<![CDATA[Parkinson's Association of SWFL - Blog]]>Sat, 21 Jun 2025 01:55:36 -0400Weebly<![CDATA[What’s the difference between Parkinson’s disease and Parkinsonism?]]>Fri, 20 Jun 2025 11:30:00 GMThttp://parkinsonassociationswfl.org/blog/whats-the-difference-between-parkinsons-disease-and-parkinsonism
When someone experiences symptoms such as tremors, stiffness, or slowness of movement, the first thought might be Parkinson’s disease. However, these symptoms can also point to a broader category of neurological conditions known as Parkinsonism. So, what’s the difference between Parkinson’s disease and Parkinsonism?
Understanding Parkinson’s Disease:
Parkinson’s disease (PD) is a chronic and progressive neurological disorder that primarily affects movement. It occurs when brain cells that produce dopamine—a neurotransmitter responsible for controlling movement—begin to deteriorate. As dopamine levels decrease, individuals experience hallmark symptoms such as:
  • Resting tremors
  • Muscle rigidity
  • Bradykinesia (slowness of movement)
  • Postural instability
  • Changes in speech and facial expression

Parkinson’s disease is considered idiopathic, meaning the cause is unknown in most cases. It is the most common form of Parkinsonism and responds well to treatments like Levodopa/Carbidopa, which boosts dopamine levels in the brain.

What Is Parkinsonism?
Parkinsonism is a general term used to describe a group of neurological disorders that cause movement symptoms similar to those of Parkinson’s disease. However, Parkinsonism may have different underlying causes, and the symptoms might not respond well to traditional PD medications.
Types of Parkinsonism include:
  • Multiple System Atrophy (MSA)
  • Progressive Supranuclear Palsy (PSP)
  • Corticobasal Degeneration (CBD)
  • Drug-induced Parkinsonism
  • Vascular Parkinsonism

These conditions may also include additional symptoms not typical of Parkinson’s disease, such as early balance problems, rapid progression, or issues with blood pressure regulation.

​Key Differences Between Parkinson’s Disease and Parkinsonism:

Feature                              Parkinson’s Disease                                 Parkinsonism
Cause                               Usually unknown (idiopathic)              Can be caused by medications, strokes, or           
                                                                                                                 other diseases
Response to                    Typically positive                                     Often poor or limited
Levodopa

Progression                     Slower and more predictable             Can be faster and more severe

Symptoms                       Mostly motor-related early on            Often includes additional non-motor  
                                                                                                                symptoms early

Diagnosis                         Based on clinical criteria                     May require advanced testing to 
                                                                                                                determine type

Understanding these differences is crucial for receiving the right diagnosis and care plan.
How the Parkinson’s Association of Southwest Florida Can Help:
Whether you or a loved one has been diagnosed with Parkinson’s disease or another form of Parkinsonism, the Parkinson’s Association of Southwest Florida (PASWFL) is here to help.

For over 25 years, PASWFL has empowered individuals touched by Parkinson’s and related neurological disorders by offering:
  • Over 25 free programs and support groups each week
  • Evidence-based wellness classes
  • Educational events with Parkinson’s experts
  • A community of care for patients and caregivers
Membership is free and confidential. It’s easy to join, and you don’t have to face the journey alone.

Click here to sign up for PASWFL’s free newsletter
Click here to become a free member today
Visit www.parkinsonassociationswfl.org to learn more and take your next step toward living well with Parkinson’s or Parkinsonism.
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<![CDATA[How Fast Does Parkinson’s Disease Usually Progress?]]>Wed, 18 Jun 2025 11:30:00 GMThttp://parkinsonassociationswfl.org/blog/how-fast-does-parkinsons-disease-usually-progress
Parkinson’s disease (PD) is a progressive neurological disorder that affects movement, muscle control, and balance. One of the most commonly asked questions by individuals and families facing a PD diagnosis is: How fast does Parkinson’s disease usually progress? The answer varies widely, depending on several personal and medical factors. Understanding the nature of Parkinson’s progression can help individuals better prepare, plan, and live well with the disease.
Understanding Parkinson’s Progression

Parkinson’s disease does not follow a single course, and its rate of progression can differ significantly from person to person. In general, Parkinson’s is considered a slowly progressing disease. Some people may live for decades with relatively mild symptoms, while others may see more rapid changes.

The 5 Stages of Parkinson’s Disease

​To help understand progression, Parkinson’s is often divided into five stages:
  1. Stage 1: Symptoms are mild and affect only one side of the body. Daily activities are usually not impaired.
  2. Stage 2: Symptoms worsen, affecting both sides of the body, but balance remains intact.
  3. Stage 3: Balance begins to decline. Falls may occur, and daily tasks become more difficult.
  4. Stage 4: Symptoms are severe. The person may need help walking and performing daily activities.
  5. Stage 5: Advanced stage, often involving wheelchair use or being bedridden, with 24-hour assistance required.
The transition between stages can span many years. On average, individuals may live 15 to 20 years or more following diagnosis, especially with proper treatment and care.

Factors That Influence the Rate of Progression​

While Parkinson’s is incurable, many factors influence its rate of progression:
  • Age at diagnosis: Younger individuals often experience slower progression.
  • Lifestyle: Regular exercise and healthy eating can help manage symptoms.
  • Type of Parkinson’s: Some forms, like tremor-dominant PD, may progress more slowly.
  • Medication: Treatments like Levodopa and dopamine agonists can significantly improve quality of life.
  • Support systems: Emotional and physical support from care partners and community programs can slow functional decline.
How the Parkinson’s Association of Southwest Florida Can Help

Living well with Parkinson’s is possible—with the right support. The Parkinson’s Association of Southwest Florida (PASWFL) has been serving the community for over 25 years, offering vital services to help individuals and families live well with PD.

Each week, PASWFL provides more than 25 free programs and support groups tailored to the needs of those with Parkinson’s and their care partners. These include:
  • Evidence-based wellness classes
  • Movement and balance programs
  • Educational workshops and expert speakers
  • Care partner support groups
There are no fees to become a member of PASWFL. The support, education, and community they provide can make a significant difference in managing the symptoms and slowing the impact of the disease.

Take the First Step TodayWhether newly diagnosed or living with Parkinson’s for years, you don’t have to face this journey alone.
Click here to sign up for PASWFL’s free newsletter
Click here to become a member—it’s free and confidential
To learn more, visit www.parkinsonassociationswfl.org. Together, we can help you live well with Parkinson’s disease.
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<![CDATA[What Foods Should I Eat When Taking Levodopa/Carbidopa?]]>Wed, 18 Jun 2025 11:30:00 GMThttp://parkinsonassociationswfl.org/blog/what-foods-should-i-eat-when-taking-levodopacarbidopa
Levodopa/Carbidopa is one of the most effective medications used to manage the symptoms of Parkinson’s disease (PD). If you or a loved one is taking this medication, you may have wondered: What foods should I eat when taking Levodopa/Carbidopa? Nutrition plays a key role in how well the medication works and how you feel throughout the day.
How Food Affects Levodopa/Carbidopa Absorption

Levodopa must cross the blood-brain barrier to be effective, and protein can interfere with this process. This is because the body uses the same transport system for both Levodopa and amino acids (the building blocks of protein). As a result, if you eat a high-protein meal around the same time you take your medication, it may compete with Levodopa and reduce its effectiveness.

That doesn't mean you should avoid protein altogether—your body still needs it to stay strong. Instead, timing and balance are key.

Best Practices for Eating While Taking Levodopa/Carbidopa 

1. Take Your Medication on an Empty Stomach
For many people, Levodopa/Carbidopa is best absorbed when taken 30 to 60 minutes before meals. This helps prevent protein interference and can improve the medication’s effectiveness.

2. Schedule Protein Wisely
Try to limit protein intake during the day and consume the majority of your protein in the evening when symptoms tend to be less problematic. This approach can help ensure your medication works better when you need it most—during your active hours.

3. Stay Hydrated
Water helps with digestion and medication absorption. Make sure to drink plenty of fluids throughout the day, unless otherwise directed by your physician.

4. Focus on Fiber-Rich Foods
Constipation is common in Parkinson’s disease and can worsen symptoms. Eating foods high in fiber such as whole grains, fruits, and vegetables can promote regular bowel movements and improve overall well-being.

5. Avoid High-Fat, High-Sugar Meals
Fatty and sugary foods can slow digestion and may contribute to inflammation. Opt for nutrient-dense foods like leafy greens, berries, nuts, and lean proteins.
Partnering with the Parkinson’s Association of Southwest Florida

Living well with Parkinson’s involves more than medication—it requires comprehensive support, including guidance on nutrition, exercise, and lifestyle. That’s where the Parkinson’s Association of Southwest Florida (PASWFL) comes in.

For over 25 years, PASWFL has provided free programs, expert education, and compassionate support to individuals and families living with Parkinson’s disease and related neurological conditions in our community.

Each week, they offer more than 25 programs and support groups for individuals with PD and their care partners. These include nutrition counseling, fitness classes, education events, and support circles—all designed to help you thrive.

Best of all, membership is free and open to everyone in Southwest Florida.

