“Sue Goldie Has Parkinson’s”: What Her Story Teaches Us About Parkinson’s and Community Support

In a deeply personal profile recently published, Harvard public-health expert Sue Goldie revealed she has been living with Parkinson’s disease for four years—sharing how she managed diagnosis, stigma, and adaptation in silence.

Why keep reading? Because Goldie’s story does more than reveal an individual’s journey—it teaches us about diagnosis, resilience, and how local support networks matter just as much as scientific breakthroughs.

Sue Goldie’s Parkinson’s JourneyDr. Goldie, a renowned physician and professor, kept her diagnosis private for nearly four years before going public. Her experience highlights common themes for people living with Parkinson’s: initial denial, fear of professional consequences, and the quiet decision to carry on until support becomes essential. Her openness now invites conversation and increases awareness of what Parkinson’s truly feels like—beyond tremors and stiffness.

Lessons from Her Story

• Diagnosis isn’t only medical—it’s personal and professional. Goldie balanced academic demands, faculty leadership, and now a chronic neurological condition.
  
  
• Stigma still plays a role. Her choice to delay disclosure underscores the concern many face about being defined by a disease rather than their full identity.
  
  
• Adaptation is ongoing. Managing Parkinson’s isn’t a one-time event—it means modifying daily routines, workflows, and self-expectations.
  
  

Support systems matter. Though she’s a high-achieving professional, Goldie’s decision to go public reflects the importance of community, resources, and accountability in facing a progressive condition.

Why Local Support Organizations Are CriticalWhile high-profile stories like Sue Goldie’s highlight the human side of Parkinson’s—and national research efforts draw attention and funding—it’s local organizations that provide the day-to-day support people need to live well. The Parkinson’s Association of Southwest Florida (PASWFL) is one such organization that ensures that local individuals and families receive free wellness classes, speech therapy, educational programming, and peer support.
Stories like Goldie’s show how Parkinson’s affects highly capable professionals—and therefore it affects anyone. Whether you’re a legacy-maker, caregiver, or someone living with PD, local resources help you live well now, not just when a cure arrives.

Why Support Matters
A diagnosis of any form of Parkinson’s can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being.
For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida at www.paswfl.org or call 239-417-3465.
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For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey.
Each week, PASWFL offers more than 25 free programs and support groups, including:

• Wellness and fitness classes
• Speech exercise classes
• Educational seminars
• Support for care partners
• Support groups

There are no fees to become a member, and PASWFL welcomes anyone touched by PD.
Take the First Step Toward Living Well
If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone.
👉 Sign up for the PASWFL newsletter
👉 Become a member—it’s free and confidential
To learn more, visit www.paswfl.org and discover the power of support, education, and community.