A Parkinson’s diagnosis often brings an immediate question: “What happens next?” One of the biggest concerns for individuals and families is how quickly Parkinson’s disease will progress and how much it will eventually affect daily life. The truth is that Parkinson’s progression is highly individual, and there is no reliable timetable that applies to everyone.

​Wondering what the next five, 10, or even 20 years could look like? Understanding how Parkinson’s progresses—and what can influence that progression—can replace some of the uncertainty with knowledge and a plan.

Parkinson’s Usually Progresses Gradually
Parkinson’s disease is a progressive neurological disorder, meaning symptoms generally change over time. However, progression does not necessarily happen quickly or at the same rate throughout a person’s life.
Some people continue working, traveling, exercising, and participating in activities they enjoy for many years after diagnosis. Others experience more noticeable changes sooner.
Importantly, Parkinson’s is not a condition where receiving a diagnosis automatically means someone will rapidly lose independence.

Why Does Parkinson’s Progress at Different Rates?
There is no single factor that determines how quickly Parkinson’s will progress.
Researchers and healthcare professionals consider several factors, including:

• Age when symptoms begin
• Overall health
• Type and severity of symptoms
• Balance and walking difficulties
• Cognitive changes
• Response to Parkinson’s medications
• Other medical conditions
• Individual differences in the underlying disease

This is why comparing one person's Parkinson’s journey with another person's can be misleading.
Two people diagnosed with Parkinson’s at the same age can have very different experiences.

What Are the Stages of Parkinson’s Disease?
Healthcare professionals sometimes use staging systems to describe how Parkinson’s symptoms affect a person's movement and independence.
A commonly used system is the Hoehn and Yahr scale, which generally describes Parkinson’s from earlier stages with symptoms primarily affecting one side of the body through more advanced stages involving significant balance and mobility challenges.
However, staging is not a precise prediction of the future.
A person can remain in a particular stage for years, and progression does not always happen in a perfectly predictable sequence.

What Happens in Early Parkinson’s?
Early Parkinson’s may involve relatively mild symptoms such as:

• Tremor
• Stiffness
• Slowness of movement
• Changes in handwriting
• Reduced arm swing
• Changes in walking
• Loss of smell
• Sleep disturbances
• Constipation
• Depression or anxiety

Some symptoms may be subtle enough that they do not significantly interfere with everyday activities.
This is also a time when establishing a relationship with a neurologist or movement-disorder specialist can be valuable.

​What Happens as Parkinson’s Progresses?
Over time, some people experience increasing difficulty with movement, balance, walking, or daily activities.
Potential changes can include:

• More noticeable stiffness or slowness
• Greater difficulty walking
• Freezing of gait
• Balance problems
• Falls
• Speech or swallowing difficulties
• Increasing need for assistance with daily activities

Not everyone develops all of these symptoms, and they can occur at different times.
Treatment can also change throughout the course of Parkinson’s to address changing symptoms and individual needs.

Can Treatment Slow Parkinson’s Progression?
Currently, there is no cure for Parkinson’s disease and no treatment proven to stop the underlying disease completely.
However, treatment can make a significant difference in managing symptoms and maintaining quality of life.
Medications, physical therapy, occupational therapy, speech therapy, exercise, nutrition, mental-health support, and other approaches may all play important roles in Parkinson’s care.
Regular medical follow-up allows treatment to be adjusted as symptoms change.

Can Exercise Help People With Parkinson’s?
Exercise is an important part of living well with Parkinson’s disease.
Depending on a person's abilities and medical needs, exercise may help support:

• Strength
• Flexibility
• Balance
• Mobility
• Cardiovascular fitness
• Confidence
• Overall quality of life

A physical therapist or qualified exercise professional can help develop an appropriate program.
The goal isn't necessarily to prevent Parkinson’s from progressing. Rather, maintaining strength, mobility, and function can help a person remain active and independent for as long as possible.

Does Parkinson’s Always Lead to Severe Disability?
No.
Parkinson’s affects people differently, and a diagnosis does not tell you exactly how much disability someone will eventually experience.
Some individuals maintain a high level of independence for many years. Others require additional assistance as their symptoms progress.
Because Parkinson’s is so individual, healthcare providers focus on the person's actual symptoms, abilities, goals, and quality of life rather than relying solely on a predicted timeline.

What Can You Do After a Parkinson’s Diagnosis?
Instead of trying to predict exactly what will happen years from now, focus on what can be done today.
That may include:

1. Establishing appropriate medical care.
2. Staying physically active.
3. Addressing symptoms early.
4. Maintaining social connections.
5. Participating in therapy and exercise programs.
6. Planning for changes without assuming the worst.
7. Building a strong support network.

Living with Parkinson’s is not simply about managing symptoms. It is also about maintaining purpose, independence, relationships, and quality of life.

Questions People Ask About Parkinson’s Progression
How long can someone live with Parkinson’s disease?
Parkinson’s itself is not necessarily a rapidly fatal disease. Life expectancy varies considerably depending on age, overall health, complications, and the individual's disease course.
Does Parkinson’s always get worse?
Parkinson’s is progressive, but the rate and nature of progression vary significantly from person to person.
Can Parkinson’s progression be slowed?
There is currently no proven way to stop the underlying progression, but treatment, exercise, rehabilitation, and management of symptoms can help preserve function and quality of life.
How long does each stage of Parkinson’s last?
There is no standard length of time for each stage. Some people remain in earlier stages for many years.
Can someone with Parkinson’s remain independent?
Yes. Many people with Parkinson’s remain independent for years, although the level of independence can change as symptoms progress.
Conclusion: Parkinson’s Does Not Come With a Stopwatch
It is completely understandable to want to know exactly how quickly Parkinson’s will progress. But there is no universal Parkinson’s timeline.
A diagnosis is the beginning of a journey—not a prediction of exactly how that journey will unfold.
With appropriate medical care, physical activity, rehabilitation, education, social connection, and support, people with Parkinson’s can take meaningful steps toward maintaining independence and living well.

Why Support Matters
A diagnosis of any form of Parkinson’s can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida at www.paswfl.org or call 239-417-3465.
For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech Exercise classes
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter
👉 Click here to become a member—it’s free and confidential
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

When most people hear “Parkinson’s disease,” they immediately think of tremors. But tremor is only one possible symptom of Parkinson’s—and some people with Parkinson’s never develop a noticeable tremor. Changes in movement, balance, sleep, smell, mood, speech, and everyday activities may appear before or alongside the more recognizable motor symptoms.

Could changes you've been brushing off as aging actually be worth discussing with your doctor? Keep reading to learn 12 Parkinson’s symptoms beyond tremors that you should know—and why recognizing them early matters.

1. Changes in Walking
Walking may become slower or less natural. A person might take smaller steps, shuffle their feet, have difficulty turning, or experience a feeling that their feet are temporarily “stuck” to the floor. This is called freezing of gait.
Changes in walking can sometimes be subtle at first and may be noticed by family members before the individual recognizes them.
2. Balance Problems
Parkinson’s can affect posture, coordination, and balance. Someone who was previously steady may begin feeling less stable when turning, getting up from a chair, or walking in crowded or unfamiliar environments.
Falls or increasing difficulty recovering balance should be discussed with a healthcare professional.
3. Stiffness or Muscle Rigidity
Muscle stiffness, known as rigidity, is another common motor symptom. It may affect the shoulders, arms, legs, neck, or other areas of the body.
Some people notice stiffness when getting dressed, turning in bed, reaching for objects, or moving after sitting for a while.
4. Changes in Handwriting
A person's handwriting may gradually become smaller and more cramped. This symptom is called micrographia.
You might notice that writing a signature, filling out a form, or taking notes becomes increasingly difficult.
5. Reduced Facial Expression
Parkinson’s can reduce automatic facial movements. A person may appear less expressive or may blink less frequently.
This does not necessarily mean the person is unhappy or uninterested. The change can result from reduced movement of the facial muscles.
6. Changes in Speech or Voice
Speech may become softer, quieter, or more monotone. Some people may begin speaking more quickly, mumbling, or having difficulty making their voice heard.
Speech-language therapy can help many people address communication changes associated with Parkinson’s.

7. Loss or Reduction of Smell
A decreased sense of smell, called hyposmia, or loss of smell, called anosmia, can occur in Parkinson’s disease. In some individuals, changes in smell may appear years before noticeable movement symptoms.
However, loss of smell is common for many reasons, so it does not mean someone has Parkinson’s disease by itself.
8. Sleep Problems
Sleep changes can occur with Parkinson’s and may sometimes appear before a diagnosis.
Possible changes include insomnia, excessive daytime sleepiness, restless sleep, or acting out dreams. A condition called REM sleep behavior disorder can cause a person to physically act out vivid dreams.
Persistent or unusual sleep changes should be discussed with a healthcare professional.
9. Constipation and Other Autonomic Symptoms
Parkinson’s can affect the autonomic nervous system, which controls many functions that happen automatically.
Constipation may occur, along with problems such as changes in blood pressure when standing, urinary symptoms, or sweating changes.
These symptoms have many possible causes, so they should be evaluated in context rather than assumed to indicate Parkinson’s.
10. Depression, Anxiety, or Apathy
Parkinson’s affects more than movement. Depression, anxiety, apathy, and other emotional changes can occur as part of the disease.
A person may lose interest in activities, withdraw socially, experience persistent worry, or have difficulty getting motivated to start tasks.
These symptoms deserve attention because treating mental and emotional health is an important part of living well with Parkinson’s.
11. Slowness of Movement
Bradykinesia, or slowed movement, is one of the major motor symptoms of Parkinson’s disease.
Everyday tasks may gradually take longer, including buttoning clothing, brushing teeth, preparing food, getting out of a chair, or walking.
The change can be so gradual that a person may not immediately recognize it.
12. Changes in Posture or Movement
A person with Parkinson’s may begin standing more stooped or leaning forward. Arm swing while walking may decrease, sometimes more noticeably on one side.
One-sided changes can be particularly important to mention to a healthcare provider.

​Does Everyone With Parkinson’s Have Tremors?
No. Not everyone with Parkinson’s disease develops a tremor.
Parkinson’s symptoms vary significantly from person to person. Some people primarily experience stiffness and slowness, while others may have balance, walking, speech, sleep, or non-motor symptoms.
That is why looking at the entire pattern of symptoms is more useful than focusing on tremor alone.

When Should You Talk to a Doctor?
One symptom by itself does not mean someone has Parkinson’s disease. Many of these symptoms—including constipation, depression, sleep problems, loss of smell, and balance changes—can occur for numerous other reasons.
However, it is worth talking with a healthcare professional if you notice persistent, progressive, or unexplained changes, particularly when several symptoms occur together.
A neurologist, particularly one who specializes in movement disorders, can evaluate symptoms and determine whether additional testing or monitoring is appropriate.
​
Why Early Recognition Matters
Recognizing potential Parkinson’s symptoms does not mean jumping to a diagnosis. Instead, it means paying attention to changes and seeking appropriate medical guidance.
Early evaluation can help identify the cause of symptoms, address treatable problems, and connect individuals with resources that can support physical, emotional, and social well-being.

Why Support Matters
A diagnosis of any form of Parkinson’s can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida at www.paswfl.org or call 239-417-3465.