Get Connected
Click here to sign up for PASWFL’s free newsletter
Click here to become a free member today
To learn more, visit www.parkinsonassociationswfl.org and take the next step toward living well with Parkinson’s disease.
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<![CDATA[What Causes Parkinson’s Disease and Alzheimer’s—Are They Related?]]>Tue, 17 Jun 2025 11:30:00 GMThttp://parkinsonassociationswfl.org/blog/what-causes-parkinsons-disease-and-alzheimers-are-they-related
Neurodegenerative diseases affect millions of people around the world, with Parkinson’s disease (PD) and Alzheimer’s disease (AD) being two of the most common. Both are progressive, chronic disorders of the brain, but they differ in their symptoms, causes, and progression. This often raises the question: What causes Parkinson’s disease and Alzheimer’s—and are they related?
Understanding the Causes of Parkinson’s and Alzheimer’s

What Causes Parkinson’s Disease?
Parkinson’s disease is primarily caused by the gradual breakdown or death of neurons in a region of the brain called the substantia nigra. These neurons are responsible for producing dopamine, a neurotransmitter essential for coordinating movement. As dopamine levels decrease, symptoms like tremors, stiffness, and slowed movement begin to appear.

While the exact cause is not fully understood, several factors are believed to contribute:
  • Genetic mutations: Certain inherited genetic mutations are linked to Parkinson’s, although they are rare.
  • Environmental exposures: Prolonged exposure to certain toxins or pesticides may increase risk.
  • Age and gender: The disease most often affects people over age 60 and is more common in men than in women.

What Causes Alzheimer’s Disease?
Alzheimer’s disease, the most common form of dementia, primarily affects memory, thinking, and behavior. It’s associated with the buildup of amyloid plaques and tau tangles in the brain, which disrupt communication between neurons and eventually lead to cell death.
  • Key contributing factors include:
  • Age: The single greatest risk factor.
  • Genetics: The APOE-e4 gene variant increases risk.
  • Lifestyle and heart health: Conditions like diabetes, high blood pressure, and smoking may increase susceptibility.
  • Brain injury: History of head trauma may also be a factor.

Are Parkinson’s and Alzheimer’s Related?
Although Parkinson’s and Alzheimer’s are distinct diseases with different causes and symptoms, they do share some common features:
  • Both are neurodegenerative: They involve progressive damage to neurons in the brain.
  • Risk increases with age: Both diseases are more common in older adults.
  • Overlap in symptoms: Some cognitive decline can occur in later stages of Parkinson’s, and some people with Alzheimer’s may experience movement issues.

There is also a condition called Parkinson’s disease dementia (PDD) that occurs in some individuals with Parkinson’s, and Lewy body dementia (LBD) which shares characteristics of both PD and AD. These overlapping conditions highlight how the boundaries between these diseases can blur.

Whole-Person Support Through PASWFL

Navigating life with Parkinson’s can be challenging, but you don’t have to do it alone. For over 25 years, the Parkinson’s Association of Southwest Florida (PASWFL) has been improving lives through education, wellness programs, and support networks.

Each week, PASWFL offers over 25 free programs including:
  • Fitness and movement classes
  • Cognitive wellness and speech therapy
  • Care partner and peer support groups
  • Education sessions with Parkinson’s experts
Membership is completely free, and it’s open to individuals with Parkinson’s and their care partners throughout Southwest Florida.

Join the PASWFL CommunityEmpower yourself with the tools, community, and knowledge to live well with Parkinson’s.
Click here to sign up for the PASWFL newsletter
Click here to become a member—it’s free and confidential
For more information, visit www.parkinsonassociationswfl.org and take your first step toward wellness today.
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<![CDATA[What Are the Most Effective Medications for Parkinson’s Disease?]]>Tue, 17 Jun 2025 11:30:00 GMThttp://parkinsonassociationswfl.org/blog/what-are-the-most-effective-medications-for-parkinsons-disease
Parkinson’s disease (PD) is a progressive neurological disorder that affects movement, coordination, and many aspects of daily life. One of the most common questions asked after a diagnosis is: What are the most effective medications for Parkinson’s disease? While there is no cure for PD, a variety of medications are available that can significantly reduce symptoms and improve quality of life.
Understanding Parkinson’s Medications
The primary goal of Parkinson’s medications is to restore or mimic the action of dopamine—a neurotransmitter that plays a crucial role in movement. As the disease progresses and dopamine levels decline, symptoms such as tremors, stiffness, and slowness of movement become more pronounced.

Levodopa/Carbidopa: Levodopa is considered the gold standard and most effective medication for treating Parkinson’s disease. It works by converting into dopamine in the brain, directly replenishing the neurotransmitter that is deficient in people with PD. Carbidopa is combined with levodopa to prevent it from breaking down in the bloodstream before reaching the brain, enhancing its effectiveness and reducing side effects like nausea.

Brand names: Sinemet, Rytary (extended-release), Parcopa (orally disintegrating).

Dopamine Agonists: Dopamine agonists mimic dopamine’s effects in the brain. They don’t convert into dopamine like levodopa but instead stimulate dopamine receptors directly.

Examples include: Pramipexole (Mirapex), Ropinirole (Requip), and Rotigotine (Neupro patch). These are often used in the early stages of Parkinson’s or in combination with levodopa to extend its effects.

MAO-B Inhibitors: Monoamine oxidase B (MAO-B) inhibitors block the enzyme that breaks down dopamine in the brain. This helps prolong the effect of dopamine.

Common MAO-B inhibitors: Selegiline (Eldepryl), Rasagiline (Azilect), Safinamide (Xadago).

COMT Inhibitors: Catechol-O-methyltransferase (COMT) inhibitors help prevent the breakdown of levodopa, thereby extending its effectiveness.
Examples: Entacapone (Comtan) and Opicapone (Ongentys)

​Amantadine: 
Amantadine is used to treat tremors and dyskinesia (involuntary movements) that can occur with long-term levodopa use. It may also offer mild benefits for stiffness and slowness of movement.
Anticholinergics: While not commonly used today due to their side effects, anticholinergic drugs like benztropine and trihexyphenidyl can help reduce tremors, especially in younger patients.
Support Beyond MedicationMedications are essential, but so is a supportive care network. The Parkinson’s Association of Southwest Florida (PASWFL) has been serving the community for over 25 years, providing education, support, and resources to help individuals live well with PD.

PASWFL offers more than 25 free programs and support groups every week for individuals with Parkinson’s and their care partners.

These include:
  • Exercise and movement classes
  • Educational seminars
  • Speech and voice therapy
  • Care partner support
  • Social engagement and community resources

Membership is 100% free, and no diagnosis is required to join.

Join the PASWFL CommunityIf you or a loved one is navigating Parkinson’s disease, know that you're not alone. Join a compassionate and informed community ready to support your journey.
Click here to sign up for the PASWFL newsletter
Click here to become a member (free and confidential)
To learn more, visit www.parkinsonassociationswfl.org and start living well with PD today.
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<![CDATA[Does Parkinson’s disease affect more than just the brain?]]>Mon, 16 Jun 2025 11:30:00 GMThttp://parkinsonassociationswfl.org/blog/does-parkinsons-disease-affect-more-than-just-the-brain
When most people think of Parkinson’s disease (PD), they associate it with tremors and difficulty with movement, all of which stem from the brain. But the reality is more complex. 
Does Parkinson’s disease affect more than just the brain?
The answer is yes — Parkinson’s is a systemic condition that impacts multiple systems throughout the body, not just the nervous system. Understanding its far-reaching effects can help individuals and families better manage the disease and seek support early on.
 Beyond the Brain: The Widespread Impact of Parkinson’s Disease

Parkinson’s disease is a neurodegenerative disorder primarily caused by the loss of dopamine-producing cells in a part of the brain called the substantia nigra. While the brain is the central site of the disease’s origin, its symptoms ripple through many other organs and systems, affecting a person’s total well-being.

The Digestive System One of the earliest non-motor symptoms of Parkinson’s is constipation. This happens because PD can slow down the muscles of the gut, leading to sluggish digestion. Swallowing problems may also emerge in later stages, which can lead to malnutrition or aspiration.

The Cardiovascular System Parkinson’s often affects the autonomic nervous system, which controls involuntary functions like heart rate and blood pressure. As a result, individuals may experience orthostatic hypotension, a sudden drop in blood pressure upon standing, leading to dizziness or fainting.

The Respiratory System Over time, Parkinson’s can weaken the muscles involved in breathing, leading to shallow breaths or even sleep apnea. These changes can be subtle but are crucial to monitor as they can affect oxygen intake and sleep quality.

The Muscular and Skeletal Systems Muscle rigidity and joint stiffness are hallmark symptoms of PD. These physical changes can impact posture, balance, and overall mobility. Over time, they can lead to muscle pain, fatigue, and a higher risk of falls.

The Urinary and Reproductive Systems People with Parkinson’s frequently report urinary urgency, frequency, or incontinence. These symptoms are linked to disruptions in the communication between the brain and bladder. Men may also experience changes in sexual function.
Whole-Body Care Through PASWFLGiven that Parkinson’s affects more than just the brain, whole-body care becomes essential. That’s where the Parkinson’s Association of Southwest Florida (PASWFL) comes in. For over 25 years, PASWFL has provided free, life-enhancing programs to individuals and families touched by PD in the region.

