinson’s medications aim to replace dopamine or mimic its effects, helping to restore some degree of normal movement and reduce symptoms.
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One of the most well-known treatments is levodopa, a medication that the brain converts into dopamine. When taken with carbidopa (which helps levodopa reach the brain more efficiently), it can significantly improve mobility and quality of life.

Living Well with Parkinson’s: Support from PASWFLWhile medications help manage dopamine levels, ongoing support and care are essential for living well with Parkinson’s—and that’s where the Parkinson’s Association of Southwest Florida (PASWFL) comes in.

For over twenty-five years, PASWFL has provided effective programs and services that improve the quality of life, educate, enrich, and empower Southwest Floridians touched by Parkinson’s and related neurological diseases.

Each week, PASWFL offers more than 25 free programs and support groups for people with PD and their care partners. These include exercise classes, speech therapy, wellness education, art, music, and caregiver support. There are no fees to become a member, and everyone is welcome.

You can join the PASWFL community and start receiving support today.

Ready to Learn More or Get Involved?
Click here to sign up for their newsletter for updates, tips, and event info.
Click here to join PASWFL for free and access weekly support programs.

**Understanding dopamine helps empower you to take control of Parkinson’s—**and with the right support, you can live stronger, longer, and better.

When someone receives a diagnosis of Parkinson’s disease (PD), one of the first and most personal questions that often follows is: "How long can you live with Parkinson’s?" It’s a natural concern—for individuals, families, and care partners alike—and while Parkinson’s is a progressive condition, it’s not considered a direct cause of death. With the right treatment, support, and lifestyle modifications, many people live long and meaningful lives with PD.

Understanding Life Expectancy With Parkinson’sThe answer to “how long can you live with Parkinson’s?” isn’t one-size-fits-all. Parkinson’s affects each person differently. Factors like age at diagnosis, symptom progression, overall health, and access to care all play a role.

On average, people with Parkinson’s live about the same lifespan as those without the disease, especially when they are diagnosed under the age of 60. Studies show that most individuals live 10 to 20 years or more after diagnosis. In fact, some live well into their 80s or 90s with proper medical care, physical activity, and community support.
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While Parkinson’s itself isn’t fatal, complications from the disease—such as difficulty swallowing, balance issues, or cognitive changes—can lead to more serious health risks. This is why early intervention, consistent management, and support systems are critical.

Living Well With Parkinson’s: The Role of SupportA Parkinson’s diagnosis doesn’t define a person’s life—it just changes the way they live it. That’s where community organizations like the Parkinson’s Association of Southwest Florida (PASWFL) make an incredible difference.

For over twenty-five years, PASWFL has provided effective programs and services that improve the quality of life, educate, enrich, and empower our Southwest Floridians touched by Parkinson’s disease and related neurological disorders. Their mission is to ensure that no one has to navigate Parkinson’s alone.

Each week, PASWFL offers more than 25 free programs and support groups tailored for individuals with PD and their care partners. These include exercise classes, voice therapy, art therapy, educational talks, and peer-led support. The focus isn’t just on surviving—but on thriving with Parkinson’s.
Free Membership and Easy AccessWhat’s even more empowering is that PASWFL services are completely free. There are no fees to become a member, and everyone is welcome. Whether you are newly diagnosed or have been living with PD for years, there’s a place for you in this caring, supportive community.

You can sign up quickly and easily online to start accessing their classes and resources.

Ready to Join the PASWFL Community? To learn more and receive tips, updates, and event news:
Click here to sign up for their newsletter

It’s free to become a member:
Click here to join PASWFL and gain immediate access to support and services.

Living with Parkinson’s isn’t about counting the years—it’s about making every year count. With the right support, you can live well, live strong, and live fully.

​The Parkinson’s Association of Southwest Florida (PASWFL) is pleased to announce new appointments to its all-volunteer Board of Directors, reflecting the organization’s ongoing commitment to strategic growth and community impact.
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As of July 1, 2025, Kimberly Adams has been elected Treasurer, and David Linz, MD, along with Stephen Schahrer, Esq., have joined the board as directors at large. These additions bring fresh energy and valuable expertise to an already dedicated board, which includes Chair Anthony Maglione, Vice Chair Danielle Dyer, Secretary Karim Mawji, and members John Botsko Jr., Claire Bisignano Chesnoff, Larry Sternberg, MD, and Charles Weinrich.

​“Kimberly, David, and Stephen bring valuable experience and expertise to our board,” said Board Chair Anthony Maglione. “Their leadership strengthens our ability to serve the Parkinson’s community of Southwest Florida and carry forward our mission with greater impact.”