For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.
Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech Exercise classes
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter:
https://parkinsonassociationswfl.org/signup-enews.html
👉 Click here to become a member—it’s free and confidential:
https://parkinsonassociationswfl.org/signup.html

Aware in Care: How to Protect Yourself During a Hospital Stay With Parkinson's Disease
Most people assume a hospital is the safest place to be. For people with Parkinson's disease, that assumption can be dangerous. At a recent PD Talk hosted by the Parkinson's Association of Southwest Florida, Annie Brooks, director of education for the Florida Chapter of the Parkinson's Foundation, explained why hospital stays carry outsized risk for the Parkinson's community, and what a free kit can do about it.
​
Of every 12 people with Parkinson's disease, about four will be hospitalized this year. Of those four, three won't receive their medication on time, every single time. Keep reading to see why that happens, and the free tools built to stop it.
​

Why Are Hospitals Risky for People with Parkinson's Disease?
Hospital staff often don't know that Parkinson's medication timing is critical, that certain common medications are unsafe for Parkinson's patients, or that symptoms like hallucinations and blood pressure drops can be part of the disease. This leads to missed, delayed, omitted, or substituted medications, which the Parkinson's Foundation's free Aware in Care program is designed to help prevent.

The Data: Why Parkinson's Disease Raises Hospital Risk
Brooks shared research showing that people with Parkinson's disease are hospitalized more often than their peers and stay longer once admitted, sometimes by two days, sometimes by two weeks. Over 60 percent are discharged to a long-term care facility rather than home, and nearly 4 percent of Parkinson's-related hospital visits result in death. Brooks was direct about why: avoidable medication errors are common, and hospital staff frequently don't recognize how serious the consequences can be.
​
Four Ways Medication Errors Happen
Brooks broke hospital medication errors into four categories: missed (a dose overlooked because staff didn't know to give it), omitted (skipped on purpose based on a mistaken assumption, such as before surgery), delayed (given outside the precise timing a neurologist has fine-tuned), and substituted (swapped for a different formulation, such as generic or continuous-release versions, that don't behave the same way). She compared Parkinson's medication to insulin for someone with diabetes: mistimed doses aren't a minor inconvenience, they can trigger real physical and cognitive complications.

What's Inside the Free Aware in Care Kit
The Parkinson's Foundation's Aware in Care kit includes a hospital fact sheet on medications to avoid, a wallet-sized medical alert card, a fillable medication form, a hospital action plan with admission and emergency checklists, and information cards for deep brain stimulation and Duopa. A pre-drafted doctor's letter, ready for a physician's signature, instructs hospital staff not to change medications without consulting the patient's doctor. The full kit is free to download at parkinson.org/awareincare, and a physical version with a carrying bag is available for an $8 shipping fee, which the Foundation will waive for anyone who calls its helpline.

Special Considerations Worth Flagging in Advance
Brooks highlighted two conditions hospital staff frequently overlook: hallucinations or delusions related to Parkinson's disease or its medications, and neurogenic orthostatic hypotension, a sudden drop in blood pressure upon standing that can cause lightheadedness. The kit includes space to flag both, so care teams aren't caught off guard.
​
It's Not Just Hospitals: Rehab Facilities Face the Same Risk
During the Q&A, one attendee described a 21-day rehab stay where it took nearly a week to get medications correctly recorded. Brooks confirmed this is a known gap. All of the Aware in Care tools apply equally to rehab facilities, assisted living, and nursing homes, not just hospitals.

Questions People Ask
What is the Aware in Care program? Aware in Care is a free Parkinson's Foundation program that provides tools, including a medical alert card, medication form, and doctor's letter, to help people with Parkinson's disease and their care partners advocate for safe hospital care.

Why are Parkinson's patients more likely to be discharged to long-term care? Avoidable medication errors during hospitalization can worsen symptoms and complications, which the Parkinson's Foundation says contributes to fewer patients being well enough to return directly home.

Should I bring my medications in original bottles to the hospital? Yes. Most hospitals and long-term care facilities require original bottles to verify and safely dispense a patient's actual prescriptions.
Is the Aware in Care kit free? Yes. All materials are free to download at parkinson.org/awareincare, and a physical kit is available for an $8 shipping fee, which can be waived by calling the Foundation's helpline.
​
Conclusion
A hospital visit with Parkinson's disease doesn't have to mean losing ground. As Brooks emphasized, the tools that make the biggest difference, a medication list, a doctor's letter, and a plan, take only a few minutes to prepare and can be used from admission through discharge. Preparing before a crisis, not during one, is what gives patients and care partners the best chance of leaving the hospital in the same shape they arrived.

​Why Support Matters
A diagnosis of any form of Parkinson's can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson's and related conditions, contact the Parkinson's Association of Southwest Florida at www.paswfl.org or call 239-417-3465.
​
For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson's disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech Exercise classes
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson's or have been recently diagnosed, you don't have to face it alone.
👉 Click here to sign up for the PASWFL newsletter
👉 Click here to become a member…it's free and confidential
To learn more, visit www.paswfl.org and discover the power of support, education, and community.
You don't have to live in SWFL to benefit from membership to the PASWFL. Membership is free and open to anyone with PD, their care partners or family members.

Nearly one million Americans are living with Parkinson's disease today, and every 11 seconds, an older adult is treated in an emergency room for a fall. At a recent PD Talk hosted by the Parkinson's Association of Southwest Florida, certified trainer and Balance University founder Chris Williams shared research that reframes falls entirely: they are not an inevitable part of aging or Parkinson's disease.
​
Here's the test Williams uses to predict life expectancy in seconds: can you stand on one foot for ten seconds? Keep reading to find out why that matters, and what you can do about it.

Can Balance Training Really Help Prevent Falls in Parkinson's Disease?
Yes. Balance depends on three trainable systems, vision and inner ear (vestibular), foot pressure sensors (mechanoreceptors), and limb-position sensors (proprioceptors), working together with muscle strength. Because the brain remains adaptable at any age, regular balance and strength exercises can measurably improve stability and reduce fall risk in people with Parkinson's disease.

Why Falls Are a Serious Risk with Parkinson's Disease
Williams opened with sobering numbers: nearly 90,000 Americans are diagnosed with Parkinson's disease each year, and an older adult dies from a fall-related injury roughly every 19 minutes. For adults over 80, a significant fracture from a fall, such as a broken hip, carries only about a 50 percent survival rate.

He illustrated the stakes with a story from his own career: his first client, a former Navy minesweeper captain, used a towel bar for leverage to stand up and fell when it gave way, fracturing his shoulder and hip. He passed away about 16 months later.
​
The Simple Test That Predicts Life Expectancy
A peer-reviewed study published in the British Journal of Sports Medicine found that adults who cannot stand on one foot for at least 10 seconds have a notably shorter life expectancy than those who can. Williams uses a 15-second single-leg stance as one of several quick self-assessments; needing to steady yourself twice or more suggests an elevated fall risk, he said, and that's exactly the population balance training is designed to help.

How Your Body Balances: Three Systems Working Together
Balance relies on three systems feeding information to the brain: the vestibular system (inner ear and vision), mechanoreceptors (pressure sensors in the feet), and proprioceptors (sensors that track limb position). Williams also described "freezing" episodes, which have no single known cause but can be triggered by medication, stress, or crowded spaces; physical contact, like touching a person's arm, can sometimes help the brain re-engage.

Why Exercise Physically Changes the Brain
Williams pointed to decades-old research showing that exercise and social engagement trigger the release of brain-derived neurotrophic factor (BDNF), a protein that supports the growth of brain cells, including in regions tied to learning and memory. A 2007 German study found that people who exercised learned new information roughly 20 percent faster than those who didn't. The takeaway: regular movement doesn't just strengthen muscles, it helps the brain relearn where the body's balance limits are.

The Four Pillars of Better Balance
Williams structures his Balance University program around four pillars: leg strength, posture, flexibility, and balance itself. Leg strength, he said, is "gold," since it affects everything from standing up safely to digestion. Posture determines whether the body can shift its center of mass to stay upright. Flexibility, especially in the hamstrings and chest, supports proper movement patterns. Balance exercises, done last, take advantage of a brain already primed by exercise.
​
A Simple Daily Exercise Worth Trying
One favorite: sitting down in slow motion instead of dropping into a chair, which works the leg muscles differently than standing up does. Williams recommends doing it five to ten times daily. His broader advice: never let more than two days pass without some form of movement, and walk whenever possible.

​Questions People Ask
Can Parkinson's disease patients improve their balance with exercise? Yes. Because the brain remains adaptable, regular balance and strength exercises can help people with Parkinson's disease reduce fall risk over time.

What causes freezing episodes in Parkinson's disease? There's no single known cause, but medication changes, stress, and crowded environments are common triggers. Physical touch can sometimes help a person start moving again.


Are falls a normal part of aging or Parkinson's disease? No. Falls are common but not inevitable; targeted balance and strength training can meaningfully reduce risk.

What type of shoes are best for balance? Firm, minimally cushioned, supportive shoes, combined with regular barefoot practice at home, allow the feet's pressure sensors to work most effectively.
​
Conclusion
Balance isn't fixed. Like Williams put it, improving it is closer to learning a new language than following a diet: it takes consistent daily repetition, but the brain and body respond. For people living with Parkinson's disease, that means fall risk isn't just something to accept. It's something to train against.

Why Support Matters
A diagnosis of any form of Parkinson's can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson's and related conditions, contact the Parkinson's Association of Southwest Florida at www.paswfl.org or call 239-417-3465.

For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson's disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech Exercise classes
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson's or have been recently diagnosed, you don't have to face it alone.
👉 Click here to sign up for the PASWFL newsletter
👉 Click here to become a member…it's free and confidential
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

You don't have to live in SWFL to benefit from membership to the PASWFL. Membership is free and open to anyone with PD, their care partners or family members.

Most families think of estate planning as a single document: a will. But for families navigating a Parkinson's disease diagnosis, a will alone can leave dangerous gaps. At a recent PD Talk hosted by the Parkinson's Association of Southwest Florida (PASWFL), elder law attorney Ted Wolfendale, Esq. explained why the real risk isn't dying without a will. It's becoming incapacitated without the right documents in place first.
​
Wolfendale has watched families lose the ability to plan simply because they waited too long. Here's what he says every Parkinson's family needs, and why timing matters more than most people realize.

​What Estate Planning Documents Do Parkinson's Families Need?
Beyond a will, families affected by Parkinson's disease typically need a durable power of attorney, a health care surrogate designation, a living will, a blanket HIPAA authorization, and, in some cases, a trust and a Medicaid plan. These documents must be created while the person with Parkinson's still has legal capacity, since courts will not allow them to be signed later.

Why Estate Planning Can't Wait with a Parkinson's Diagnosis
Wolfendale explained that a power of attorney lets a person, the "principal," name someone else, the "agent," to manage finances or health decisions on their behalf. The catch: it can only be created while the principal has legal capacity. Once a court determines someone lacks capacity, that window closes permanently.

Florida law does offer some flexibility. Under Florida Statute 117, a principal who cannot physically sign their name may make an "X," and Florida also recognizes an "overt act," such as pointing to indicate an intended agent, if capacity is otherwise present. Wolfendale has used both provisions with Parkinson's clients. But he was direct: waiting until symptoms are advanced is a gamble.

The Backup Plan Nobody Talks About: A Blanket HIPAA Authorization
One of the most overlooked documents, Wolfendale said, is a general HIPAA authorization listing every person who might need to advocate for you, not just your official health care surrogate. He described a case involving a couple who had lived together for decades without marrying; when one partner was hospitalized, the other was barred from her bedside because his name wasn't on a HIPAA form. A blanket authorization prevents that.