Each week, PASWFL offers more than 25 free programs and support groups to address both the physical and emotional aspects of Parkinson’s. Their programs include:
  • Therapeutic exercise
  • Balance and movement classes
  • Speech therapy
  • Support groups for care partners
  • Educational events on managing all aspects of PD
Membership is completely free, and the organization is open to anyone affected by Parkinson’s disease.

Join the Supportive CommunityNo one has to face Parkinson’s alone. With the right information and a strong support system, individuals can live full and active lives.
Click here to sign up for the PASWFL newsletter
Click here to become a free member
To learn more, visit www.parkinsonassociationswfl.org and take the first step toward empowering your journey with PD.
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<![CDATA[What Happens to the Body During Parkinson’s Disease?]]>Sun, 15 Jun 2025 11:00:00 GMThttp://parkinsonassociationswfl.org/blog/what-happens-to-the-body-during-parkinsons-disease
Parkinson’s disease (PD) is more than just tremors and stiffness. It’s a progressive neurological condition that affects how the brain communicates with the rest of the body. Many people ask, “What happens to the body during Parkinson’s disease?” Understanding the changes that occur can empower individuals and families to seek appropriate care, treatment, and support early on.
​What Happens to the Body During Parkinson’s Disease?
Parkinson’s disease occurs when nerve cells in the brain, particularly in an area called the substantia nigra, begin to deteriorate or die. These cells are responsible for producing dopamine, a chemical that helps control movement. As dopamine levels drop, the body loses its ability to regulate smooth, controlled motions. Over time, this leads to both motor and non-motor symptoms.

Motor Symptoms

The most well-known effects of Parkinson’s disease on the body are related to movement. These include:

  • Tremors – Involuntary shaking, often starting in the hands or fingers.
  • Bradykinesia – Slowness of movement, which can make everyday tasks difficult.
  • Muscle rigidity – Stiffness in the limbs and trunk that can limit range of motion.
  • Postural instability – Impaired balance and coordination, increasing the risk of falls.
  • Freezing – Sudden, brief inability to move, often experienced when starting to walk.

Non-Motor SymptomsWhat happens to the body during Parkinson’s disease goes beyond physical movement. Non-motor symptoms are just as impactful:
​​
  • Cognitive changes – Including memory issues and slowed thinking.
  • Mood disorders – Depression and anxiety are common.
  • Sleep disturbances – Trouble falling or staying asleep, vivid dreams, or REM sleep behavior disorder.
  • Autonomic dysfunction – Issues with involuntary body functions such as blood pressure regulation, digestion, and bladder control.
  • Speech and swallowing difficulties – Soft speech, monotone voice, and difficulty swallowing are common in later stages.
Living Well With Parkinson’sAlthough there is no cure for Parkinson’s, many people live long, meaningful lives with proper care. Early diagnosis, medical treatment, regular exercise, and a supportive community can significantly improve quality of life.

One organization leading the way in whole-person care is the Parkinson’s Association of Southwest Florida (PASWFL).

How PASWFL Supports the Body and MindFor over 25 years, PASWFL has been dedicated to improving life for individuals touched by Parkinson’s disease and related neurological conditions. Offering more than 25 free programs and support groups weekly, PASWFL helps members and their care partners manage both the motor and non-motor symptoms of PD.

These programs include:
  • Therapeutic exercise and balance classes
  • Speech therapy and movement workshops
  • Support groups for individuals and care partners
  • Educational seminars on living with Parkinson’s

Membership is completely free, and there’s no cost to attend programs. PASWFL provides critical community-based care for Southwest Floridians, empowering them to live well with Parkinson’s.

Join the CommunityYou don’t have to go through Parkinson’s alone. PASWFL is here to help every step of the way.

Click here to sign up for their newsletter
Click here to become a free member
To learn more, visit www.parkinsonassociationswfl.org and discover how you can get the support and care you deserve.
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<![CDATA[What is the Average Life Expectancy for Someone with Parkinson’s Disease?]]>Sat, 14 Jun 2025 11:30:00 GMThttp://parkinsonassociationswfl.org/blog/what-is-the-average-life-expectancy-for-someone-with-parkinsons-disease
A diagnosis of Parkinson’s disease often brings with it a host of questions—from managing symptoms to understanding long-term health outcomes. One of the most frequently asked questions is: What is the average life expectancy for someone with Parkinson’s disease? This is an important topic, not just for individuals living with PD, but also for their care partners and loved ones.
Understanding Life Expectancy in Parkinson’s Disease
While Parkinson’s disease is a progressive neurological disorder, it is not typically considered fatal. The condition itself does not directly cause death. Instead, complications that arise in later stages—such as difficulty swallowing, falls, or infections like pneumonia—can impact longevity. That being said, people with Parkinson’s can live many fulfilling years with the right support, medical care, and lifestyle adjustments.

Studies have shown that the average life expectancy for someone with Parkinson’s disease is only slightly lower than that of the general population. On average, many individuals live between 10 to 20 years after their diagnosis, and some live well beyond that. Factors that influence life expectancy include:

  • Age at diagnosis (younger onset often means longer life expectancy)
  • Overall health and presence of other medical conditions
  • Access to treatment and therapy
  • Engagement in physical, cognitive, and social activities

Enhancing Quality of Life and Longevity

One of the best ways to support both longevity and quality of life for someone living with Parkinson’s is by staying engaged and active—physically, mentally, and socially. Exercise has been shown to slow symptom progression and boost mental well-being. Early and consistent use of medication, therapies (like speech or occupational therapy), and regular follow-ups with a neurologist also contribute to better outcomes.

Most importantly, a strong support system plays a crucial role in navigating the challenges of Parkinson’s disease. This is where community organizations and support networks come into the picture.
​How the Parkinson’s Association of Southwest Florida Can HelpFor over twenty-five years, the Parkinson’s Association of Southwest Florida (PASWFL) has been a trusted resource for individuals and families affected by Parkinson’s and related neurological diseases.

PASWFL provides over 25 free programs and support groups each week, designed specifically for people with PD and their care partners. These include:
  • Therapeutic movement and balance classes
  • Speech and cognitive support programs
  • Educational workshops and wellness resources
  • Peer and caregiver support groups

Their mission is to improve the quality of life, educate, enrich, and empower individuals in Southwest Florida living with PD. And there’s no cost to join—membership is completely free.

Take the First Step TodayBeing proactive and staying connected can make a tremendous difference. Whether you’ve just been diagnosed or have been living with Parkinson’s for years, you don’t have to go through it alone.
Click here to sign up for their newsletter
Click here to become a free member

To learn more, visit www.parkinsonassociationswfl.org and discover how the Parkinson’s Association of Southwest Florida can support your journey with Parkinson’s disease.
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<![CDATA[Living Near Golf Courses May Increase Parkinson’s Risk, Study Finds]]>Sat, 14 Jun 2025 04:00:00 GMThttp://parkinsonassociationswfl.org/blog/living-near-golf-courses-may-increase-parkinsons-risk-study-finds
A growing body of research suggests that environmental exposure to pesticides may play a role in the development of Parkinson’s disease (PD). A recent population-based case-control study published in JAMA Network Open sheds light on a specific and perhaps surprising risk factor: living near a golf course.
In the study, researchers found that individuals who lived within 1 to 3 miles of a golf course had a significantly higher risk of developing Parkinson’s disease compared to those living farther away. Even more striking, people who relied on drinking water from service areas that included a golf course had nearly twice the odds of developing PD than those whose water sources were unconnected to golf courses. The highest risk was observed among individuals living in areas where groundwater was especially vulnerable to contamination.

Golf courses are known to use a variety of pesticides to maintain turf, including organophosphates, chlorpyrifos, maneb, and 2,4-D—all of which have been previously linked to Parkinson’s. These chemicals have been shown to disrupt mitochondrial function and cause oxidative stress in brain cells, processes associated with PD. While previous studies hinted at the risks, such as anecdotal evidence from communities and small studies involving golf course superintendents, this new research provides a broader and more comprehensive look at the potential public health impact.

In addition to groundwater exposure, the study explored the possibility of airborne pesticide exposure. Even after adjusting for groundwater vulnerability, the association between proximity to golf courses and PD remained strong for those living within 1 to 2 miles—especially in urban areas. This finding suggests that densely populated neighborhoods may be more susceptible to airborne transmission of pesticides from nearby golf courses.

The study’s findings also underscore the complexity of water distribution systems. Most of the individuals in the study who lived near a golf course (about 90%) shared a common groundwater-supplied water service area. This suggests that many residents may be uniformly exposed to contaminated water, despite the distance of their homes from the golf course itself.

These findings point to the need for further research and potential policy changes. Monitoring pesticide use on golf courses, improving groundwater protection, and evaluating residential water sources could help reduce environmental exposure risks. Public health efforts aimed at raising awareness and advocating for safer pesticide practices may also be crucial in protecting vulnerable communities.
As Parkinson’s continues to rise in prevalence, understanding and addressing environmental risk factors like those associated with golf courses could be an important step toward prevention.
How PASWFL Can Help:
For over twenty-five years, PASWFL has been a trusted ally for individuals and families touched by Parkinson’s and related neurological disorders. Their mission is to improve the quality of life by offering:
  • Over 25 free weekly programs and support groups
  • Evidence-based wellness initiatives like movement and balance classes
  • Educational resources led by experts in the field
  • Support for care partners and families
  • Advocacy and outreach in the Southwest Florida community

Best of all, membership is completely free and confidential.