​Meet the New Board Members
Kimberly Adams
With over 35 years of experience as a QuickBooks consultant and a long-standing passion for nonprofit service, Kimberly Adams brings strong financial acumen and a heart for giving back. A full-time Southwest Florida resident, Adams steps into the role of Treasurer, where her insight will be key in ensuring the organization’s financial health and sustainability.

​David Linz, MD
Dr. Linz, MD, is an Internal Medicine physician with NCH Medical Group’s Division of Concierge Medicine at Moorings Park and serves as Chief Medical Informatics Officer for NCH. He is also part of the faculty for the NCH Internal Medicine Residency Program. With affiliations to the Mayo Clinic and the University of Central Florida, Dr. Linz contributes not only deep clinical expertise but also a personal commitment to improving care for individuals living with Parkinson’s disease.

​Stephen C. Schahrer, Esq.
A Naples native and business litigation attorney with Boatman Ricci, Stephen Schahrer brings his legal background in business, construction, real estate, and estate litigation to the board. As General Counsel for local businesses and nonprofits, and an active volunteer with Hope City Church and Better Together, Schahrer enhances the board’s capacity for legal insight and community leadership.

​About PASWFL
The Parkinson’s Association of Southwest Florida empowers people with Parkinson’s disease and their care partners to live well. Through free programs, advocacy, and education, PASWFL creates a welcoming, informed, and supportive community for those touched by Parkinson’s and related neurodegenerative diseases.
Membership is free and open to all. To join or learn more, visit www.parkinsonassociationswfl.org or call 239-417-3465. You can also connect with PASWFL on Facebook, Twitter, and Instagram.

Location:
2575 Northbrooke Plaza Drive, Suite 301, Naples, FL 34119

​About Parkinson’s Disease
Parkinson’s disease is a progressive neurodegenerative disorder that affects movement and other functions. It is the second-most common neurodegenerative disease in the U.S., following Alzheimer’s, and is currently ranked by the CDC as the 14th-leading cause of death. While there is no cure, early intervention, support, and education can make a significant difference in quality of life.

​Have you or a loved one with Parkinson’s disease noticed that your handwriting is getting smaller or more cramped over time? This subtle but significant change is called Micrographia, and it’s a common symptom of Parkinson’s disease that can often be frustrating and confusing. A new virtual PD Talk on July 6, 2025, can help you understand and alleviate these symptoms.

To shed light on this important topic, the Parkinson’s Association of Southwest Florida (PASWFL) is hosting a special Zoom presentation titled “Intro to Micrographia” on Wednesday, July 9, 2025, at 3:00 p.m. The session will be led by Alicia Artz and Jen Hedgepeth, Physical Therapist Assistants and co-owners of Fite For Your Write, a program focused on helping individuals with Parkinson’s reclaim their confidence and clarity through writing.
This informative session is free, but RSVPs are required by Monday, July 7, 2025, at 3:00 p.m.
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​What Is Micrographia?
Micrographia is a neurological symptom often associated with Parkinson’s disease, characterized by abnormally small, cramped handwriting. Many individuals find that their writing starts out normal-sized but quickly becomes tiny and illegible as they continue. This can be frustrating—not only because it makes communication harder, but also because it’s a visible reminder of Parkinson’s progression.
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While the exact cause isn’t fully understood, Micrographia is believed to stem from the same motor symptoms that affect walking, balance, and speech in Parkinson’s disease. The good news? There are strategies to help improve handwriting, and that’s where Alicia and Jen come in.

​Meet the Presenters
Alicia Artz and Jen Hedgepeth are passionate about empowering people with Parkinson’s through their specialized handwriting and motor skills program, Fite For Your Write. With backgrounds in physical therapy, they understand the movement challenges Parkinson’s creates. Their mission is to show people how a targeted, consistent handwriting practice can help retrain the brain and improve both writing and overall hand coordination.

During the “Intro to Micrographia” session, Alicia and Jen will share:

• What Micrographia is and why it happens
• Simple tools and techniques to address handwriting changes
• How writing exercises can help reconnect the brain and body
• Stories of real progress from participants in their program

Whether you are newly diagnosed or have been living with Parkinson’s for years, this session is designed to educate, encourage, and offer actionable steps to improve a vital part of daily life.

​Understanding Early or Mild Parkinson’s Disease
​Parkinson’s disease is a progressive neurological condition, meaning it gradually worsens over time. The early stages often bring subtle symptoms that are easy to overlook or attribute to aging or other health issues. These early signs can appear months or even years before a diagnosis is made.