Living Will, Last Will, or Trust: Which Do You Need?
A living will governs decisions while you're alive, such as life support preferences. A last will directs where assets go after death but must pass through probate, a court process that can take months or years. A trust accomplishes the same goal privately and typically faster, without probate, though it costs more to set up initially.

Guardianship: The Costly Outcome of Waiting Too Long
Without a power of attorney, an incapacitated person's family must petition the court for guardianship, a process requiring evaluation by three doctors and separate attorneys for both the ward and the petitioner. Wolfendale said this route often costs tens of thousands of dollars, expenses that proper planning can avoid entirely.
​
Medicaid Planning: Protecting Savings Without Losing Care
Many families assume they have "too much" money to qualify for Medicaid, or too little to bother planning. Wolfendale said neither is necessarily true. Legal strategies, such as personal service contracts and Florida's home equity exemption, can protect significant savings while still qualifying a family member for benefits like Florida's Home and Community-Based Services (HCBS) program, which supports in-home care.

​Questions People Ask
Does a person with Parkinson's disease need a power of attorney even if they feel fine? Yes. A power of attorney can only be created while the person has legal capacity, so Wolfendale recommends creating one early, well before it might be needed.

What's the difference between a living will and a last will? A living will states your wishes for life support while you're alive; a last will directs who receives your assets after you die and must go through probate.

Can a power of attorney from another state be used in Florida? Generally yes, under the U.S. Constitution's Full Faith and Credit Clause, but Florida institutions often require Florida-specific language, so a Florida-drafted document is usually more reliable.

Does having savings disqualify someone from Medicaid? Not necessarily. Legal planning strategies can protect assets, including home equity up to a set limit, while still qualifying a person for Medicaid-funded care.
​
Conclusion
A Parkinson's diagnosis doesn't just change day-to-day life. It changes the calendar for legal and financial planning. As Wolfendale put it, the documents that matter most, powers of attorney, health care surrogates, and a blanket HIPAA authorization, only work if they're created while there's still time. Waiting isn't a neutral choice; it's a decision that can cost families their options.

Why Support Matters
A diagnosis of any form of Parkinson's can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson's and related conditions, contact the Parkinson's Association of Southwest Florida at www.paswfl.org or call 239-417-3465.

For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson's disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech Exercise classes
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson's or have been recently diagnosed, you don't have to face it alone.
👉 Click here to sign up for the PASWFL newsletter
👉 Click here to become a member…it's free and confidential
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

When someone is diagnosed with Parkinson's disease, one of the first things that changes often has nothing to do with movement or medication. At a recent PD Talk hosted by the Parkinson's Association of Southwest Florida (PASWFL), licensed clinical social worker (LCSW) Ann Fisher shared a line she hears again and again from the people she works with.

One member put it simply: "One of the first things that happens when you get Parkinson's disease is the phone stops ringing." Here's why that happens — and what actually helps.

Why Do Parkinson's Support Groups Matter?
Parkinson's disease support groups help people with PD and their care partners feel less isolated, share practical information, and learn from others navigating similar challenges. Research shows social connection can improve mood, motivation, and overall well-being, making support groups an important part of a complete Parkinson's care plan.

Why Isolation Is a Real Risk After a Parkinson's Diagnosis
Parkinson's disease is now the fastest-growing neurological disorder in the world, having overtaken Alzheimer's disease in recent years. Between 1990 and 2015, the number of people living with Parkinson's doubled, and that number keeps climbing. As diagnoses rise, so does the risk of something less visible: isolation. Fisher explained that after a diagnosis, a person's social circle can quietly shrink — friends aren't always sure what to say, or the person with Parkinson's feels less confident reaching out. Left unaddressed, isolation can spiral into loneliness and low mood, which research links to worse outcomes for both physical and emotional well-being.

The Two Biggest Benefits of a Support Group
Support groups offer two things at once. The first is practical: members share real, lived experience — medication names, doctors, and coping strategies not always found in a pamphlet. As one popular saying in the Parkinson's community goes, "If you've met one person with Parkinson's disease, you've met one person with Parkinson's disease," since the condition looks different for everyone.
The second benefit is emotional: the simple realization that you are not alone.

Support Groups Aren't Just for the Person Diagnosed
Parkinson's changes life for care partners too, and caregiving stress can lead to its own kind of isolation. PASWFL offers groups built around this reality, including separate groups for male and female care partners, a Women with Parkinson's group, a general group open to anyone touched by PD, and a couples group for partners who want to attend together.

Building Your Parkinson's Care Team
Fisher encouraged newly diagnosed members to think of support groups as one piece of a larger care team that also includes a neurologist (often a movement disorder specialist), physical and occupational therapists, and a speech therapist — specialties PASWFL can help connect members to.

Beyond Support Groups: Music, Drumming, and Improv
Guest facilitator Margo Scott, LCSW, who has taught improv for people with Parkinson's for eight years, explained that classes like hers and PASWFL's drumming program build connection and cognitive engagement while easing facial rigidity, a common Parkinson's symptom, through playful work with expression and movement.

Keeping Your "Pie" Full
Fisher closed with an image she returns to often: life as a pie. Parkinson's disease may take a growing slice over time, but the rest of the pie — golf, opera, mahjong, dinner with friends — still belongs to you. As Michael J. Fox has said, "I didn't have any choice whether or not I have Parkinson's, but surrounding that non-choice are a million other little choices that I can make."

Questions People Ask
Are Parkinson's support groups only for people with Parkinson's disease? No. Many groups, including PASWFL's, welcome care partners, spouses, and family members, and some are designed specifically for caregivers.

What's the difference between a support group and therapy? A support group is a space for members to share experience and encouragement; it isn't a substitute for individual or couples counseling, though both can be valuable together.

How do I find a Parkinson's support group near me? Local Parkinson's associations typically offer groups by category — care partners, couples, gender-specific, and general — both in person and online. Check a local association's newsletter or call its office.

Can support groups help with Parkinson's-related isolation? Yes. Connecting with others facing similar challenges is one of the most consistently cited ways to counter the isolation that can follow a Parkinson's diagnosis.
​
Conclusion
A Parkinson's diagnosis can feel like joining a club no one wants to join, but no one has to navigate it in isolation. Whether through a support group, a care team, or a creative outlet like improv or drumming, connection is one of the most powerful tools for living well with Parkinson's disease.

Why Support Matters
A diagnosis of any form of Parkinson's can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson's and related conditions, contact the Parkinson's Association of Southwest Florida at www.paswfl.org or call 239-417-3465.

For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson's disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech Exercise classes
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson's or have been recently diagnosed, you don't have to face it alone.
👉 Click here to sign up for the PASWFL newsletter
👉 Click here to become a member…it's free and confidential
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

Ask any registered dietitian what to eat for brain health, and one pattern comes up again and again: the Mediterranean diet. At a recent PD Talk hosted by the Parkinson's Association of Southwest Florida (PASWFL), registered dietitian nutritionist (RDN) Carolyn Bivans explained why this centuries-old way of eating is drawing serious attention from Parkinson's disease (PD) researchers.

Here's the number that stopped the room: in one study, women who followed a Mediterranean-style diet delayed their Parkinson's onset by more than 17 years. Keep reading to see how — and what to put on your plate first.

What Is the Mediterranean Diet, and How Does It Help Parkinson's Disease?
The Mediterranean diet is an eating pattern built around olive oil, fish, vegetables, fruits, whole grains, and legumes, with roughly 40% healthy fats, 40% complex carbohydrates, and 20% protein. Its anti-inflammatory fats and antioxidants may help protect dopamine-producing brain cells, which is why researchers are studying it specifically for Parkinson's disease prevention and symptom management.

Where the Diet Comes From
The Mediterranean diet isn't a trend. Researcher Ancel Keys studied it decades ago in Naples, Italy, as part of the landmark Seven Countries Study, which found dramatically lower rates of heart disease in Mediterranean regions than in the typical Western diet. That same eating pattern is now being studied for its effects on the brain.

​How the Mediterranean Diet May Protect the Brain
Parkinson's disease is linked to oxidative stress, a kind of cellular damage that harms the neurons responsible for producing dopamine. The Mediterranean diet is rich in antioxidants and anti-inflammatory fats — found in olive oil, fatty fish, nuts, and colorful produce — that may help reduce this damage and support the neurons Parkinson's disease affects most.

Can Diet Really Delay Parkinson's Onset?
Bivans shared research suggesting a Mediterranean-style diet was associated with delaying Parkinson's onset by as much as 17.4 years in women and 8.4 years in men. Diet is not a cure and results vary by individual, but the research points to food as one meaningful, modifiable factor in the Parkinson's disease timeline.

The MIND Diet: A More Targeted Approach
The MIND diet — short for Mediterranean-DASH Intervention for Neurodegenerative Delay — combines the Mediterranean diet with the DASH diet and emphasizes foods specifically linked to brain health, such as leafy greens and berries. A 2022 study found the MIND diet may be roughly twice as effective as the Mediterranean diet alone at reducing Parkinson's-related symptoms.

One Important Caution: Protein and Your Parkinson's Medication
For people taking levodopa, timing matters. Dietary protein can compete with levodopa for absorption, potentially reducing the medication's effectiveness. Bivans recommends separating protein-rich meals from levodopa doses by about an hour, and checking timing changes with your care team first.

Practical Ways to Start Today
You don't have to overhaul your diet overnight. Simple swaps help: a Greek yogurt parfait with berries for breakfast, a farro and chickpea salad for lunch, grilled salmon with quinoa and asparagus for dinner, and a handful of almonds or a square of dark chocolate for a snack. Gut-friendly foods like asparagus and bananas can also ease Parkinson's-related constipation, a common and often under-discussed symptom.

Questions People Ask
Can the Mediterranean diet slow Parkinson's disease progression? Research suggests it may help protect dopamine-producing neurons and delay symptom onset, though it is not a cure or a replacement for medical treatment.

Does diet affect when Parkinson's symptoms start? Some studies link Mediterranean-style eating to a later onset of Parkinson's disease, with a more pronounced effect in women than in men.
Can eating protein interfere with Parkinson's medication? Yes. Protein can compete with levodopa for absorption, so many care teams recommend spacing protein-rich meals about an hour from medication doses.

What's the difference between the Mediterranean diet and the MIND diet? The MIND diet builds on the Mediterranean diet by emphasizing specific brain-protective foods like berries and leafy greens, and may offer added benefit for neurodegenerative symptoms.

What foods help with Parkinson's-related constipation? Fiber- and prebiotic-rich foods such as asparagus, bananas, legumes, and whole grains can support gut health, which is commonly affected by Parkinson's disease.

Conclusion
No single food will prevent or cure Parkinson's disease, but the research is clear that what's on your plate matters. The Mediterranean diet offers a realistic, flavorful, way to support brain health — one meal at a time. As Bivans emphasized, small, sustainable changes made with your care team are often the most powerful place to start.

Why Support Matters
A diagnosis of any form of Parkinson's can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson's and related conditions, contact the Parkinson's Association of Southwest Florida at www.paswfl.org or call 239-417-3465.

For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson's disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech Exercise classes
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson's or have been recently diagnosed, you don't have to face it alone.
👉 Click here to sign up for the PASWFL newsletter
👉 Click here to become a member…it's free and confidential
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

If you love someone with Parkinson's disease, you've probably had this moment: you ask them to speak up, they insist they already are, and the conversation stalls in frustration on both sides. You're not imagining it, and neither are they. Between 80 and 90 percent of people with Parkinson's disease and their care partners experience real, measurable changes in how they communicate.