Join the PASWFL Community Today
Click here to sign up for PASWFL’s free newsletter
Click here to become a free PASWFL member

To learn more, visit www.parkinsonassociationswfl.org and discover how PASWFL empowers people to live well with Parkinson’s—no matter the type.

Citation:

Krzyzanowski B, Mullan AF, Dorsey ER, et al. Proximity to Golf Courses and Risk of Parkinson Disease. JAMA Netw Open. 2025;8(5):e259198. doi:10.1001/jamanetworkopen.2025.9198


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<![CDATA[What’s the Difference Between Parkinson’s Disease and Parkinson’s Syndrome?]]>Fri, 13 Jun 2025 10:30:00 GMThttp://parkinsonassociationswfl.org/blog/whats-the-difference-between-parkinsons-disease-and-parkinsons-syndrome
When it comes to understanding movement disorders, many people wonder: What’s the difference between Parkinson’s disease and Parkinson’s syndrome? Though the terms are often used interchangeably, they refer to distinct medical conditions. Knowing the difference can help individuals get the right diagnosis, treatment, and support.
​Parkinson’s Disease vs. Parkinson’s Syndrome: What’s the Difference?
Parkinson’s disease (PD) is a specific, progressive neurological disorder that primarily affects movement. It occurs when nerve cells in the brain that produce dopamine—a chemical that helps control movement—begin to die. The classic symptoms of Parkinson’s disease include:

  • Tremors (shaking)
  • Bradykinesia (slowness of movement)
  • Muscle rigidity
  • Postural instability (balance issues)

On the other hand, Parkinson’s syndrome, sometimes called parkinsonism, is a broader term used to describe a group of conditions that cause symptoms similar to Parkinson’s disease. While Parkinson’s disease is the most common cause of parkinsonism, there are other disorders that fall under this umbrella, including:

  • Multiple System Atrophy (MSA)
  • Progressive Supranuclear Palsy (PSP)
  • Corticobasal Degeneration (CBD)
  • Drug-induced parkinsonism
  • Vascular parkinsonism

These syndromes can mimic PD in the early stages but often progress differently and may not respond as well to traditional Parkinson’s medications like levodopa/carbidopa.

Why the Distinction MattersUnderstanding whether someone has Parkinson’s disease or a Parkinson’s syndrome can greatly impact treatment and quality of life.

For example:
  • Treatment Response: PD often responds well to medications that boost dopamine. Parkinson’s syndromes may not.
  • Progression and Prognosis: Atypical parkinsonisms (syndromes) tend to progress more rapidly and may involve additional symptoms like speech, balance, or cognitive difficulties sooner.
  • Specialized Care: Individuals with Parkinson’s syndromes may need tailored therapies, and getting an accurate diagnosis early helps plan appropriate care.

If you or a loved one is experiencing symptoms of parkinsonism, it’s essential to work with a neurologist who specializes in movement disorders to get an accurate diagnosis and treatment plan.
​Support and Resources in Southwest FloridaRegardless of the diagnosis, support plays a critical role in managing life with Parkinson’s disease or Parkinson’s syndrome. For over twenty-five years, the Parkinson’s Association of Southwest Florida (PASWFL) has provided effective programs and services to improve quality of life for people touched by PD and related neurological conditions.
Each week, PASWFL offers over 25 free programs and support groups for members with PD and their care partners. Programs include:
  • Fitness and movement classes
  • Cognitive and speech support
  • Social engagement opportunities
  • Educational workshops
  • Peer support for both individuals and care partners
There are no fees to become a member, and the community is open to anyone in Southwest Florida seeking help, hope, and connection.

Ready to Get Involved? 
Click here to sign up for their newsletter
Click here to become a free member

To learn more, visit www.parkinsonassociationswfl.org and discover how the Parkinson’s Association of Southwest Florida empowers those affected by Parkinson’s disease and Parkinson’s syndrome to live fuller, more connected lives.
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<![CDATA[Is Parkinson’s Disease Hereditary or Genetic? Understanding the Role of Genetics in PD]]>Thu, 12 Jun 2025 10:30:00 GMThttp://parkinsonassociationswfl.org/blog/is-parkinsons-disease-hereditary-or-genetic-understanding-the-role-of-genetics-in-pd
When someone is diagnosed with Parkinson’s disease (PD), a natural question often follows: Is Parkinson’s disease hereditary or genetic? This question not only affects the individual living with the disease but also concerns family members who may worry about their own future health.
Is Parkinson’s Disease Hereditary or Genetic?

The answer is nuanced. Parkinson’s disease is generally considered a multifactorial condition, meaning it is caused by a combination of genetic and environmental factors. While most cases are classified as sporadic, meaning they arise without a known family history or genetic cause, about 10-15% of people with Parkinson’s have a family history of the condition. This suggests a hereditary or genetic component in a small percentage of cases.

Scientists have identified several gene mutations that can increase the risk of developing PD. These include LRRK2, PARK7, PINK1, PRKN (parkin), and SNCA. Some of these mutations are dominant, meaning they can cause the disease even if only one copy of the gene is inherited, while others are recessive and require two copies.

However, having one of these gene mutations does not guarantee a person will develop Parkinson’s disease. Many people with the mutations never show symptoms. This is where environmental triggers, such as exposure to pesticides or heavy metals, as well as lifestyle choices, may come into play.

In summary, Parkinson’s can be genetic in some cases, but the vast majority of diagnoses are not directly linked to hereditary factors. It's a complex interplay that researchers continue to study in depth.

Should You Be Concerned About Family Risk?
If Parkinson’s runs in your family, it’s natural to have concerns. While genetic testing is available, it is usually reserved for research settings or in cases where multiple family members have developed Parkinson’s, particularly at a young age. If you’re worried, speak to a neurologist or a genetic counselor to better understand your individual risk and the value of testing in your situation.

Importantly, a genetic predisposition is not a definitive predictor of disease. Many people live long, healthy lives even if they have a family history of PD.
Support is Available—You’re Not AloneNo matter the cause of your Parkinson’s, support is essential. For over twenty-five years, the Parkinson’s Association of Southwest Florida (PASWFL) has provided effective programs and services that improve the quality of life, educate, enrich, and empower our Southwest Floridians touched by PD and related neurological diseases.

Each week, PASWFL offers more than 25 free programs and support groups for individuals with PD and their care partners. These services include:
  • Movement and fitness classes
  • Educational workshops
  • Speech and occupational therapy
  • Support groups tailored to your stage of PD

There are no fees associated with becoming a member, and the membership application is available online.

Ready to Take the Next Step?
Click here to sign up for their newsletter
Click here to become a free member

To learn more, visit www.parkinsonassociationswfl.org and discover how the Parkinson’s Association of Southwest Florida can help you or a loved one live well with PD—no matter the cause.
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<![CDATA[How Common Is Parkinson’s Disease? Understanding the Reach of a Growing Condition]]>Wed, 11 Jun 2025 11:30:00 GMThttp://parkinsonassociationswfl.org/blog/how-common-is-parkinsons-disease-understanding-the-reach-of-a-growing-condition
Parkinson’s disease (PD) is one of the most recognized neurological disorders in the world, yet many are surprised to learn just how widespread it truly is. So, how common is Parkinson’s disease? Understanding its prevalence can help us appreciate the importance of community support, early diagnosis, and access to resources.
How Common Is Parkinson’s Disease?
Parkinson’s disease is the second most common neurodegenerative disorder, following Alzheimer’s. According to the Parkinson’s Foundation, nearly one million people are living with PD in the United States alone, and that number is expected to climb to 1.2 million by 2030. Worldwide, more than 10 million people are currently affected.

Each year, approximately 90,000 new cases are diagnosed in the U.S., and the risk increases significantly with age. While Parkinson’s is most often diagnosed in individuals over 60, about 4% of cases are diagnosed before the age of 50, known as young-onset Parkinson’s.

Men are about 1.5 times more likely to develop PD than women, and although genetics can play a role, most cases are considered idiopathic — meaning the exact cause is unknown.

Why This Growing Prevalence Matters
The increasing prevalence of Parkinson’s disease poses significant challenges for healthcare systems, caregivers, and the individuals affected. As life expectancy continues to rise and diagnostic capabilities improve, more families will be impacted by PD. This makes awareness, early intervention, and comprehensive support systems more important than ever.

While there is currently no cure, there are treatments — including medication, exercise, and therapy — that can greatly improve quality of life. That’s where local organizations like the Parkinson’s Association of Southwest Florida (PASWFL) come in, offering vital support to people living with Parkinson’s and their care partners.

PASWFL: Supporting Southwest Floridians Living with Parkinson’sFor more than 25 years, the Parkinson’s Association of Southwest Florida (PASWFL) has been dedicated to improving the lives of those impacted by PD and related neurological diseases. Each week, PASWFL provides more than 25 free programs and support groups that are accessible to all members, including:
  • Evidence-based wellness classes
  • Movement and balance programs
  • Educational seminars
  • Support groups for patients and caregivers

All programs are provided free of charge, and there are no fees to become a member. PASWFL creates a sense of belonging for individuals facing the complexities of Parkinson’s, offering resources that empower, educate, and connect.

If you or someone you love is affected by Parkinson’s disease, you are not alone — and help is available right here in Southwest Florida.

