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When a loved one is diagnosed with Parkinson’s disease (PD), the journey ahead can feel uncertain—not only for the person with Parkinson’s but also for their care partner. Care partners play a crucial role in daily life, providing emotional support, managing appointments, and adapting to changing needs over time. While the responsibility can feel overwhelming, understanding what to expect and where to turn for help makes a world of difference. 👉 So, what do care partners of someone with Parkinson’s need to know? Let’s explore the most important insights, resources, and strategies to help care partners support their loved ones while also caring for themselves. Parkinson’s is a Journey—Not Just a Diagnosis Care partners should understand that Parkinson’s is a progressive neurological condition. Symptoms such as tremors, stiffness, slowness of movement, and changes in speech or balance may evolve gradually. Knowing that needs will change over time helps care partners prepare emotionally and practically. Communication is Key Open, honest communication with your loved one builds trust and strengthens your partnership. Talk about daily challenges, emotional needs, and long-term planning. A supportive, two-way conversation helps reduce stress for both care partner and person with PD. Education Empowers Care Partners The more you know about Parkinson’s, the better you can provide support. Care partners benefit from learning about:
Self-Care for Care Partners Caring for someone with Parkinson’s can be demanding, both physically and emotionally. Care partners need to remember that self-care is not selfish—it is necessary. Make time for exercise, hobbies, and rest. Seeking out support groups specifically for care partners provides a safe place to share experiences and reduce feelings of isolation. Building a Support System No one can walk the Parkinson’s journey alone. Care partners should reach out to family, friends, and community organizations to create a strong network of support. Joining a Parkinson’s-focused association like the PASWFL offers access to resources that ease the caregiving role while improving the quality of life for both care partner and loved one. Why Support Matters A diagnosis of any form of Parkinson’s can feel overwhelming. But with the right support and resources, individuals can maintain independence, quality of life, and emotional well-being. For resources, referrals, and support in navigating Parkinson’s and related conditions, contact the Parkinson’s Association of Southwest Florida (PASWFL) at www.paswfl.org or call 239-417-3465. For over 25 years, PASWFL has provided free, high-quality services and programs to individuals and families touched by Parkinson’s disease in Southwest Florida. Their goal is simple: help people live well with PD, regardless of where they are in their journey. Each week, PASWFL offers more than 25 free programs and support groups, including:
Take the First Step Toward Living Well If you suspect early Parkinson’s or have been recently diagnosed, you don’t have to face it alone. 👉 Click here to sign up for the PASWFL newsletter 👉 Click here to become a member—it’s free and confidential To learn more, visit www.paswfl.org and discover the power of support, education, and community. Powerful Tools for Caregivers®October 7- November 11 , Tuesdays @ 12:30-2:30 pm
Join the PASWFL for this series of classes to help caregivers take better care of themselves while caring for a friend or relative. You become a better caregiver by taking care of your own health and well-being. The PTC program is an evidence-based education program offering unique elements. In 2012, the PTC program was deemed to have met the highest-level criteria of evidence-based disease prevention and health promotion programs per the Administration on Aging/Administration for Community Living. CLICK TO LEARN MORE
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September 2025
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