Here's the twist most care partners never hear: it isn't a matter of effort. It's a trick Parkinson's disease plays on the brain — and once you understand how, nearly every frustrating conversation starts to make sense. Keep reading to learn more >

At a recent PD Talk hosted by the Parkinson's Association of Southwest Florida, speech-language pathologist Judy Jenner, MS, CCC, explained why. Parkinson's disease changes how the brain monitors its own voice. A typical brain automatically adjusts volume for a crowded restaurant or a person across the room. A Parkinson's-affected brain usually can't self-correct without an outside cue. So when someone says, "I heard you fine," and their voice was barely audible, they're not being difficult. Their brain genuinely believes they were loud and clear.

Jenner compared it to driving every day with a broken speedometer: if your feedback is wrong, how could you possibly judge your own speed accurately? The same disconnect applies to facial expression. Parkinson's disease can cause a "masked face," reducing outward signs of emotion even though the person's inner emotional experience is completely intact. It also causes real, physical communication fatigue, since simply carrying a conversation requires conscious, exhausting effort most of us never have to think about.

Left unaddressed, these changes can quietly chip away at a relationship.
Conversations that once felt effortless become fewer and farther between, and isolation can creep in for both partners. But understanding the "why" behind these changes tends to replace blame with patience, which is often the first real turning point.

One research finding stood out: 66 percent of communication breakdowns between people with Parkinson's disease and their care partners had nothing to do with speech clarity or volume at all. They came from care partner habits instead — rushing the conversation, finishing sentences, or quietly giving up too soon.

The good news is that small adjustments make a measurable difference:
Get your partner's attention before speaking, stay four to six feet apart, use short sentences, offer specific choices instead of open-ended questions, and avoid trying to talk in a moving car. Celebrating small wins matters too — a simple "I understood every word" can go a long way. Speech therapy helps enormously, yet Jenner noted that only 3 to 4 percent of people who could benefit ever try it, often because the growing body of Parkinson's disease resources focuses heavily on motor symptoms, leaving communication support overlooked.

You don't have to navigate this alone, and neither does your partner.

Why Support Matters
A diagnosis of any form of Parkinson's can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson's and related conditions, contact the Parkinson's Association of Southwest Florida at www.paswfl.org or call 239-417-3465.

For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson's disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech Exercise classes
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson's or have been recently diagnosed, you don't have to face it alone.
👉 Click here to sign up for the PASWFL newsletter
👉 Click here to become a member…it's free and confidential
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

When most people think about Parkinson’s disease (PD), they often think about tremors, stiffness, and movement changes. However, Parkinson’s can also affect emotions, motivation, and mental health. Depression, anxiety, apathy, and irritability are common non-motor symptoms that may occur before or after a Parkinson’s diagnosis.

These emotional changes are not simply “part of getting older” or a sign that someone is not coping well. Keep reading to learn why Parkinson’s can affect mood, what symptoms to watch for, and how support and treatment can help.

How Does Parkinson’s Disease Affect Mood and Emotions?
Parkinson’s disease is a neurological disorder that affects more than movement. It occurs when certain brain cells that produce dopamine become damaged or lost. Dopamine helps regulate movement, but it also plays an important role in motivation, mood, reward, and emotional responses.
Changes in dopamine and other brain chemicals can contribute to emotional and behavioral symptoms. In addition, adjusting to the challenges of living with a chronic condition can understandably affect mental health.

Depression and Parkinson’s Disease
Depression is one of the most common non-motor symptoms of Parkinson’s disease. It is not simply a reaction to receiving a diagnosis—it can be part of the disease itself.
Signs of depression may include:

• Persistent sadness or low mood
• Loss of interest in activities once enjoyed
• Feelings of hopelessness
• Changes in sleep or appetite
• Fatigue or lack of energy
• Difficulty concentrating
• Feelings of guilt or worthlessness

Depression can make Parkinson’s symptoms feel more difficult to manage, which is why recognizing and treating it is an important part of Parkinson’s care.

Anxiety and Parkinson’s Disease
Anxiety is also common among people with Parkinson’s. Some individuals experience constant worry, nervousness, panic-like feelings, or fear related to movement challenges, falls, or changes in independence.
Anxiety may appear as:

• Excessive worrying
• Restlessness
• Feeling overwhelmed
• Rapid heartbeat or physical tension
• Avoiding activities because of fear

Treating anxiety can improve confidence and help individuals remain engaged in daily life.

What Is Apathy in Parkinson’s Disease?
Apathy is a loss of motivation, interest, or emotional engagement. It is different from depression because a person may not necessarily feel sad—they may simply feel less driven to start activities or participate.
Signs of apathy may include:

• Less interest in hobbies
• Reduced desire to socialize
• Difficulty starting tasks
• Appearing emotionally distant
• Needing more encouragement to participate

Apathy can be challenging for both individuals with Parkinson’s and their care partners because it may be misunderstood as laziness or lack of effort.

Irritability and Mood Changes
Some people with Parkinson’s experience increased irritability, frustration, or emotional changes. These symptoms may be related to changes in the brain, medication effects, fatigue, stress, sleep problems, or difficulty coping with daily challenges.
Recognizing that these changes may be connected to Parkinson’s can help families respond with patience and understanding.

What Can Help Manage Emotional Symptoms?
Emotional health is an important part of Parkinson’s treatment.

​Helpful strategies may include:
1.  Talk With Your Healthcare Team
Doctors can evaluate mood changes, review medications, and recommend treatments or referrals when needed.
2.  Stay Physically Active
Exercise can support brain health, improve mood, reduce stress, and help maintain mobility.
3.  Stay Connected
Support groups, friendships, and community programs can reduce isolation and provide encouragement.
4.  Consider Counseling or Therapy
Mental health professionals can provide tools for managing anxiety, depression, grief, and life changes.
5.  Maintain Healthy Daily Routines
Regular sleep, meaningful activities, proper nutrition, and social connection can support emotional well-being.

Why Support Matters
A diagnosis of any form of Parkinson’s can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida at www.paswfl.org or call 239-417-3465.

For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech Exercise classes
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter:
https://parkinsonassociationswfl.org/signup-enews.html
👉 Click here to become a member…it’s free and confidential:
https://parkinsonassociationswfl.org/signup.html
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

For people living with Parkinson’s disease (PD), home should be a place of comfort, safety, and independence. However, changes in balance, walking, coordination, and movement can increase the risk of falls. Making thoughtful adjustments to the home environment can help reduce hazards and support confidence in daily activities.

A few simple changes can make a major difference. Keep reading to discover practical Parkinson’s home safety modifications that can help prevent falls, improve mobility, and create a safer living space.

Why Are Falls More Common With Parkinson’s Disease?
Parkinson’s disease affects areas of the brain responsible for movement, balance, and coordination. Symptoms such as slower movements, muscle stiffness, changes in posture, freezing of gait, and difficulty turning can make everyday activities more challenging.
Some people with Parkinson’s may experience:

• Trouble starting or stopping walking
• Shuffling steps
• Balance problems
• Dizziness or blood pressure changes when standing
• Difficulty navigating tight spaces
• Increased fatigue

Because many falls happen during routine activities, adapting the home can be an important part of Parkinson’s care and fall prevention.

Improve Lighting Throughout the Home
Good lighting is one of the easiest ways to improve safety.
Consider:

• Adding nightlights in hallways, bedrooms, and bathrooms
• Using brighter bulbs in frequently used areas
• Installing motion-activated lights
• Keeping stairways well lit
• Removing dark areas or shadows that make obstacles harder to see

Clear visibility helps individuals recognize changes in flooring, furniture placement, and potential tripping hazards.

Remove Tripping Hazards
Small obstacles can become major risks when balance or walking changes.
Look for:

• Loose rugs or throw rugs
• Electrical cords across walkways
• Clutter on floors
• Uneven flooring
• Pet toys or objects left in walking paths

Secure rugs with non-slip backing or remove them completely if they create a hazard.

Make the Bathroom Safer
Bathrooms are one of the most common areas for falls because surfaces can become slippery.
Helpful modifications include:

• Installing grab bars near the toilet and shower
• Using a non-slip bath mat
• Adding a shower chair if needed
• Installing a handheld showerhead
• Raising the toilet height if recommended
• Keeping frequently used items within easy reach

These changes can help maintain independence while reducing the risk of injury.

Improve Bedroom Safety
Many falls occur when getting up at night.
Consider:

• Placing a nightlight between the bed and bathroom
• Keeping a clear pathway around the bed
• Using a stable bedside table
• Avoiding low furniture that is difficult to rise from
• Keeping necessary items within reach

A safe nighttime routine can reduce rushing and improve confidence.

Make Walking Areas Easier to Navigate
People with Parkinson’s may experience freezing of gait, where the feet temporarily feel “stuck.” Certain home layouts can make this more challenging.
Helpful strategies include:

• Removing clutter from hallways
• Creating wider walking paths
• Avoiding furniture arrangements that require tight turns
• Using contrasting colors to make important areas easier to identify

Some individuals benefit from visual cues, such as floor markings, to help initiate movement.

Consider Mobility and Assistive Devices
A physical therapist can help determine whether a cane, walker, or other mobility aid would improve safety. Using the right device at the right time can help prevent falls and support continued independence.
Occupational therapists can also provide valuable recommendations for adapting the home based on an individual’s specific challenges.
​
Review Medications and Health Factors
Falls may also be influenced by medication side effects, vision changes, low blood pressure, or dizziness. Regular conversations with healthcare providers can help identify factors that may increase fall risk.

Why Support Matters
A diagnosis of any form of Parkinson’s can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida at www.paswfl.org or call 239-417-3465.

For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.
Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech Exercise classes
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter:
https://parkinsonassociationswfl.org/signup-enews.html
👉 Click here to become a member…it’s free and confidential:
https://parkinsonassociationswfl.org/signup.html
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

Legendary singer-songwriter Carly Simon has revealed that she has been living with Parkinson’s disease, sharing an honest and deeply personal account of the challenges, uncertainty, and resilience that have shaped her journey. Best known for timeless hits like You're So Vain and Nobody Does It Better, Simon’s story reminds us that while Parkinson’s changes life, it does not define it. Keep reading to hear her personal statement about PD.

Learning to Live with Parkinson’s
In a heartfelt public statement, Simon explained that she initially attributed her difficulty walking to recovery from multiple joint replacement surgeries for arthritis. Even after replacing both knees and one hip, her mobility continued to decline. She struggled to stand from chairs, experienced worsening balance, and eventually required assistance to walk.

After undergoing an extensive evaluation at the Mayo Clinic, she received a diagnosis of Parkinson’s disease.

"It has taken me some time to understand the diagnosis, to adjust to it, and to decide how much I wanted to say publicly," Simon wrote.

Like many people living with Parkinson’s, she discovered that symptoms are unpredictable. Some days she has energy and can work, think, and create. Other days, fatigue and stiffness make even simple tasks difficult.

Read Carly Simon's Full Statement about Living with PD
"So many people have written to me, kindly wondering about my relative silence, asking how I am and what I have been doing. The truth is, I’ve been learning how to live with Parkinson’s disease.

It has taken me some time to understand the diagnosis, to adjust to it, and to decide how much I wanted to say about it publicly. Parkinson’s is different for everyone, and it can be unpredictable. Some days I’m so tired I can’t get the day moving at all. On others, it gives me a little more room to move, think, work, and feel like myself.

The problems began with arthritis in both knees and one hip. I eventually had all three joints replaced, out with the old and in with delicate bouquets of metal and plastic. After three replacement surgeries, I assumed my difficulty walking was simply an unfortunate and rather ironic part of the recovery process.