Take the First Step Toward SupportDon’t wait to get the support you deserve.

✅ Click here to sign up for PASWFL’s newsletter: https://parkinsonassociationswfl.org/signup-enews.html
Click here to become a member for free:

https://app.waiverforever.com/pending/IYShxD1hGS1592575170
To explore more about how PASWFL can help you live well with Parkinson’s, visit www.parkinsonassociationswfl.org.
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<![CDATA[What Does "Pervasive Support" Mean in Parkinson’s Care?]]>Tue, 10 Jun 2025 10:30:00 GMThttp://parkinsonassociationswfl.org/blog/what-does-pervasive-support-mean-in-parkinsons-care
In the world of Parkinson’s disease (PD), the term "pervasive support" is more than just a phrase — it’s a powerful concept that embodies the kind of consistent, multifaceted, and personalized care needed to help individuals with PD live their best lives. But what does "pervasive support" mean in Parkinson’s care, and why is it so essential?
​Understanding "Pervasive Support" in Parkinson’s DiseasePervasive support refers to a comprehensive, ongoing system of care that addresses every aspect of a person’s well-being — physical, emotional, mental, and social. Unlike episodic or crisis-based care, pervasive support is continuous and integrated, ensuring that individuals with PD and their families receive the help they need, exactly when they need it.

In Parkinson’s care, this means more than just medical appointments. It includes access to exercise programs, emotional counseling, caregiver support, nutrition advice, educational resources, and community involvement. It’s about creating a safety net that wraps around the entire person, acknowledging that PD affects every area of life.

Why Pervasive Support Matters for People with Parkinson’s

Parkinson’s is a progressive, lifelong neurological disease. As it advances, symptoms become more complex, and the needs of both patients and caregivers can increase significantly. Pervasive support ensures that no one faces this journey alone — and that all areas of life are supported, not just the medical symptoms.

Here’s how pervasive support plays out in real life:
  • Exercise & Mobility Programs: To maintain flexibility and balance.
  • Speech & Occupational Therapy: To address communication and daily functioning.
  • Support Groups & Counseling: To cope with emotional challenges.
  • Educational Workshops: To stay informed about the latest in treatment and care.
  • Care Partner Resources: To assist family members and caregivers with the tools they need.

This type of comprehensive support system can improve quality of life, reduce hospitalization, and empower individuals with PD to retain their independence for as long as possible.
PASWFL: Delivering Pervasive Support Every DayIn Southwest Florida, the Parkinson’s Association of Southwest Florida (PASWFL) has been a shining example of what pervasive support looks like in action. For more than 25 years, PASWFL has provided effective, free programs and services designed to enrich and empower the lives of those touched by Parkinson’s disease.

Each week, PASWFL offers over 25 free wellness programs and support groups, including expert-led classes and community events for members and their care partners. These programs address the full spectrum of needs — from physical movement to emotional support — creating the kind of ongoing care that truly defines pervasive support.

There are no fees to become a member, and everyone affected by PD in the region is welcome to join this supportive, empowering community.

Ready to Get the Support You Deserve?Pervasive support starts with connection — and PASWFL is here to help.

Click here to sign up for the PASWFL newsletter: https://parkinsonassociationswfl.org/signup-enews.html
Click here to become a free member: 
https://app.waiverforever.com/pending/IYShxD1hGS1592575170

To learn more, explore all that PASWFL has to offer at www.parkinsonassociationswfl.org — and take the first step toward living well with Parkinson’s today.
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<![CDATA[What Are the Best Exercises for People with Parkinson’s?]]>Mon, 09 Jun 2025 15:00:00 GMThttp://parkinsonassociationswfl.org/blog/what-are-the-best-exercises-for-people-with-parkinsons
Staying active is one of the most powerful tools for managing Parkinson’s disease (PD). But what are the best exercises for people with Parkinson’s? The answer lies in movements that target strength, balance, flexibility, and coordination — all of which can be affected by the progression of PD. Incorporating the right types of physical activity can help maintain mobility, reduce symptoms, and even improve mood and quality of life.
​Why Exercise Matters for Parkinson’s DiseaseParkinson’s disease primarily affects motor function due to the loss of dopamine-producing neurons in the brain. This leads to symptoms such as tremors, stiffness, slowness of movement (bradykinesia), and balance problems. Regular exercise has been shown to not only ease these symptoms but may also slow the progression of the disease.

According to the Parkinson’s Foundation, consistent physical activity can help people with PD improve gait, posture, flexibility, and cognitive function — and it’s never too late to start.

The Best Types of Exercise for People with Parkinson’s:
1. Walking and Treadmill Training
Simple walking, especially with large strides and arm swings, can help improve gait and balance. Treadmill walking with guidance may also improve step length and rhythm.
2. Tai Chi and Qigong
These slow, flowing movements emphasize balance, coordination, and body awareness. Studies show Tai Chi improves stability and reduces falls in people with PD.
3. Boxing (Non-Contact)
Boxing-based fitness programs like “Rock Steady Boxing” are specifically designed for people with Parkinson’s. These high-energy workouts incorporate punching, footwork, agility drills, and balance exercises — all of which can improve strength and confidence.
4. Strength Training
Using light weights or resistance bands helps maintain muscle mass and bone health. Focus on core strength and leg muscles to support posture and stability.
5. Stretching and Yoga
Flexibility exercises ease muscle stiffness and improve range of motion. Yoga, in particular, combines stretching, balance, and breathing exercises — benefiting both the body and mind.
6. Cycling (Stationary or Tandem)
“Forced” cycling, where a person pedals at a pace faster than their voluntary rate, has been shown to improve motor function and reduce tremors in some individuals with PD.
7. Dance and Music Movement
Dance therapies — including tango, ballet, or contemporary styles — engage the brain and body. Movement to music can improve coordination, rhythm, and memory.
You Don’t Have to Exercise Alone — PASWFL Can HelpIf you or a loved one is living with Parkinson’s in Southwest Florida, the Parkinson’s Association of Southwest Florida (PASWFL) is here for you. For over 25 years, PASWFL has provided free programs and services that improve quality of life for those affected by Parkinson’s and related neurological diseases.

Each week, PASWFL offers over 25 free wellness programs and support groups, including exercise classes, speech therapy, and caregiver support. These programs are designed by experts and tailored to meet the needs of those with Parkinson’s — all in a welcoming and supportive community.
There are no fees to become a member, and joining is simple.

Take the First Step Toward Living Well:

Click here to sign up for the PASWFL newsletter: https://parkinsonassociationswfl.org/signup-enews.html
 Click here to become a free member:
https://app.waiverforever.com/pending/IYShxD1hGS1592575170

To learn more about classes, events, and support services, visit www.parkinsonassociationswfl.org. Let PASWFL help you move forward — one step at a time.
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<![CDATA[Which Organs Are Affected by Parkinson’s Disease?]]>Sun, 08 Jun 2025 06:52:27 GMThttp://parkinsonassociationswfl.org/blog/which-organs-are-affected-by-parkinsons-disease
​Parkinson’s disease (PD) is most commonly known for the way it impacts movement, but many people are surprised to learn that Parkinson’s affects far more than just the muscles or limbs. So, which organs are affected by Parkinson’s disease? The answer highlights the complexity of this neurological condition that goes far beyond tremors and stiffness.
Understanding Which Organs Are Affected by Parkinson’s Disease
At its core, Parkinson’s disease is a progressive disorder of the nervous system. The primary organ affected is the brain, specifically a region called the substantia nigra, which is responsible for producing dopamine. As dopamine-producing neurons degenerate, it leads to the classic motor symptoms of Parkinson’s: tremors, rigidity, and slowness of movement.

But the ripple effects of Parkinson’s don’t stop at the brain. This disease can disrupt the function of several other organs and systems in the body:

Organs and Systems Commonly Affected by Parkinson’s:
1. Brain
The primary site of the disease. Parkinson’s causes loss of dopamine-producing neurons, especially in the substantia nigra. This impacts movement, mood, cognition, and coordination.
2. Digestive Tract (Gastrointestinal System)
Constipation is often one of the earliest symptoms of PD. Parkinson’s can slow down the movement of food through the intestines due to reduced nerve stimulation, affecting the entire digestive process.
3. Heart and Circulatory System
Some people with Parkinson’s experience orthostatic hypotension—a drop in blood pressure when standing—due to nervous system involvement. This can lead to dizziness, fainting, or increased risk of falls.
4. Bladder and Urinary System
PD often affects the autonomic nervous system, which controls bladder function. This can result in urinary urgency, frequency, or difficulty emptying the bladder.
5. Lungs and Respiratory Muscles
In more advanced stages, respiratory muscles may be affected, making it harder to take deep breaths or cough effectively. This can increase the risk of pneumonia or breathing complications.
6. Skin (Sweat Glands)
Some individuals with Parkinson’s notice changes in sweating patterns or oily skin due to autonomic dysfunction, which affects skin regulation.
7. Eyes
While not commonly discussed, Parkinson’s can affect vision and eye movements, sometimes making it harder to focus or leading to dry eyes or blurred vision.
Living Well with Parkinson’s—You’re Not Alone
Knowing how Parkinson’s disease affects the body is important, but so is knowing how to live well with it. That’s where the Parkinson’s Association of Southwest Florida (PASWFL) can help. For over 25 years, PASWFL has provided free programs, education, and support services to people living with PD and their families in our local community.