Some of the most common early symptoms of Parkinson’s include:

• Slight tremor in a finger, hand, or foot—especially at rest
• Slowness of movement (bradykinesia)
• Reduced facial expression (masked face)
• Softer speech
• Changes in handwriting (micrographia)
• Mild balance issues or stiffness
• Reduced arm swing while walking
• Sleep disturbances
• Constipation or other gastrointestinal issues

Because these symptoms are relatively mild, people may live with early Parkinson’s for some time without knowing they have it. Diagnosis often occurs when symptoms begin to interfere with daily tasks or become more noticeable to others.

​The Importance of Early Detection
Recognizing Parkinson’s early can be incredibly valuable. While there is no cure, early diagnosis allows individuals to:

• Begin treatment that can improve quality of life
• Access support services and resources sooner
• Make lifestyle adjustments that may slow progression
• Engage in exercise and wellness programs proven to support better outcomes

Early treatment, especially when combined with community support and wellness strategies, can help those living with Parkinson’s stay active, independent, and engaged.

How PASWFL Supports Early-Stage Parkinson’s
​If you or someone you love is experiencing early signs of Parkinson’s, the Parkinson’s Association of Southwest Florida (PASWFL) is here to help.

For more than 25 years, PASWFL has provided free, high-quality services and programs to individuals and families affected by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech and cognitive therapy
• Art and music therapy
• Educational seminars
• Support for care partners
• One-on-one resource navigation

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
Click here to sign up for the PASWFL newsletter
Click here to become a member (it's free!)
To learn more, visit www.parkinsonassociationswfl.org and discover the power of support, education, and community.

Parkinson’s disease (PD) is a progressive neurological disorder that affects movement, coordination, and many other bodily functions. One of the central biological components of Parkinson’s is the neurotransmitter dopamine. So, what role does dopamine play in Parkinson’s disease—and why is it so important?

Understanding Dopamine’s Role in the Brain:
Dopamine is a chemical messenger (neurotransmitter) that plays a crucial role in controlling movement, motivation, mood, and reward. It’s produced in a part of the brain called the substantia nigra, which is located in the midbrain.

In a healthy brain, dopamine helps transmit signals between nerve cells, particularly those involved in the motor control system. This helps the body move smoothly and efficiently. Think of dopamine as oil in a well-functioning machine—it allows the gears (your muscles and movements) to work together without grinding.

How Parkinson’s Disrupts Dopamine:
In people with Parkinson’s disease, the dopamine-producing neurons in the substantia nigra begin to degenerate and die. As these cells are lost, the brain’s dopamine levels drop. By the time motor symptoms like tremor, stiffness, or slowness appear, it’s estimated that 60–80% of dopamine-producing cells have already been lost.

This dopamine deficiency causes the characteristic symptoms of Parkinson’s, including:

• Tremors (especially at rest)
• Muscle rigidity
• Bradykinesia (slowness of movement)
• Postural instability
• Shuffling gait

Over time, as dopamine levels continue to decline, non-motor symptoms—such as depression, sleep disturbances, and cognitive changes—may also develop.

​Treatments That Target DopamineThere is currently no cure for Parkinson’s, but many treatments aim to restore or mimic dopamine function.

​These include:

• Levodopa/Carbidopa: The most common and effective treatment, which converts to dopamine in the brain.
• Dopamine agonists: Medications that stimulate dopamine receptors without converting into dopamine.
• MAO-B inhibitors: Drugs that slow the breakdown of dopamine in the brain.

Understanding dopamine’s central role in Parkinson’s has helped guide both current treatments and ongoing research efforts.

PASWFL: Supporting You Every Step of the Way
Managing a chronic condition like Parkinson’s goes beyond medication. The Parkinson’s Association of Southwest Florida (PASWFL) offers a comprehensive approach to wellness and support.

For over 25 years, PASWFL has provided free, evidence-based programs, expert education, and community support to individuals and families touched by Parkinson’s in Southwest Florida. Every week, they offer 25+ programs and support groups that include:

• Wellness and movement classes
• Educational webinars and seminars
• Care partner and peer support groups
• Personalized assistance and advocacy

There are no fees to become a member, and joining provides access to a wide network of support and resources tailored to living well with Parkinson’s.

​Join the Community and Stay Informed 
Empower yourself with knowledge and connection.
Click here to sign up for their free newsletter
Click here to become a free PASWFL member
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For more information, visit www.parkinsonassociationswfl.org and discover how PASWFL can help you live well with Parkinson’s.