But my mobility continued to worsen. I had trouble standing up from low chairs and deep couches without someone offering me an arm. Overstuffed furniture became my enemy. Once seated, I could feel as though I had been swallowed by the chair and might remain there permanently, like a guest who had badly overstayed her welcome.

Eventually, there were periods when I could not walk without considerable help. My family and I knew that something more was going on. After an extensive evaluation at the Mayo Clinic, I was diagnosed with Parkinson’s.

I began treatment, including taking medication to help with stiffness and other symptoms. There is no tidy or predictable schedule to the illness. It does not consult my calendar before deciding what kind of day I am going to have.

Parkinson’s is usually associated with movement, tremors, and balance, but it can affect much more than the body. It can bring anxiety, depression, exhaustion, and apathy. The apathy is particularly strange. You can find yourself lying there like a starfish drying in the sun, arms pointing in all directions, while nothing inside is telling you to get up, read, watch, write, sing, call someone, or do much of anything at all.

That has been one of the hardest things to explain. It is not simply sadness or laziness. It is as though the part of the brain that sends out invitations to participate in life has temporarily misplaced the guest list.

During this same period, I was also treated for basal cell carcinoma on my face. The cancer was removed, but the surgery affected my appearance and made me more self-conscious about being seen in public. I have always been more critical of my appearance than anyone else could possibly imagine (check out the irony of having written “You’re So Vain.”), and this gave my inner critic quite a lot of new material.

Between my mobility issues, the Parkinson’s diagnosis, the surgery, and the emotional effects of it all, withdrawing from public view was the most palatable reaction. If a person is allowed to hibernate during both winter and summer, then I have become an all-season bear.
But I have not stopped living, and I have not stopped working.

In the middle of all this, I began recording a new album, Comes in Waves. That still feels mysterious to me. Music has always known when to arrive. It has rescued me more times than I can count. It is like a cat or dog that quietly appears beside you when it senses you are not quite yourself.

The album includes songs and fragments of songs that had been waiting for me, some for years. There were melodies, verses, and ideas written down and tucked away for some unknown future when I would have the time and attention to finish them.
 
Apparently, that future is now.

Working on the music gave shape to days that did not always have much shape. It gave me somewhere to go without having to leave the room. It reminded me that illness can change your life without becoming the whole of your life.

I do not consider Parkinson’s a gift or a blessing. It is neither. It is difficult, frustrating, and sometimes frightening. I am still learning how to live with it and how to accept it without feeling that I have surrendered something essential.\

I am still writing, singing, imagining, laughing, worrying, remembering, and occasionally getting trapped in an overstuffed chair.

I am deeply grateful to my children, my family, my friends, my caregivers, and the medical professionals who have helped me through this. Their love and patience have carried me through days when my own reserves were not enough.

I wanted to share this now because so many people have reached out with genuine concern. I am touched by that concern, even when I have not known how to respond.

These days I move more slowly, I lean on others more than I once did, and I have learned to accept that every day will look a little different. But I am still very much here.

With love, Carly"

Parkinson’s Is More Than a Movement Disorder
While Parkinson’s is often associated with tremors, stiffness, slowed movement, and balance problems, Simon emphasized that many of the most difficult symptoms are invisible.
She described experiencing overwhelming fatigue, anxiety, and periods of apathy—times when she simply lacked the motivation to do things she loved.

"It is not simply sadness or laziness," she explained. "It is as though the part of the brain that sends out invitations to participate in life has temporarily misplaced the guest list."

Her words echo the experiences of countless people living with Parkinson’s who often struggle to explain the disease's emotional and cognitive effects.

Creativity Became Part of Her Therapy
Despite her diagnosis, Simon has not stopped creating. During treatment, she began recording Comes in Waves, her first album of original music since 2008.

She credits music with helping her through some of her most difficult days.
"Working on the music gave shape to days that did not always have much shape," she said. "It reminded me that illness can change your life without becoming the whole of your life."

Her story highlights an important lesson for anyone living with Parkinson’s: continuing activities that bring joy and purpose—whether music, art, exercise, gardening, or volunteering—can help improve emotional well-being and quality of life.

Finding Strength Through Support
Simon also shared her gratitude for the family, friends, caregivers, and medical professionals who have helped her navigate life with Parkinson’s. Their encouragement and support carried her through days when her own strength was limited.
​
Her experience reinforces something the Parkinson’s community has long understood: no one should face Parkinson’s alone.

​Living Well with Parkinson’s
Although there is currently no cure for Parkinson’s disease, early diagnosis, exercise, medication, education, and a strong support network can help people maintain independence and quality of life for many years.

Carly Simon's openness joins that of other well-known individuals—including Michael J. Fox, Neil Diamond, Ozzy Osbourne, and Linda Ronstadt—who have helped raise awareness about Parkinson’s disease and the importance of research, treatment, and support.
As Simon beautifully reminds us, Parkinson’s may change how someone lives, but it does not have to stop them from living.

You Don't Have to Face Parkinson’s Alone
The Parkinson’s Association of Southwest Florida (PASWFL) provides more than 25 free programs each week for people living with Parkinson’s disease and their care partners, including exercise and wellness classes, speech therapy, support groups, educational PD Talks, and caregiver resources. Membership is free and confidential.

Whether you are newly diagnosed or have been living with Parkinson’s for years, support, education, and community can make all the difference.
Learn more at: www.paswfl.org
Become a free member: https://parkinsonassociationswfl.org/signup.html
Sign up for the PASWFL newsletter: https://parkinsonassociationswfl.org/signup-enews.html

Become the Strongest Version of You—Regardless of Your Parkinson's Diagnosis
A Parkinson's disease diagnosis can change many aspects of life, but it does not define your future. With the right knowledge, support, and healthy lifestyle strategies, people living with Parkinson's can improve mobility, build resilience, and continue living active, fulfilling lives.

What if one hour could give you practical tools to help you move better, reduce stress, boost your energy, and feel more confident about your future? Keep reading to discover how this free educational event can help you become the strongest version of yourself.

The Parkinson's Association of Southwest Florida (PASWFL) invites individuals living with Parkinson's disease, care partners, family members, and friends to attend a FREE virtual PD Talk featuring Dr. Neil J. Koppel, DC, an internationally respected chiropractor and holistic healthcare practitioner.

FREE Parkinson's PD Talk
Become the Strongest Version of You; Regardless of Your Diagnosis
📅 Date: Wednesday, August 19, 2026
🕒 Time: 3:00 p.m.
💻 Location: Live on Zoom
📅 RSVP by: August 17, 2026
Register today:
https://us06web.zoom.us/meeting/register/epEe3XI4RoSwkl8ESmAq_g
Learn more about PASWFL Education Programs:
https://parkinsonassociationswfl.org/education-programs.html

Why This Parkinson's Education Program Matters
Whether you've recently been diagnosed or have been living with Parkinson's disease for years, your daily choices can have a significant impact on your quality of life.
​
During this engaging presentation, Dr. Koppel will share practical, evidence-informed strategies that may help participants:

• Improve balance and mobility
• Increase strength and flexibility
• Reduce everyday stress
• Boost energy levels
• Support overall wellness
• Build confidence while living with Parkinson's disease

Rather than focusing solely on limitations, this presentation encourages attendees to discover ways to maximize their health, independence, and overall well-being.

Meet Dr. Neil J. Koppel, DC
Dr. Neil J. Koppel has spent more than 27 years helping patients improve their health and quality of life through integrative care, including 23 years practicing acupuncture.
​
Based in Naples, Florida, he is recognized for combining multiple disciplines to address the whole person rather than just symptoms.
His expertise includes:

• Chiropractic Care
• Acupuncture (with or without needles)
• Nutritional Therapy
• Balance and Stability Care
• Peripheral Neuropathy Care
• Non-Surgical Spinal Decompression
• Chiropractic BioPhysics®
• Stress Management
• Oriental Medicine Therapies
• Red Light Therapy
• Trauma-Induced Injury Care

A graduate of prestigious Life University, Dr. Koppel holds certifications in Acupuncture, Neuropathy, and Chiropractic BioPhysics®, and is passionate about helping people achieve their highest level of health—regardless of diagnosis.

Why Support Makes a Difference
Living with Parkinson's is easier when you have access to education, encouragement, and a community that understands your journey.

For more than 25 years, the Parkinson's Association of Southwest Florida (PASWFL) has helped individuals and families throughout Southwest Florida live well with Parkinson's disease through free, high-quality programs and services.

Every week, PASWFL offers more than 25 free programs, including:

• Wellness and fitness classes
• Speech exercise classes
• Educational seminars
• Care partner support
• Parkinson's support groups

There are no fees to become a member, and anyone touched by Parkinson's is welcome.

Take the First Step Toward Living Well
You don't have to face Parkinson's disease alone.
Become part of a caring community committed to helping you thrive.

Sign up for the PASWFL newsletter:
https://parkinsonassociationswfl.org/signup-enews.html
Become a FREE PASWFL member:
https://parkinsonassociationswfl.org/signup.html

To learn more about programs and services, visit www.paswfl.org or call 239-417-3465.
Your diagnosis is only one part of your story. With education, support, and practical wellness strategies, you can become the strongest version of yourself.

Living with Parkinson's disease comes with many challenges, but swelling and lymphedema don't have to be among them. These often-overlooked conditions can affect mobility, balance, comfort, and independence, making everyday activities more difficult.
​
What if one simple educational program could help you better understand why swelling occurs—and give you practical strategies to keep moving and improve your quality of life? Read on to discover how this free PD Talk can help you or someone you love.

Many people living with Parkinson's disease experience swelling in their feet, ankles, hands, or legs. While it may seem like a normal part of aging or reduced activity, persistent swelling can affect circulation, increase discomfort, make walking more difficult, and even raise the risk of falls. In some cases, the swelling may be related to lymphedema, a condition caused by a buildup of lymphatic fluid that requires specialized treatment.

FREE PD TALK
To help individuals and families better understand these issues, the Parkinson's Association of Southwest Florida (PASWFL) is offering a free educational PD Talk:
Keeping You Moving: Understanding Swelling and Lymphedema in Parkinson's Disease
Date: Wednesday, September 9, 2026
Time: 3:00 p.m. (ET)
Location: Zoom
RSVP by: September 7, 2026
Register here: https://us06web.zoom.us/meeting/register/13WSgQLwQkKAO5g52DAZSQ#/registration

During this informative presentation, Lexie Lundquist, OTD, OTR/L, CLWT, licensed occupational therapist, certified lymphedema therapist, and co-owner of Mobile Rehab & Lymphatics, will explain:

• Why swelling and lymphedema occur in people living with Parkinson's disease
• How swelling affects mobility, balance, and daily activities
• Practical techniques to reduce swelling and improve circulation
• Strategies to maintain independence and stay active
• When to seek professional treatment

Whether you've recently noticed swelling or have been managing it for years, you'll gain practical information you can begin applying immediately.

Meet the Presenter
Lexie Lundquist is a licensed occupational therapist, certified lymphedema therapist, and co-owner of Mobile Rehab & Lymphatics. She is passionate about helping individuals regain independence through personalized, compassionate care.
​
Believing there is no one-size-fits-all approach to rehabilitation, Lexie combines evidence-based treatment with individualized care plans designed around each person's goals, abilities, and lifestyle. Her mission is to help every patient feel heard, supported, and empowered throughout their healthcare journey.

