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, Framing advance care planning in Parkinson disease Patient and care partner perspectives
Hillary D. Lum, Sarah R. Jordan, Adreanne Brungardt, Roman Ayele, Maya Katz, Janis M. Miyasaki, Anne Hall, Jacqueline Jones, Benzi Kluger, Neurology May 2019, 92 (22) e2571-e2579; DOI: 10.1212/WNL.0000000000007552, https://n.neurology.org/content/92/22/e2571.abstrac

The study's findings show how patients and their care partners view Advance Care Planning (ACP) as a part of their clinical care. There are four key points to consider:

1. People have different understandings of what ACP means in the context of Parkinson's disease.
2. There are various challenges related to patients, their relationships, and the healthcare system that make it difficult to engage in ACP.
3. Care partners actively participate in the ACP process.
4. Approaching care from a palliative perspective has a positive impact on ACP.
5. In summary, these findings suggest that healthcare providers should initiate conversations about ACP and work together across different disciplines to help patients and their care partners overcome the obstacles associated with ACP.

In conclusion, how Advance Care Planning (ACP) is handled in Parkinson's Disease (PD) can be influenced by how patients and their care partners understand or misunderstand it, the specific symptoms of PD (like apathy and cognitive issues), and the way clinical care is organized.
 
To ensure that patients with PD and their care partners are actively involved in ACP, it's crucial to address any misunderstandings about ACP and to integrate ACP into routine care by involving clinic teams and adjusting healthcare processes accordingly.
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PUBLISHED RESEARCH

 To ensure we are providing accurate and timely information, we only list articles on studies that are published in peer-reviewed periodicals and provide information to help you live well with PD.  To find additional papers and research CLICK HERE