Each week, PASWFL offers more than 25 free programs and support groups—from fitness and speech therapy to education and social support. These services empower individuals and caregivers to manage symptoms and maintain a high quality of life.
There are no fees associated with becoming a member, and the membership application is easy and confidential.

Get Connected and Stay Informed
Learn more by signing up for their newsletter: Click here
It’s free to become a member—join here: Click here

To learn more, visit www.parkinsonassociationswfl.org. The road with Parkinson’s doesn’t have to be walked alone—and with PASWFL, it never is.
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<![CDATA[What Stage of Parkinson’s Is Michael J. Fox Currently In?]]>Sun, 08 Jun 2025 05:43:08 GMThttp://parkinsonassociationswfl.org/blog/what-stage-of-parkinsons-is-michael-j-fox-currently-in
Michael J. Fox has courageously shared his Parkinson’s journey since his diagnosis in 1991. But what stage of Parkinson’s is Michael J. Fox currently in? Over three decades into living with PD, public reports indicate he’s now facing one of the advanced stages of the disease.
What Stage of Parkinson’s Is Michael J. Fox Currently In? 
In a 2020 interview, Fox candidly admitted that his mobility is significantly affected, saying, “Every step now is a frigging math problem, so I take it slow” . That same source noted he’s 30 years into the disease and “in the advanced stages.” This corresponds to Stage 4 or 5 on the standard 5-stage Parkinson’s scale—where balance, coordination, and mobility are seriously impaired .

Although Fox’s symptoms have become more pronounced, including occasional use of a wheelchair and speech difficulties, he continues to engage in advocacy and special projects. His emotional clarity and commitment to research remain strong.
Understanding Parkinson’s Stages:
  1. Stage 1: Mild symptoms, typically on one side of the body.
  2. Stage 2: Symptoms worsen and spread to both sides.
  3. Stage 3: Notable impairment in balance and coordination; falls become more frequent.
  4. Stage 4: Severe symptoms; considerable help needed for daily activities.
  5. Stage 5: Advanced disease; often requires wheelchair assistance or full-time care.
Given Fox's references to mobility struggles and need for care, he falls into the later stages of Parkinson’s disease.

How You Can Still Live Well—and So Can Your Loved Ones

Even in advanced stages, Parkinson’s can be managed with the right support. That’s where the Parkinson’s Association of Southwest Florida (PASWFL) steps in parkinsonassociationswfl.org.

For over 25 years, PASWFL has offered:
  • 25+ weekly free programs and support groups, tailored for individuals with PD and their care partners
  • Wellness classes, educational resources, therapeutic groups, and community events
  • Completely free, no-fee membership—open and accessible to everyone
  • A compassionate network designed to help you live well with PD
Whether you’re newly diagnosed or navigating advanced stages like Fox, PASWFL provides tools, support, and a community to stand with you.

Get Connected and Stay Informed:

 Learn more by signing up for their newsletter:  Click here
It’s free to become a member—join here: Click here
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<![CDATA[Why Is Rosa’s Law So Important?]]>Sat, 31 May 2025 11:00:00 GMThttp://parkinsonassociationswfl.org/blog/why-is-rosas-law-so-important
In the landscape of disability rights and advocacy, one significant piece of legislation stands out for its powerful message and lasting impact--Rosa’s Law. But why is Rosa’s Law so important? The answer lies not just in what the law changes on paper, but in how it reshapes societal attitudes and affirms the dignity of individuals with intellectual and developmental disabilities.
Why Is Rosa’s Law So Important?
Rosa’s Law, passed in 2010, required the removal of the term “mental retardation” from federal health, education, and labor policy, replacing it with the more respectful and appropriate phrase “individual with an intellectual disability.” Named after Rosa Marcellino, a young girl with Down syndrome who, with her family, advocated for this change, the law marked a turning point in how language shapes perception.

Here’s why Rosa’s Law matters so deeply:
  • Language Reflects Respect
    Words carry weight. The outdated term “mental retardation” had become a slur, often used in derogatory or mocking ways. By replacing it with “intellectual disability,” Rosa’s Law helped affirm the humanity and worth of individuals who had too long been spoken about in stigmatizing terms.
  • It Sets a Precedent for Inclusion
    The law wasn’t just a linguistic update—it was a declaration that people with disabilities deserve to be seen and described with dignity. This change paved the way for more inclusive language in both public policy and everyday life.
  • It Was a Victory Driven by Youth and Family
    Rosa’s Law is a powerful example of how advocacy, even from a young person and their family, can lead to national legislative change. It continues to inspire other families and communities to speak up for respect and rights.
  • It Promotes Awareness and Sensitivity
    Beyond policy, Rosa’s Law opened doors to deeper conversations about how we treat individuals with disabilities—in schools, workplaces, healthcare, and media. Awareness is the first step toward real inclusion.
Empowering Communities Through Advocacy and Support
Organizations like the Parkinson’s Association of Southwest Florida (PASWFL) reflect the same spirit of advocacy and support that Rosa’s Law represents. While Parkinson’s disease is different from intellectual disabilities, both communities face challenges related to dignity, quality of life, and public understanding.

For over twenty-five years, PASWFL has provided effective programs and services that improve the quality of life, educate, enrich, and empower our Southwest Floridians touched by Parkinson’s disease and related neurological conditions.

Each week, PASWFL offers more than 25 free programs and support groups for individuals with Parkinson’s and their care partners. These include movement classes, educational workshops, wellness programs, and more.

There are no fees to become a member. You can join or learn more through their website at www.parkinsonassociationswfl.org
👉 Click here to sign up for their newsletter
👉 Click here to become a free member today

Respect begins with language—and with action. Rosa’s Law reminds us that even a single word change can be a giant leap forward for equality.
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<![CDATA[Why Is There No Cure for Parkinson's Disease?]]>Fri, 30 May 2025 11:00:00 GMThttp://parkinsonassociationswfl.org/blog/why-is-there-no-cure-for-parkinsons-disease
One of the most common and pressing questions for those affected by Parkinson’s disease (PD) is: Why is there no cure for Parkinson's disease? Despite decades of research, scientific advances, and new treatments, a definitive cure for this complex neurological condition remains elusive. Understanding why can offer clarity—and hope—for ongoing progress.
Why Is There No Cure for Parkinson's Disease?
Parkinson’s disease is a progressive neurodegenerative disorder that primarily affects movement. It occurs when dopamine-producing neurons in a specific area of the brain (the substantia nigra) gradually die off. Dopamine is a critical neurotransmitter that helps regulate movement, mood, and more. While the core cause seems simple—dopamine cell loss—the underlying mechanisms are anything but.

Here are a few key reasons why a cure is still out of reach:
  • The Cause Is Still Unclear
    In most cases, the root cause of PD remains unknown. While some genetic mutations have been identified in a small percentage of patients, the vast majority of cases are idiopathic (without a known cause). Environmental factors, aging, and genetic predisposition may all play a role, but the exact interactions are still being studied.
  • It’s a Multifactorial Disease
    Parkinson’s isn’t just one disease—it presents differently from person to person and progresses at varying rates. In addition to motor symptoms like tremors and stiffness, PD can involve sleep problems, depression, anxiety, and cognitive decline. This variability makes it difficult to design a one-size-fits-all cure.
  • Brain Cell Regeneration Is Limited
    The central nervous system has a limited capacity to regenerate. Once dopamine-producing neurons are lost, the body doesn’t naturally replace them. Current treatments like levodopa help replenish dopamine, but they don’t stop or reverse the progression of the disease.
  • Challenges in Early Detection
    By the time PD symptoms appear, significant damage has already occurred in the brain. Earlier detection would allow for interventions before irreversible loss, but current diagnostics are limited and mostly based on symptoms, not predictive biomarkers.
  • Curing the Brain Is Inherently Complex
    The human brain is one of the most intricate and least understood organs. Developing a cure for any brain disorder, especially one involving multiple systems and symptoms like PD, is a massive scientific challenge.
Hope Through Support and Research
Although there is no cure yet, advancements in research and supportive care continue to improve quality of life for people with Parkinson’s. Organizations like the Parkinson’s Association of Southwest Florida (PASWFL) play a vital role in this journey.

For over twenty-five years, PASWFL has provided effective programs and services that improve the quality of life, educate, enrich, and empower Southwest Floridians touched by Parkinson’s and related neurological diseases.

Each week, PASWFL offers more than 25 free programs and support groups for individuals with Parkinson’s and their care partners—from movement classes to education and wellness resources.