Why Understanding Swelling Matters
Swelling isn't simply an inconvenience. Left untreated, it can contribute to reduced mobility, discomfort, skin changes, and decreased confidence with everyday movement. Learning how to recognize symptoms early and implement appropriate management strategies can significantly improve quality of life.

Educational programs like this PD Talk empower people living with Parkinson's disease and their care partners with practical knowledge that complements their medical care.

Why Support Matters
A diagnosis of any form of Parkinson's can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson's and related conditions, contact the Parkinson's Association of Southwest Florida at www.paswfl.org or call 239-417-3465.

For 30 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson's disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech Exercise classes
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by Parkinson's disease.

Take the First Step Toward Living Well
If you suspect early Parkinson's or have been recently diagnosed, you don't have to face it alone.
👉 Sign up for the PASWFL newsletter:
https://parkinsonassociationswfl.org/signup-enews.html
👉 Become a member—it's free and confidential:
https://parkinsonassociationswfl.org/signup.html
To learn more about this PD Talk and other educational opportunities, visit:
https://parkinsonassociationswfl.org/education-programs.html
Discover the power of education, support, and community—and learn how to Live Well with Parkinson's Disease.

Walking problems are among the most common challenges associated with Parkinson’s disease (PD). Changes in movement can make walking slower, less steady, or more difficult to start and stop. Over time, these changes may affect independence, confidence, and safety.
​
But why does Parkinson’s change the way a person walks—and what can be done to improve mobility? Understanding the connection between Parkinson’s and walking can help you recognize changes early and take meaningful steps toward moving more safely and confidently.

How Does Parkinson’s Affect Walking?
Parkinson’s disease affects areas of the brain involved in movement, coordination, and motor control. A chemical messenger called dopamine plays an important role in smooth, purposeful movement. As Parkinson’s progresses, the loss of dopamine-producing brain cells can make it more difficult for the body to control walking automatically.
Common Parkinson’s-related walking changes include:

• Shorter steps: A person may begin taking smaller, shuffling steps.
• Slower walking: Movement may become more deliberate and take longer.
• Reduced arm swing: One or both arms may swing less naturally while walking.
• Difficulty turning: Turning around, especially in tight spaces, may become challenging.
• Freezing of gait: The feet may suddenly feel “stuck” to the floor, particularly when starting to walk, turning, or passing through doorways.
• Festinating gait: Some people may begin taking increasingly quick, small steps, sometimes feeling as if they are chasing their center of gravity.

These changes can increase the risk of losing balance and falling.

Why Does Freezing of Gait Happen?
Freezing of gait is a common Parkinson’s symptom in which a person temporarily cannot move their feet forward, even though they want to walk. It may happen when beginning to walk, turning, approaching a doorway, or navigating crowded areas.
​
External cues can sometimes help overcome freezing. Counting out loud, stepping over a visual line, following a rhythm, or using specific movement strategies taught by a physical therapist may help a person restart movement.

What Can Help Improve Walking With Parkinson’s?
Regular exercise and targeted rehabilitation can play an important role in maintaining mobility.
Physical Therapy
A physical therapist who understands Parkinson’s disease can create an individualized program focused on balance, strength, flexibility, posture, and walking strategies. Physical therapy may also help individuals learn techniques for managing freezing and reducing fall risk.

Exercise
Regular physical activity can help support strength, balance, coordination, and overall mobility. Walking, cycling, dancing, tai chi, stretching, strength training, and specialized Parkinson’s exercise programs may all be beneficial. Always choose activities appropriate for your abilities and discuss new exercise programs with your healthcare provider when necessary.

Use Bigger, More Intentional Movements
Some people with Parkinson’s benefit from consciously taking larger steps, lifting the feet, swinging the arms, and focusing on posture. Visual or auditory cues, such as lines on the floor or a steady rhythm, may also help improve movement.

Improve Home Safety
Removing clutter, securing loose rugs, improving lighting, and installing grab bars where appropriate can help reduce the risk of falls. Using a cane, walker, or other mobility aid may also be helpful when recommended by a healthcare professional.

Talk With Your Healthcare Team
Walking changes should not simply be accepted as an unavoidable part of aging or Parkinson’s disease. Tell your neurologist or healthcare provider about changes in balance, freezing, falls, or difficulty walking. Early intervention can help identify strategies and treatments that support safer mobility.

Why Support Matters
A diagnosis of any form of Parkinson’s can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida at www.paswfl.org or call 239-417-3465.

For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.
Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech Exercise classes
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter:
https://parkinsonassociationswfl.org/signup-enews.html
👉 Click here to become a member—it’s free and confidential:
https://parkinsonassociationswfl.org/signup.html
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

Many people know Parkinson's disease (PD) affects movement, but fewer realize it can also impact the body's automatic functions, including blood pressure regulation. If you've been feeling dizzy, lightheaded, or faint when standing up, Parkinson's-related low blood pressure could be the reason. Understanding why this happens and knowing how to manage it can significantly improve your safety and quality of life.

Could those dizzy spells be more than just fatigue? Keep reading to discover why Parkinson's can cause low blood pressure, the warning signs to watch for, and simple strategies that can help you stay steady and independent.

​Can Parkinson's Cause Low Blood Pressure?
Yes. Parkinson's disease can cause low blood pressure, particularly a condition known as orthostatic hypotension. This occurs when blood pressure drops suddenly after standing up from sitting or lying down.
Normally, the autonomic nervous system automatically tightens blood vessels and increases heart rate to maintain blood flow to the brain. Parkinson's can damage these automatic nerve pathways, making it difficult for the body to respond quickly. As a result, blood pressure falls, reducing blood flow to the brain.
Certain Parkinson's medications can also contribute to lower blood pressure, making symptoms more noticeable.

Symptoms of Low Blood Pressure in Parkinson's Disease
Symptoms can vary from mild to severe and may include:

• Dizziness when standing
• Feeling lightheaded
• Blurry vision
• Weakness or fatigue
• Difficulty concentrating
• Neck or shoulder discomfort
• Feeling unsteady
• Fainting or nearly fainting

These symptoms often improve after sitting or lying down but should never be ignored because they increase the risk of falls and injury.

How Can You Manage Parkinson's-Related Low Blood Pressure?
Fortunately, several strategies can help reduce symptoms.
*Stay hydrated. 
Drinking plenty of water throughout the day helps maintain blood volume.
Increase salt intake if approved by your healthcare provider. Additional sodium may help raise blood pressure for some individuals.
*Stand up slowly. 
Move gradually from lying to sitting, then standing, giving your body time to adjust.
*Wear compression stockings or abdominal binders. These can help prevent blood from pooling in the legs.
*Eat smaller, more frequent meals. Large meals can sometimes cause blood pressure to drop further.
*Avoid prolonged standing and excessive heat. Hot weather, hot showers, and standing for long periods can worsen symptoms.
*Exercise regularly. Gentle activities such as walking, cycling, stretching, or seated exercises help improve circulation.
*Review medications with your healthcare provider. Never stop medications on your own, but ask whether adjustments might help reduce low blood pressure symptoms.

​When Should You Call Your Doctor?
Seek medical advice if you experience frequent dizziness, repeated falls, fainting, worsening balance, or symptoms that interfere with daily life. Your healthcare provider may recommend medication changes or prescribe treatments specifically designed for orthostatic hypotension.
​
Managing low blood pressure is an important part of living well with Parkinson's disease. Recognizing symptoms early and working with your healthcare team can help reduce falls, improve confidence, and support greater independence.

Why Support Matters
A diagnosis of any form of Parkinson's can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson's and related conditions, contact the Parkinson's Association of Southwest Florida at www.paswfl.org or call 239-417-3465.

For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson's disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.
Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech Exercise classes
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by Parkinson's.

Take the First Step Toward Living Well
​If you suspect early Parkinson's or have been recently diagnosed, you don't have to face it alone.
👉 Click here to sign up for the PASWFL newsletter:
https://parkinsonassociationswfl.org/signup-enews.html
👉 Click here to become a member—it's free and confidential:
https://parkinsonassociationswfl.org/signup.html
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

Many people think of Parkinson’s disease as a movement disorder, but sleep problems are actually among its most common non-motor symptoms. Difficulty falling asleep, frequent nighttime awakenings, vivid dreams, excessive daytime sleepiness, and even physically acting out dreams can all occur with Parkinson’s disease. These symptoms can affect both the person living with Parkinson’s and their care partner.
If you've ever kicked, punched, shouted, or appeared to "act out" your dreams while sleeping, it may be more than an occasional restless night. Understanding why Parkinson’s affects sleep—and knowing when to seek help—can lead to safer nights, better rest, and an improved quality of life.

Why Does Parkinson’s Affect Sleep?
Parkinson’s changes areas of the brain that regulate movement, sleep, and the sleep-wake cycle. In addition, changes in dopamine and other brain chemicals can interfere with normal sleep patterns.
Sleep may also be disrupted by:

• Tremors or stiffness during the night
• Frequent urination
• Pain or muscle cramps
• Anxiety or depression
• Medication timing
• Restless legs syndrome
• Sleep apnea

Because several factors may occur at the same time, identifying the cause of sleep problems often requires a thorough evaluation.

What Is REM Sleep Behavior Disorder (RBD)?
One of the most distinctive sleep disorders associated with Parkinson’s is REM Sleep Behavior Disorder (RBD).
Normally during REM (Rapid Eye Movement) sleep, the body temporarily relaxes its muscles, preventing us from physically acting out dreams.
With RBD, that normal muscle relaxation is lost. As a result, a person may:

• Talk, yell, or laugh while sleeping
• Punch or kick
• Grab at objects
• Fall out of bed
• Act out vivid or frightening dreams

RBD may develop years before the movement symptoms of Parkinson’s appear, and it remains common throughout the disease.
​
What Can You Do About Sleep Problems?
The good news is that many sleep issues can be treated.
Helpful strategies include:

• Maintain a regular sleep schedule.
• Exercise regularly, but avoid vigorous activity close to bedtime.
• Limit caffeine and alcohol later in the day.
• Create a cool, quiet, and comfortable sleep environment.
• Review medications with your healthcare provider to see if timing adjustments may help.

​
If acting out dreams creates a safety risk, your healthcare provider may recommend specific treatments or refer you to a sleep specialist. Safety measures such as padding sharp furniture edges or temporarily sleeping separately from a partner may also be recommended in some situations.

When Should You Talk to Your Doctor?
You should discuss sleep concerns with your neurologist if:

• You regularly act out dreams.
• Daytime sleepiness interferes with daily activities.
• You snore loudly or stop breathing during sleep.
• Poor sleep affects your quality of life.

Treating sleep disorders often improves mood, energy, memory, and overall well-being.

Better Sleep Can Improve Daily Life
Quality sleep is an essential part of Parkinson’s care. When sleep improves, many people experience better concentration, improved mobility, more energy, and enhanced emotional health.
The key is recognizing that sleep problems are common symptoms of Parkinson’s—not something you simply have to accept.

Why Support Matters
A diagnosis of any form of Parkinson’s can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida at www.paswfl.org or call 239-417-3465.

For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech Exercise classes
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter:
https://parkinsonassociationswfl.org/signup-enews.html
👉 Click here to become a member—it's free and confidential:
https://parkinsonassociationswfl.org/signup.html
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

As Parkinson’s disease progresses, symptoms often become more complex. Medications that once worked well may wear off sooner, movement fluctuations may become more noticeable, and non-motor symptoms such as sleep problems, anxiety, and cognitive changes may increase. Fortunately, advances in Parkinson’s treatment continue to provide new options that can help people maintain independence and improve their quality of life.

The future of Parkinson’s treatment is more promising than ever. From advanced medication delivery systems and minimally invasive procedures to breakthrough research in gene and stem cell therapies, exciting developments are giving people living with Parkinson’s more reasons to be hopeful.

Why Treatment Often Changes Over Time
Parkinson’s disease is progressive, meaning symptoms gradually change over the years. While levodopa remains the gold standard treatment, many individuals eventually experience:

• "Off" periods when medication effectiveness decreases
• Involuntary movements (dyskinesia)
• Increased stiffness or slowness
• Balance difficulties
• Non-motor symptoms such as fatigue, depression, and sleep disturbances

Fortunately, neurologists have more treatment options than ever before to personalize care.

New Medication Options
Several newer medications and formulations are designed to provide more consistent symptom control by reducing "off" time and extending the effects of levodopa.
Depending on individual needs, treatment options may include:

• Extended-release levodopa formulations
• Continuous medication delivery systems
• Add-on medications that prolong dopamine activity
• Rescue therapies for sudden "off" episodes

Your movement disorder specialist can determine which combination of therapies may be most appropriate.

​Deep Brain Stimulation (DBS)
Deep Brain Stimulation remains one of the most effective surgical treatments for carefully selected individuals with progressing Parkinson’s disease.
DBS uses implanted electrodes to deliver electrical impulses to specific areas of the brain, helping reduce:

• Tremor
• Stiffness
• Slowness of movement
• Medication fluctuations

Many patients experience improved quality of life and may require lower medication doses after the procedure.

MRI-Guided Focused Ultrasound
MRI-guided focused ultrasound is a newer, incision-free procedure available for certain individuals with medication-resistant tremor.
Using highly focused sound waves, physicians target a small area of the brain without traditional surgery. Although it is not appropriate for everyone, it offers another treatment option for selected patients.

Emerging Research and Future Therapies
Researchers continue investigating exciting new approaches, including:

• Stem cell therapies
• Gene therapy
• Alpha-synuclein-targeted treatments
• Neuroprotective medications
• Personalized medicine based on genetics
• Wearable technology that helps monitor symptoms in real time

While many of these therapies remain under clinical investigation, they represent important progress toward improving Parkinson’s care.

Lifestyle Remains an Essential Treatment
Medication is only one part of managing Parkinson’s disease.
Research consistently shows that regular exercise, physical therapy, speech therapy, occupational therapy, healthy nutrition, and emotional support can significantly improve quality of life at every stage of Parkinson’s.
Working closely with a movement disorder specialist allows treatment plans to evolve as symptoms change.

Why Support Matters
A diagnosis of any form of Parkinson’s can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida at www.paswfl.org or call 239-417-3465.

For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.
Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech Exercise classes
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

​Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter:
https://parkinsonassociationswfl.org/signup-enews.html
👉 Click here to become a member—it's free and confidential:
https://parkinsonassociationswfl.org/signup.html
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

While there is no special diet that can cure Parkinson’s disease, the foods you eat can play an important role in managing symptoms, supporting overall health, and improving quality of life. A nutritious, well-balanced eating plan may help increase energy, improve digestion, support brain health, and even enhance the effectiveness of certain Parkinson’s medications.
​
Could something as simple as changing what's on your plate help you feel better every day? Research suggests that smart nutrition choices may help ease common Parkinson’s symptoms such as constipation, fatigue, and medication fluctuations. Here's what you should know.

How Nutrition Supports People with Parkinson’s Disease
Parkinson’s disease affects much more than movement. It can also impact digestion, swallowing, appetite, weight, and the body's ability to absorb medications.
A healthy diet can help:

• Support brain and heart health
• Reduce constipation
• Maintain muscle strength
• Improve energy levels
• Promote healthy weight
• Support immune function

Although food cannot stop Parkinson’s from progressing, it can help people feel their best and maintain independence.

Foods That May Help Ease Parkinson’s Symptoms

Eat Plenty of Fruits and Vegetables
Colorful fruits and vegetables are packed with antioxidants, vitamins, minerals, and fiber that help reduce inflammation and support overall health. Fiber-rich foods also help relieve constipation, one of the most common non-motor symptoms of Parkinson’s.

Choose Healthy Fats
Healthy fats found in salmon, trout, walnuts, flaxseed, olive oil, and avocados support heart and brain health. Omega-3 fatty acids may also help reduce inflammation and support cognitive function.

Include Whole Grains
Whole grains such as oatmeal, brown rice, quinoa, and whole wheat bread provide fiber and steady energy throughout the day.
​
Stay Hydrated
Drinking enough water is essential for digestion, medication absorption, and preventing constipation. Proper hydration may also reduce dizziness caused by low blood pressure.

Timing Meals Around Medication
For people taking levodopa, protein-rich foods can sometimes interfere with medication absorption.
Some individuals find it helpful to:

• Take medication 30 to 60 minutes before meals when recommended by their healthcare provider.
• Eat larger portions of protein later in the day if advised by their medical team.

Never change your medication schedule without consulting your neurologist or healthcare provider.

Other Nutrition Tips
Small changes can make a big difference:

• Eat smaller, more frequent meals if fatigue affects eating.
• Choose foods that are easier to chew or swallow if swallowing becomes difficult.
• Limit highly processed foods high in sugar and saturated fats.
• Work with a registered dietitian familiar with Parkinson’s disease for personalized guidance.

Food Is Part of the Treatment Plan
While nutrition is not a replacement for medication or medical care, it is an important part of managing Parkinson’s disease. Combining healthy eating with regular exercise, quality sleep, medication management, and social support can help improve both physical and emotional well-being.
Every person with Parkinson’s has unique nutritional needs, so discussing dietary concerns with your healthcare team is always the best approach.

Why Support Matters
A diagnosis of any form of Parkinson’s can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida at www.paswfl.org or call 239-417-3465.

For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.
Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech Exercise classes
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter:
https://parkinsonassociationswfl.org/signup-enews.html
👉 Click here to become a member—it's free and confidential:
https://parkinsonassociationswfl.org/signup.html
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

Many people think of Parkinson’s disease as a condition that primarily affects movement, causing tremors, stiffness, and slowed motion. However, Parkinson’s also affects the brain in ways that can influence mood, motivation, and emotional well-being. If you've noticed you're feeling less motivated, less interested in activities you once enjoyed, or struggling with depression or anxiety, you're not alone—and it's not simply "all in your head."
​
The encouraging news is that mood and motivation changes are recognized symptoms of Parkinson’s disease, and they are treatable. Understanding why they happen and learning what you can do about them can help you regain a sense of control and improve your quality of life.

Why Does Parkinson’s Affect Mood and Motivation?
Parkinson’s disease develops when brain cells that produce dopamine gradually decline. While dopamine is essential for controlling movement, it also plays a critical role in motivation, pleasure, decision-making, and emotional regulation.
In addition to dopamine, Parkinson’s can affect other important brain chemicals, including serotonin and norepinephrine, which help regulate mood, sleep, energy levels, and stress responses.
These neurological changes—not simply the emotional impact of receiving a diagnosis—can contribute to depression, anxiety, and reduced motivation.

Common Emotional Changes in Parkinson’s Disease
Everyone experiences Parkinson’s differently, but many people develop one or more of these non-motor symptoms:
Depression
Depression is one of the most common symptoms of Parkinson’s disease. Signs may include:

• Persistent sadness
• Loss of interest in hobbies
• Low energy
• Feelings of hopelessness
• Difficulty concentrating

Anxiety
Anxiety may appear as constant worry, panic attacks, nervousness, or feeling overwhelmed. Some people notice anxiety increases during medication "off" periods.
​
Apathy
Apathy is different from depression. It is characterized by reduced motivation or initiative, even when a person doesn't feel sad. Everyday tasks may seem difficult to begin, despite wanting to accomplish them.

What Can You Do About It?
The good news is that emotional symptoms often improve with the right combination of treatments and lifestyle strategies.

Talk With Your Healthcare Provider
Never assume mood changes are something you simply have to live with. Your neurologist can evaluate whether medication adjustments or additional treatments may help.

Stay Physically Active
Regular exercise has been shown to improve mood, reduce anxiety, increase energy, and support brain health. Even gentle activities such as walking, stretching, tai chi, or chair exercises can make a meaningful difference.

Consider Counseling
A mental health professional can provide tools to help manage depression, anxiety, stress, and the emotional challenges that often accompany Parkinson’s disease.

Stay Socially Connected
Support groups, family gatherings, volunteer opportunities, and community activities can reduce isolation and improve emotional well-being.

Prioritize Sleep and Nutrition
Quality sleep and a balanced diet support both physical and emotional health. Discuss sleep concerns with your healthcare provider if they become persistent.
​
Remember: These Symptoms Are Part of the Disease
Mood changes are not a sign of weakness or lack of determination. They are common neurological symptoms of Parkinson’s disease that deserve the same attention as tremors or stiffness.
With proper medical care, emotional support, healthy lifestyle habits, and community resources, many individuals successfully manage these symptoms and continue living fulfilling, active lives.

Why Support Matters
A diagnosis of any form of Parkinson’s can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida at www.paswfl.org or call 239-417-3465.

For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.
Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech Exercise classes
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter:
https://parkinsonassociationswfl.org/signup-enews.html
👉 Click here to become a member—it’s free and confidential:
https://parkinsonassociationswfl.org/signup.html
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

​When most people think of Parkinson’s disease, they picture tremors, stiffness, or difficulty walking. However, Parkinson’s is much more than a movement disorder. It can also affect emotions, mood, and mental well-being. In fact, emotional symptoms are among the most common—and often most overlooked—aspects of Parkinson’s disease.
Did you know that changes in mood and emotions can appear years before the first tremor? Understanding why Parkinson’s affects emotions can help individuals and families recognize these symptoms early, seek appropriate treatment, and improve overall quality of life.

Why Does Parkinson’s Affect Emotions?
Parkinson’s disease occurs when brain cells that produce dopamine gradually die. Dopamine is well known for its role in controlling movement, but it also helps regulate mood, motivation, reward, and emotional responses.
As Parkinson’s progresses, changes also occur in other brain chemicals, including serotonin and norepinephrine, which influence emotions, sleep, and anxiety. These neurological changes—combined with the challenges of living with a chronic illness—can significantly affect emotional health.

Common Emotional Symptoms of Parkinson’s Disease
Every person experiences Parkinson’s differently, but many people develop emotional symptoms at some point during the disease.
​
Depression:
Depression is one of the most common non-motor symptoms of Parkinson’s disease. It is not simply a reaction to the diagnosis but can result from changes in brain chemistry.
Symptoms may include:

• Persistent sadness
• Loss of interest in favorite activities
• Low energy
• Feelings of hopelessness
• Difficulty concentrating

Anxiety:
Many individuals experience excessive worry, panic attacks, or feelings of nervousness. Anxiety may occur during medication "off" periods or independently of movement symptoms.

Apathy:
Apathy is different from depression. It involves a lack of motivation, interest, or emotional engagement, even when the person does not feel sad.

Emotional Changes:
Some individuals become more emotionally sensitive or experience unexpected mood swings. Others may cry or laugh more easily than before.

Emotional Symptoms Are Treatable
The good news is that emotional symptoms can often be managed with the right treatment plan.
Treatment may include:

• Medication adjustments
• Antidepressant or anti-anxiety medications
• Counseling or psychotherapy
• Regular exercise
• Stress management techniques
• Participation in support groups

Addressing emotional symptoms is just as important as treating movement symptoms.