There are no fees to become a member. You can join or learn more through their website at www.parkinsonassociationswfl.org
👉 Click here to sign up for their newsletter
👉 Click here to become a free member today
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<![CDATA[What Are the Symptoms of Bradykinesia?]]>Thu, 29 May 2025 11:00:00 GMThttp://parkinsonassociationswfl.org/blog/what-are-the-symptoms-of-bradykinesia
Bradykinesia literally means “slow movement,” but the condition goes beyond just moving slowly. It involves a general slowness of voluntary movement and a noticeable reduction in automatic movements. People with bradykinesia often feel like their body is not responding as quickly as their mind expects.
Here are the key symptoms:
  • Slow Movement
    The most obvious symptom is a significant reduction in the speed of motion. This can affect walking, talking, writing, and other daily tasks.
  • Difficulty Initiating Movements
    A common and frustrating symptom is “freezing,” or hesitation in starting a movement. For example, someone might struggle to take the first step when walking or have difficulty beginning to stand up from a chair.
  • Reduced Facial Expression (Facial Masking)
    Individuals may appear less expressive, with a flat or emotionless face due to decreased movement of facial muscles.
  • Shuffling Walk
    Steps become shorter and slower, with the feet barely leaving the ground. Arm swing may also be reduced while walking.
  • Soft or Monotonous Speech
    Bradykinesia can affect the vocal cords, leading to quiet or monotone speech that lacks natural variation.
  • Reduced Dexterity
    Tasks that require fine motor skills, such as buttoning a shirt or handwriting, may become difficult and slow.
  • Fatigue and Muscle Weakness
    Because movements are harder to initiate and maintain, individuals may tire more quickly, further slowing activity.

Bradykinesia varies in severity and can fluctuate throughout the day, especially in response to medication timing. It's often one of the reasons people with Parkinson’s experience difficulties with daily routines and may need support or assistive devices.
Support Is Available at the Parkinson’s Association of Southwest Florida
If you or a loved one are experiencing symptoms like bradykinesia, you’re not alone—and help is available. For over twenty-five years, the Parkinson’s Association of Southwest Florida (PASWFL) has provided effective programs and services that improve the quality of life, educate, enrich, and empower our Southwest Floridians touched by Parkinson’s and related neurological diseases.

Each week, PASWFL offers more than 25 free programs and support groups for members with PD and their care partners. These include movement classes, education sessions, caregiver support, and community-building opportunities.

There are no fees to become a member. You can join or learn more through their website at www.parkinsonassociationswfl.org
👉 Click here to learn more and sign up for their newsletter
👉 Click here to become a free member today
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<![CDATA[What Is the Difference Between Parkinson’s and Essential Tremors?]]>Wed, 28 May 2025 10:00:00 GMThttp://parkinsonassociationswfl.org/blog/what-is-the-difference-between-parkinsons-and-essential-tremors
Tremors are one of the most recognized symptoms associated with neurological conditions, but not all tremors are the same. A common question many people ask is: What is the difference between Parkinson’s and essential tremors? While both involve involuntary shaking, especially in the hands, they are distinct in their causes, symptoms, and treatments.
Understanding Essential Tremors vs. Parkinson’s Disease
Essential Tremor (ET) is a neurological disorder that primarily causes rhythmic shaking, most often in the hands, but it can also affect the head, voice, and other parts of the body. ET is considered a movement disorder and tends to run in families, suggesting a genetic component.

Parkinson’s Disease (PD) is a progressive neurological condition that affects movement, balance, and coordination. Tremors are a common symptom, but PD also includes muscle stiffness, slow movements (bradykinesia), and postural instability.

What Is the Difference Between Parkinson’s and Essential Tremors?
While they may appear similar, there are key differences:
  • Timing of Tremors:
    • Essential Tremor: Shaking occurs during voluntary movement, such as eating or writing.
    • Parkinson’s Disease: Tremors typically happen at rest, and may decrease with purposeful movement.
  • Location of Tremors:
    • ET: Usually affects both hands symmetrically, and may extend to the head or voice.
    • PD: Often begins on one side of the body, commonly in one hand, and may progress asymmetrically.
  • Associated Symptoms:
    • ET: Rarely includes other symptoms beyond the tremor.
    • PD: Includes slow movement, rigid muscles, shuffling walk, and facial masking.
  • Progression:
    • ET: Can progress slowly but doesn’t typically lead to serious disability.
    • PD: Is a degenerative disease that can lead to significant motor and non-motor complications over time.
  • Response to Medication:
    • ET: Often responds to beta-blockers or anti-seizure medications.
    • PD: Treated with medications like Levodopa/Carbidopa, which increase dopamine in the brain.
Importance of Accurate Diagnosis
Because tremors can look similar in the early stages, a thorough neurological evaluation is essential. Movement disorder specialists use clinical exams, medical history, and in some cases, brain imaging, to distinguish between the two conditions.

Getting the right diagnosis means accessing the right care—and that’s where support organizations can make all the difference.


Support and Resources from PASWFL
For over twenty-five years, the Parkinson’s Association of Southwest Florida (PASWFL) has provided effective programs and services to improve quality of life, educate, enrich, and empower those touched by PD and related neurological diseases. Each week, PASWFL offers more than 25 free programs and support groups for members with PD and their care partners.

There are no fees to become a member. You can join or learn more through their website at www.parkinsonassociationswfl.org
To stay informed and connected:
👉 Click here to sign up for their newsletter
👉 Click here to become a free member
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<![CDATA[What Causes Secondary Parkinsonism?]]>Tue, 27 May 2025 11:00:00 GMThttp://parkinsonassociationswfl.org/blog/what-causes-secondary-parkinsonism
Parkinson’s disease is the most well-known form of parkinsonism, but it’s not the only one. A less commonly discussed but equally important condition is secondary parkinsonism. So, what causes secondary parkinsonism, and how is it different from primary Parkinson’s disease?
What Causes Secondary Parkinsonism?
Secondary parkinsonism refers to a group of conditions that present with similar motor symptoms to Parkinson’s disease—such as tremor, rigidity, slowness of movement, and balance problems—but are triggered by external or identifiable causes rather than by the neurodegenerative process that defines classic Parkinson’s disease.

Here are the most common causes of secondary parkinsonism:

1. Medications
Some drugs, particularly antipsychotics (used for mental health conditions like schizophrenia) and certain anti-nausea medications, can block dopamine receptors in the brain. This mimics the dopamine deficiency seen in Parkinson’s disease and leads to parkinsonian symptoms. In many cases, symptoms improve once the medication is discontinued.
2. Toxins
Exposure to certain environmental toxins and chemicals—such as carbon monoxide, manganese, and some pesticides—has been linked to secondary parkinsonism. These substances can damage the brain's dopamine-producing neurons.
3. Head Trauma
Repeated head injuries, especially those seen in contact sports or traumatic accidents, can lead to brain damage that mimics Parkinson’s symptoms. This condition is sometimes seen in former athletes and is referred to as post-traumatic parkinsonism.
4. Stroke
When strokes occur in parts of the brain that control movement—particularly the basal ganglia—they can cause vascular parkinsonism. This condition may not always respond to Parkinson’s medications and tends to affect the lower body more than the upper body.
5. Brain Infections and Other Neurological Disorders
Infections such as encephalitis (inflammation of the brain) or diseases like Wilson’s disease (a rare genetic disorder affecting copper metabolism) can cause symptoms of parkinsonism.
6. Normal Pressure Hydrocephalus (NPH)
This condition involves an abnormal buildup of cerebrospinal fluid in the brain, causing walking difficulties, dementia, and urinary incontinence. NPH is often misdiagnosed as Parkinson’s but requires different treatment.

Unlike primary Parkinson’s disease, which is progressive and without a known single cause, secondary parkinsonism has identifiable causes and may be reversible or manageable if treated early and appropriately.
Support and Resources from PASWFL
Whether you’re living with Parkinson’s disease or secondary parkinsonism, support and education are essential. The Parkinson’s Association of Southwest Florida (PASWFL) has served the community for over 25 years by offering free, effective programs and services designed to improve quality of life for those affected by Parkinson’s and related neurological disorders.

Each week, PASWFL hosts more than 25 free programs and support groups for individuals with Parkinson’s and their care partners. Membership is completely free, and anyone affected by PD or related conditions is encouraged to join and take part.

For more information, visit www.parkinsonassociationswfl.org.
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<![CDATA[Can Parkinson’s Go Into Remission?]]>Mon, 26 May 2025 11:00:00 GMThttp://parkinsonassociationswfl.org/blog/can-parkinsons-go-into-remission
Parkinson’s disease (PD) is a progressive neurodegenerative condition that primarily affects movement, but can also impact mood, cognition, and other non-motor functions. A common and hopeful question many patients and families ask is: Can Parkinson’s go into remission?

Understanding the nature of the disease and what remission means in this context is key to managing expectations and exploring strategies for better quality of life.
Can Parkinson’s Go Into Remission?
In the traditional medical sense, Parkinson’s disease does not go into remission. Unlike some illnesses such as certain cancers or autoimmune diseases, where remission can mean a complete or temporary disappearance of symptoms, Parkinson’s is a chronic, progressive condition. This means the disease generally advances over time, and currently, there is no cure that halts or reverses its underlying neurodegenerative processes.

However, some people with Parkinson’s do experience periods where their symptoms improve or stabilize. These temporary improvements can result from optimized treatment, lifestyle changes, physical activity, and other supportive therapies. While not remission in the strictest medical definition, these episodes can feel like a “remission” to those experiencing better mobility, less tremor, or improved mood and energy.

There have also been rare cases where people report long-term improvements after specific interventions, such as deep brain stimulation or lifestyle overhauls. Yet these are exceptions, not the rule, and more research is needed to understand why this occurs in some individuals and not others.
Living Well With Parkinson’s Despite the Lack of Remission
Although Parkinson’s doesn’t go into remission in the classic sense, many people live fulfilling, meaningful lives by actively managing their condition. Treatment plans often include a combination of medication (such as carbidopa-levodopa), exercise, physical therapy, speech therapy, and psychological support. In fact, regular physical activity has been shown to slow progression and significantly improve symptoms in many individuals.

For residents of Southwest Florida, support is close to home. The Parkinson’s Association of Southwest Florida (PASWFL) has been providing effective programs and services for over 25 years. These programs aim to educate, enrich, and empower individuals and families touched by Parkinson’s disease and related neurological conditions.

Each week, PASWFL offers:
  • More than 25 free programs and support groups
  • Resources for both individuals with Parkinson’s and their care partners
  • No-cost access to educational, wellness, and therapeutic activities

Membership is free and open to all who are affected by Parkinson’s in the region.
Join the Parkinson’s Association of Southwest Florida Community
If you or someone you love is navigating Parkinson’s disease, don’t do it alone. PASWFL offers a caring and knowledgeable community to help you live your best life, even in the absence of a cure. For more information, visit www.parkinsonassociationswfl.org.
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<![CDATA[Can Stress Cause Parkinson’s?]]>Sun, 25 May 2025 12:00:00 GMThttp://parkinsonassociationswfl.org/blog/can-stress-cause-parkinsons
When it comes to neurological conditions like Parkinson’s disease, people often wonder about the role of lifestyle factors in the development or progression of the condition. One of the most commonly asked questions is: Can stress cause Parkinson’s?

​While stress is known to impact overall health in many ways, its direct link to causing Parkinson’s disease is still being explored
Can Stress Cause Parkinson’s?
To answer this question directly: There is no scientific evidence that stress causes Parkinson’s disease. Parkinson’s is a neurodegenerative disorder primarily caused by the loss of dopamine-producing neurons in the brain, particularly in an area called the substantia nigra. The exact reason why these neurons deteriorate is still unclear, but genetics and environmental factors are believed to play a role.

That said, stress can play a significant role in how Parkinson’s symptoms are experienced and managed. People living with Parkinson’s often report that their symptoms—such as tremors, stiffness, and anxiety—worsen during periods of emotional or physical stress. Chronic stress can impact brain health and exacerbate inflammation, which may influence disease progression, though it is not a proven cause.

In animal studies, chronic stress has been shown to affect dopamine levels and increase vulnerability in dopamine-producing neurons. While this does not prove causation in humans, it suggests that managing stress is still an essential aspect of living well with Parkinson’s disease.
Managing Stress and Parkinson’s Disease
Although stress doesn't cause Parkinson’s, managing stress effectively is crucial for people with Parkinson’s. Stress can aggravate motor and non-motor symptoms, increase fatigue, disrupt sleep, and affect overall quality of life. That’s why building strong support systems, incorporating physical activity, mindfulness, and staying socially connected are so important.

This is where organizations like the Parkinson’s Association of Southwest Florida (PASWFL) make a tremendous impact. For more than 25 years, PASWFL has offered free programs and services that improve quality of life and empower individuals and families affected by Parkinson’s and related neurological diseases.

Each week, PASWFL provides:
  • Over 25 free support groups and wellness programs
  • Resources for managing symptoms and reducing stress
  • Opportunities for connection and education for both individuals with PD and their care partners

Their services are completely free, and becoming a member is simple and accessible. Whether it’s through movement classes, support sessions, or mindfulness programs, PASWFL offers meaningful tools for reducing stress and enhancing well-being.

Join the Parkinson’s Association of Southwest Florida Community
If you or a loved one is living with Parkinson’s disease in Southwest Florida, consider joining PASWFL’s supportive community. Together, you can take steps to manage stress and live well with Parkinson’s. For more information, visit www.parkinsonassociationswfl.org.
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<![CDATA[How Long Can You Live with Parkinson’s?]]>Sat, 24 May 2025 10:30:00 GMThttp://parkinsonassociationswfl.org/blog/how-long-can-you-live-with-parkinsons
A Parkinson’s diagnosis can bring up many questions, but one of the most common—and most personal—is: How long can you live with Parkinson’s disease? It’s a question rooted in concern, hope, and the need for clarity.
​Thankfully, with early detection, proper treatment, and supportive care, many people with Parkinson’s live full and meaningful lives for many years after diagnosis.
How Long Can You Live with Parkinson’s?
Parkinson’s disease is a progressive neurological condition, meaning it develops and changes over time. However, it is not considered a fatal disease. Most people with Parkinson’s live for many years—often decades—after diagnosis. On average, research suggests that life expectancy for individuals with Parkinson’s is only slightly reduced compared to the general population, especially when diagnosed after the age of 60.

That said, life expectancy can vary depending on several factors, including:
Age at onset: Those diagnosed at a younger age generally live longer.
  • Overall health: Coexisting medical conditions can influence outcomes.
  • Access to care: Regular medical management, physical therapy, and community support greatly improve quality of life and long-term health.
  • Type of Parkinsonism: People with atypical Parkinsonian syndromes (like multiple system atrophy or progressive supranuclear palsy) may experience a faster progression and a different life expectancy compared to those with idiopathic Parkinson’s disease.
Living Well with Parkinson’s: It’s Possible
Although Parkinson’s is a chronic condition, it is manageable. Medication, physical activity, mental health support, and a strong support network can help those with Parkinson’s maintain their independence and well-being for many years.

This is where organizations like the Parkinson’s Association of Southwest Florida (PASWFL) make a significant difference. For over twenty-five years, PASWFL has been a trusted resource for those living with Parkinson’s and related neurological conditions.

They offer:
  • Over 25 free weekly programs for individuals with Parkinson’s and their care partners
  • Educational resources on managing symptoms and understanding the disease
  • Support groups that reduce isolation and offer hope
  • A welcoming and inclusive community focused on empowerment and enrichment

There are no fees to become a member, and the programs are open to all residents of Southwest Florida touched by Parkinson’s disease.

Join the PASWFL Community
The journey with Parkinson’s doesn’t have to be faced alone. With the right resources, tools, and people by your side, it is possible to live well and find joy and connection every day.
  • Click here to sign up for the PASWFL newsletter and stay informed.
  • Click here to become a member for free and access the support you deserve.
For more information about programs and services, visit www.parkinsonassociationswfl.org.
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<![CDATA[What Foods Should You Eat with Levodopa Carbidopa? Nutrition Tips for People with Parkinson’s]]>Fri, 23 May 2025 12:00:00 GMThttp://parkinsonassociationswfl.org/blog/what-foods-should-you-eat-with-levodopa-carbidopa-nutrition-tips-for-people-with-parkinsons
When managing Parkinson’s disease, medications like levodopa/carbidopa (often known by the brand name Sinemet) are critical in controlling symptoms. But did you know that what you eat can significantly affect how well these medications work?

​One of the most frequently asked questions by people living with Parkinson’s is: What foods should you eat with levodopa carbidopa? Understanding the answer can make a real difference in symptom control and overall well-being.
What Foods Should You Eat with Levodopa Carbidopa?
Levodopa is the gold standard for treating the motor symptoms of Parkinson’s disease. However, it competes with dietary protein for absorption in the digestive system and for transport to the brain. That’s why timing your meals and choosing the right foods is essential for optimizing the medication’s effectiveness.

1. Low-Protein Meals Around Medication Times
One of the most important tips is to take levodopa/carbidopa on an empty stomach or with a low-protein snack, such as dry toast, applesauce, or fruit. This helps ensure that the medication is absorbed efficiently without interference from protein.

Try to avoid high-protein meals (like meat, cheese, and eggs) at the same time as taking your medication. Instead, schedule higher-protein meals later in the day, once your medication has had a chance to take effect.

2. Hydration and Fiber Are Key
Levodopa can sometimes cause constipation, a common issue for people with Parkinson’s. Including high-fiber foods like vegetables, fruits, whole grains, and legumes, along with plenty of water, can help keep your digestive system moving.

3. Foods That Help with Side Effects
Some people experience nausea when first starting levodopa/carbidopa. Ginger tea, plain crackers, or eating small, frequent meals may ease that discomfort. Always talk to your doctor before making dietary changes if you experience side effects.

4. Watch for Vitamin Deficiencies
Long-term levodopa use can lower vitamin B6, B12, and folate levels, which are vital for nerve function. Consider incorporating foods rich in these vitamins—like leafy greens, fortified cereals, and lean meats—or ask your healthcare provider about supplements.
Nutrition and Support Go Hand-in-Hand
Living with Parkinson’s is about more than just medication—it’s about support, education, and community. The Parkinson’s Association of Southwest Florida (PASWFL) has been helping individuals and families live well with Parkinson’s for over 25 years.

PASWFL offers:
  • More than 25 free wellness programs and support groups each week
  • Expert-led education on nutrition, medication, and symptom management
  • A compassionate community of members and care partners

And the best part? Membership is completely free.
Visit www.parkinsonassociationswfl.org to learn more about their evidence-based programs designed to enrich and empower those affected by Parkinson’s and related neurological conditions.

Ready to Take the Next Step?
​There are no fees to become a member, and the application is available online.
  • Click here to sign up for the PASWFL newsletter.
  • Click here to join PASWFL for free and gain access to their full range of support services.
​Good nutrition and community support can help you get the most out of your Parkinson’s treatment—starting with what you eat alongside levodopa/carbidopa.
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