How Care Partners Can Help
Family members and caregivers play an essential role in supporting emotional well-being.
Helpful strategies include:

• Encouraging open conversations
• Attending medical appointments together
• Watching for changes in mood
• Helping reduce stress
• Promoting regular physical and social activity

Understanding that emotional changes are part of Parkinson’s—not a personal weakness—can foster greater compassion and support.

Living Well with Parkinson’s
Living with Parkinson’s disease involves caring for both the body and the mind. Recognizing emotional symptoms early allows individuals to receive appropriate care and continue enjoying meaningful relationships, hobbies, and daily activities.
With the right medical care, support network, and healthy lifestyle, many people successfully manage the emotional challenges of Parkinson’s disease while maintaining an excellent quality of life.

Why Support Matters
A diagnosis of any form of Parkinson’s can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida at www.paswfl.org or call 239-417-3465.
For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.
Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech Exercise classes
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter:
https://parkinsonassociationswfl.org/signup-enews.html
👉 Click here to become a member—it’s free and confidential:
https://parkinsonassociationswfl.org/signup.html
To learn more, visit www.paswfl.org and discover the power of support, education, and community.
​

Parkinson’s disease research has made remarkable progress over the past decade, and one of the most exciting areas of investigation is stem cell science. While there is currently no cure for Parkinson’s disease, researchers are exploring whether stem cells could one day replace damaged brain cells and improve symptoms.
​
Could stem cells someday change the way Parkinson’s disease is treated? Scientists around the world are making encouraging discoveries, with several clinical trials already underway. Here's what current research tells us—and what it could mean for the future of Parkinson’s care.

What Is Stem Cell Therapy?
Stem cells are unique cells that can develop into many different types of specialized cells in the body. For Parkinson’s disease, researchers are studying how stem cells can be transformed into dopamine-producing neurons—the very cells that are gradually lost as Parkinson’s progresses.
The goal is to replace damaged neurons, restore dopamine production, and improve movement and other symptoms.

Why Are Stem Cells Important for Parkinson’s Disease?
Parkinson’s disease occurs when dopamine-producing nerve cells in a part of the brain called the substantia nigra begin to die. Current medications help replace or mimic dopamine, but they do not stop the disease or replace lost brain cells.
Stem cell therapies aim to:

• Replace damaged dopamine-producing neurons
• Improve motor function
• Reduce medication fluctuations
• Potentially provide longer-lasting symptom relief

Researchers hope these therapies could one day complement existing Parkinson’s treatments.
​
What Advances Have Been Made?
Recent years have brought significant progress in stem cell science.
Scientists have successfully developed stem cell-derived dopamine neurons in laboratory settings and have begun testing their safety in carefully controlled human clinical trials.

Several research centers worldwide are studying whether transplanted cells can survive, integrate into the brain, and produce dopamine over the long term.
​
While these early results are encouraging, stem cell therapies remain experimental and are not yet approved as a standard treatment for Parkinson’s disease.

What Are the Challenges?
Although stem cell research is promising, several important questions remain:

• Will transplanted cells survive for many years?
• Can they consistently improve symptoms?
• Are there long-term safety risks?
• Which patients are the best candidates?

Researchers continue working to answer these questions through ongoing clinical trials.

Should Patients Seek Stem Cell Treatments Today?
Patients should be cautious of clinics advertising "stem cell cures" for Parkinson’s disease outside of regulated clinical research. Many commercial treatments have not been proven safe or effective.
If you're interested in stem cell therapy, speak with your neurologist or movement disorder specialist about legitimate clinical trials that are monitored by regulatory agencies and ethics committees.

Hope for the Future
Although stem cell therapy is not yet a cure, it represents one of the most exciting areas of Parkinson’s research. Combined with advances in genetics, biomarkers, medications, and surgical therapies, stem cell science offers hope that future treatments may slow disease progression or restore lost function.
Researchers continue to move closer toward therapies that may transform the future of Parkinson’s care.

Why Support Matters
A diagnosis of any form of Parkinson’s can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida at www.paswfl.org or call 239-417-3465.

For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech Exercise classes
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.

Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Click here to sign up for the PASWFL newsletter:
https://parkinsonassociationswfl.org/signup-enews.html
👉 Click here to become a member—it’s free and confidential:
https://parkinsonassociationswfl.org/signup.html
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

Florida is home to more people living with Parkinson's disease than any other state in the country. Now, thanks to newly signed legislation, the state is finally building a system to track and understand the disease at scale. The Florida Institute for Parkinson's Disease at the University of South Florida will establish a statewide registry to collect and monitor data on Parkinson's disease and atypical Parkinsonism.

But what does a "registry" actually change for patients and families living with Parkinson's today — and why does it matter now? Keep reading to learn more.

The registry was created under House Bill 1443, signed into law on March 27. Starting January 1, 2027, healthcare providers across Florida will be required to report Parkinson's cases to the registry. By 2028, the Florida Institute for Parkinson's Disease plans to begin publishing reports on the disease's demographics statewide, including county-by-county data — giving researchers, policymakers, and advocacy groups a clearer picture of where Parkinson's is most concentrated and who it affects.

This matters because Florida already leads the nation in the percentage of residents diagnosed with Parkinson's disease, a progressive disorder of the central nervous system that primarily affects movement and cognitive function. According to the Parkinson's Association of Southwest Florida, nearly 80,000 Floridians currently live with the disease.

Notably, a funding provision that would have supported new research was stripped from the final bill. Still, according to the Michael J. Fox Foundation for Parkinson's Research, the registry represents the first step toward building a research consortium that can pursue funding and studies down the road. Data collection, in other words, comes before dollars — but it's a necessary foundation.

Will My Personal Information Be Shared?
To accurately track the disease over time and avoid duplicate records, providers will submit patient information to the confidential registry.
The information reported to the registry is expected to include:

• Patient identifiers (such as name and date of birth) to prevent duplicate records
• Basic demographic information (age, sex, race/ethnicity, county of residence)
• Diagnosis (Parkinson's disease or atypical parkinsonism)
• Date of diagnosis
• Treating healthcare provider
• Clinical information and treatment measures related to Parkinson's disease

Your personal information will not be available to the public. Florida law protects registry records from public disclosure, and only summarized, de-identified data, such as statewide and county-level statistics, will be published.
Under the final version of Florida House Bill 1443, there is no opt-out provision, meaning healthcare providers are required to report eligible cases to the registry. An earlier version of the companion bill (SB 1684) did include language allowing patients to opt out of having their personally identifying information included in the registry, however the final bill does not include that language. The goal is to help researchers better understand Parkinson's disease, improve care, and advance future treatments while protecting patient privacy.

Why Support Matters Right Now
A Parkinson's diagnosis — whether it's classic Parkinson's disease or an atypical Parkinsonism — can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being while research and policy catch up.

That's where local support becomes essential. For resources, referrals, and guidance in navigating Parkinson's and related conditions, contact the Parkinson's Association of Southwest Florida (PASWFL) at www.paswfl.org or call 239-417-3465.

For more than 25 years, PASWFL has provided free, high-quality programs to individuals and families touched by Parkinson's disease in Southwest Florida. Their mission is simple: help people live well with PD, no matter where they are in their journey.

Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech exercise classes
• Educational seminars
• Support for care partners
• Support groups

There are no membership fees, and PASWFL welcomes anyone touched by Parkinson's disease.

Take the First Step Toward Living Well
If you suspect early Parkinson's or have been recently diagnosed, you don't have to face it alone.
👉 Sign up for the PASWFL newsletter
👉 Become a member — it's free and confidential
Visit www.paswfl.org to learn more and discover the power of support, education, and community.

Communication Changes in Parkinson's Disease: You Don't Have to Face Them Alone
Living with Parkinson's disease affects far more than movement. As the disease progresses, many people experience changes in speech, facial expression, voice volume, and the ability to communicate effectively. These challenges can be frustrating—not only for the person living with Parkinson's disease but also for spouses, care partners, family members, and friends.
​
What if small changes in the way you communicate could strengthen your relationship, reduce misunderstandings, and make daily conversations easier? Read on to discover practical strategies—and learn about a free educational program designed to help.

Why Communication Changes in Parkinson's Disease
Parkinson's disease can affect the muscles involved in speech, making voices softer, words less clear, and facial expressions less expressive. Some individuals may also have difficulty finding words or processing conversations quickly.

To someone unfamiliar with Parkinson's disease, these changes may appear as disinterest, confusion, or even frustration. In reality, communication difficulties are common symptoms of the disease and often improve when both partners understand what is happening and learn effective communication techniques.

The good news is that communication is a skill that can be strengthened.

Small Changes Can Make a Big Difference
Simple strategies can improve conversations and reduce stress for everyone involved.
These include:

• Speaking in a quiet environment with fewer distractions
• Maintaining eye contact
• Allowing extra time to respond
• Speaking slowly and clearly
• Confirming important information
• Using gestures or written reminders when helpful
• Practicing patience and active listening

Many families discover that these adjustments create more meaningful conversations while reducing daily frustration.

Free PD Talk on Communication
The Parkinson's Association of Southwest Florida (PASWFL) invites you to attend a free educational presentation designed specifically for people living with Parkinson's disease and those who support them.
FREE PD Talk: Supporting Communication with Your PD Partner
Presented by Judy Jenner, MC, CCC
📅 Wednesday, July 29, 2026
🕒 3:00 p.m. (ET)
💻 Via Zoom
⏰ Register by July 27 at 3:00 p.m.
Whether you're a spouse, care partner, adult child, family member, or friend, this presentation will provide practical tools that you can begin using immediately to improve communication, strengthen relationships, and navigate Parkinson's disease together with greater confidence.
​
Register here:
https://us06web.zoom.us/meeting/register/XtuRpmp6QjelcSx734ydUA#/registration

Why Education Matters
Research consistently shows that education, exercise, and social support help people living with Parkinson's disease maintain independence and quality of life. Learning communication strategies early can help prevent frustration, reduce isolation, and improve emotional well-being for both individuals living with Parkinson's disease and their care partners.
No one should have to figure this journey out alone.

Why Support Matters
A diagnosis of any form of Parkinson's can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson's and related conditions, contact the Parkinson's Association of Southwest Florida at www.paswfl.org or call 239-417-3465.

For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson's disease throughout Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.

Each week PASWFL offers more than 25 free programs and support groups including:

• Wellness and fitness classes
• Speech Exercise classes
• Educational seminars
• Care partner support
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by Parkinson's disease.

Take the First Step Toward Living Well
If you suspect early Parkinson's disease or have recently been diagnosed, you don't have to face it alone.
👉 Sign up for the PASWFL newsletter:
https://parkinsonassociationswfl.org/signup-enews.html
👉 Become a member—it's free and confidential:
https://parkinsonassociationswfl.org/signup.html
To learn more, visit www.paswfl.org and discover the power of support, education, and community.

Why Support Matters
A diagnosis of any form of Parkinson's can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life and emotional well-being.
For more than 25 years, the Parkinson's Association of Southwest Florida (PASWFL) has helped individuals and families live well with Parkinson's disease through more than 25 free weekly programs, including:

• Wellness and fitness classes
• Speech Exercise classes
• Educational seminars
• Care partner support
• Support groups

There are no fees to become a member, and anyone touched by Parkinson's disease is welcome.
Take the First Step Toward Living Well👉 Sign up for our free newsletter:
https://parkinsonassociationswfl.org/signup-enews.html
👉 Become a PASWFL member—it's free and confidential:
https://parkinsonassociationswfl.org/signup.html
Visit www.paswfl.org to discover the power of education, support and community.